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Victoria shares an update on her PAH after months of worsening shortness of breath, chest pain, palpitations, and fatigue. Even though her January echo looked promising and labs were normal, her specialist ordered a right heart cath with a nitric oxide challenge, and she was a responder. Her doctor called with great news: her pressure is 27, and her heart shows no signs of heart failure, and she thinks Victoria may be overmedicated, so she's cutting her tadalafil dose in half. She's grateful but still anxious because her symptoms haven’t fully improved yet, with a two-week nurse check-in and a follow-up appointment in June.
00:00 Welcome and Update
00:26 What PAH Means
02:41 Diagnosis Delays
04:59 Stabilizing on Treatment
06:13 Right Heart Cath Explained
08:17 Vasoreactivity Breakthrough
09:23 New Meds and Low BP
10:31 Symptoms Creeping Back
13:35 January Tests and Monitor
15:44 March Labs and Cath Scheduled
17:57 Spiraling Before Procedure
19:22 Mom Guilt Morning Prep
20:00 Heart Cath Setup
20:21 Awake Neck Procedure
22:42 Nitric Oxide Results
24:34 Discharge And Sick Ride
26:21 Great News Med Cutback
27:25 Symptoms Vs Numbers
31:16 Faith And Advocacy Call
33:41 One Week Update Next Steps
35:50 Closing Thanks And Follow
By Jordan Rye and Victoria McGahaVictoria shares an update on her PAH after months of worsening shortness of breath, chest pain, palpitations, and fatigue. Even though her January echo looked promising and labs were normal, her specialist ordered a right heart cath with a nitric oxide challenge, and she was a responder. Her doctor called with great news: her pressure is 27, and her heart shows no signs of heart failure, and she thinks Victoria may be overmedicated, so she's cutting her tadalafil dose in half. She's grateful but still anxious because her symptoms haven’t fully improved yet, with a two-week nurse check-in and a follow-up appointment in June.
00:00 Welcome and Update
00:26 What PAH Means
02:41 Diagnosis Delays
04:59 Stabilizing on Treatment
06:13 Right Heart Cath Explained
08:17 Vasoreactivity Breakthrough
09:23 New Meds and Low BP
10:31 Symptoms Creeping Back
13:35 January Tests and Monitor
15:44 March Labs and Cath Scheduled
17:57 Spiraling Before Procedure
19:22 Mom Guilt Morning Prep
20:00 Heart Cath Setup
20:21 Awake Neck Procedure
22:42 Nitric Oxide Results
24:34 Discharge And Sick Ride
26:21 Great News Med Cutback
27:25 Symptoms Vs Numbers
31:16 Faith And Advocacy Call
33:41 One Week Update Next Steps
35:50 Closing Thanks And Follow