CURE SYNGAP1 PODCAST aka SYNGAP10

#UFDcure CANNONBALL2 is a wrap/half done. #S10e79


Listen Later

#UFDcure CANNONBALL2 is a wrap/half done. #S10e79
CANNONBALL!
Donate now, it’s matched: https://www.justgiving.com/fundraising/ufd-cftc-2022
Brett talking about CB2 https://www.youtube.com/watch?v=2Wb0RO74UIo
UPenn interview https://www.youtube.com/watch?v=gFLEj_Uq1k8
Twitch: https://www.twitch.tv/ufdisciple
Brett: https://twitter.com/UFDTech
Peter: https://twitter.com/phalliburton
Kevin: https://fryereeves.com/kevin-w-frye/
VISITS
Pavel: https://twitter.com/SydneyStel/status/1584233335554854915/photo/2
Sydney: https://twitter.com/SydneyStel/status/1583079166014263296?s=20&t=YGu_OlFePZ5_jEhZvMj97g
Rebecca: https://twitter.com/SydneyStel/status/1584233335554854915/photo/3
Virginie: https://twitter.com/McNamarVirginie/status/1583871153231183872?s=20&t=YGu_OlFePZ5_jEhZvMj97g
Lauren: https://twitter.com/UFDTech/status/1584003603463045120?s=20&t=YGu_OlFePZ5_jEhZvMj97g
RAREBASE
https://www.rarebase.org/
AMAZING PRESS
TV - CBS - NY
https://www.cbsnews.com/newyork/news/dads-take-dares-for-donations-on-cross-country-road-trip-raising-money-for-syngap1-research/
FORBES https://www.forbes.com/sites/billroberson/2022/10/21/electric-cannonball-run-dads-drive-a-tesla-model-y-cross-country-to-fight-a-disease-affecting-their-sons/
FOX
https://www.foxnews.com/us/dads-drive-across-country-expand-awareness-kids-rare-disease
TONY
https://threadreaderapp.com/thread/1582766217810493441.html
UPCOMING EVENTS
NOVEMBER IS GIVING SEASON!
3 Weeks:
- November 12 in GA - Sparks of Hope Gala https://cbo.io/bidapp/index.php?slug=syngap
- November 14-15 in MA - PMC summit titled Personalized Medicine and the Patient
6 Weeks:
December 1&2 in TN - SYNGAP1 CONFERENCE 2022: Charting our rare disease treatment path https://secure.givelively.org/event/syngap-research-fund-incorporated/syngap1-conference-2022-charting-our-rare-disease-treatment-path
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts: https://syngap.fund/10a
Episode 79 of Syngap10 - October 23, 2022
#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology
---
Send in a voice message: https://podcasters.spotify.com/pod/show/syngap10/message
...more
View all episodesView all episodes
Download on the App Store

CURE SYNGAP1 PODCAST aka SYNGAP10By Syngap Research Fund, 501(c)(3)

  • 5
  • 5
  • 5
  • 5
  • 5

5

85 ratings


More shows like CURE SYNGAP1 PODCAST aka SYNGAP10

View all
Armchair Expert with Dax Shepard by Armchair Umbrella

Armchair Expert with Dax Shepard

69,496 Listeners

SYNGAP1 Stories by Syngap Research Fund, 501(c)(3)

SYNGAP1 Stories

30 Listeners

Café SYNGAP1 by Syngap Research Fund, 501(c)(3)

Café SYNGAP1

19 Listeners