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Jason Greenspan joins Lee on this week’s episode of the WE Have Cancer podcast to talk about his personal story battling testicular cancer at a young age, and how he’s become an advocate.
Jason shares how he first found a lump and received a testicular cancer diagnosis at the age of 18. From there, Jason’s story goes into how testicular cancer impacted and ultimately shaped the relationship he has with his mother, to a world record-setting event and his efforts to bring awareness of the disease to the world. This episode is all about breaking the stigma to help improve the testicular cancer survival rate through self-exams and open discussions without fear or embarrassment.
Guest biography:Jason Greenspan is the founder of National Ball Check Day and a testicular cancer survivor. Diagnosed at 18 years old after he found a lump, Jason has been through testicular cancer treatment and come out on the other side. He’s now looking to make the conversation easier and help save lives as he brings awareness of testicular cancer to the masses.
Table of contents:Jason talks about what went through his mind when at 18 years old, he found a lump on his testicle and got a diagnosis of testicular cancer.
In what’s already a difficult and perhaps embarrassing topic of conversation for a young man, Jason’s discovery was made even tougher on his mother due to his grandmother being rediagnosed with cancer of his own.
Though certainly difficult for Jason himself, he shares what his mother did to help support him through his journey -- from staying strong to taking off work for three months to take him to chemo treatments.
Through a shared journey has come more understanding. Jason discusses how the relationship with his mother has been positively impacted and how it’s stronger now because of what they went through together.
Now cancer-free for nearly eight years, Jason has turned his story into one of advocacy and awareness. Jason now tries to educate others, especially young men, about the process of going to the doctors and what to look for themselves to help diagnose early. If caught early, the testicular cancer survival rate is high.
As a part of his advocacy, one of the biggest things Jason looks to do now is counter the notion testicular cancer is embarrassing or taboo to address. Jason talks about the reactions he personally faced from both students and faculty when trying to put together an event at his school to raise awareness of testicular cancer.
Jason helped found National Ball Check Day, which takes place on the second Tuesday of April. Designed to bring awareness to testicular cancer and show men how to self-administer a testicular cancer test, the goal is to open up the discussion.
Now out of school and with his own experiences at hand, Jason has transitioned into doing events for a non-profit organization.
Wanting to continue his legacy at school and beyond, Jason created an event that set the Guinness world record for most guys doing a testicular cancer test together. From organizing the event and keeping in contact with the former record holder to the logistics of setting a world record, Jason talks about how the idea came about and how it all happened.
Why doing regular tests and talking about testicular cancer is important for everyone to think about more often.
Links mentioned in the show:National Ball Check Day
Testicular Cancer Society
Sean Kimerling Testicular Cancer Foundation
Testicular Cancer Foundation
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Kat Arney joins the “WE Have Cancer” podcast to talk about her new book “Rebel Cell.” As a self-identified developmental geneticist, Kat discusses what is cancer, why do people get cancer, and how it differs from the perception most have of the disease.
From viewing cancer as a one-off personal event to how a more evolutionary outlook on treatment might just be the answer to curing cancer, Kat Arney uses her Ph.D. and experience to flip your idea of the disease on its head.
Guest biography:Kat Arney is the host of the “Genetics Unzipped" podcast and author of such books as, “Rebel Cell: Cancer, Evolution, and the New Science of Life’s Oldest Betrayal.”
Kat earned a Ph.D. in developmental genetics from Cambridge University. She’s a co-founding member of the Cancer Research UK's award-winning science blog and was a principal media spokesperson from 2004-2016.
Table of contents:
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Kat Arney’s book, “Rebel Cell” comes out on August 6th in the U.K. and October 13th in the U.S.
Follow Kat Arney on Twitter and Instagram, as well as the Genetics Unzipped podcast on Twitter
Know someone touched by cancer who has an inspiring story? Email Lee
We have Heather Von St. James joining us today on the WE Have Cancer Podcast to explain what is Mesothelioma and her unique path through the disease to the advocacy she does now as a survivor. Heather shares her story about how she first realized something was wrong after giving birth to her daughter through to her Mesothelioma prognosis, to finding the right Mesothelioma doctors and treatment.
Table of contents:Heather's story and video - https://www.mesothelioma.com/heather/#.X2fAemhKjIU
Follow Heather on:
Instagram - https://instagram.com/HeatherVSJ
Twitter - https://twitter.com/HeatherVSJ
Facebook - https://facebook.com/HeatherVonStJames
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Know someone touched by cancer who has an inspiring story? Email Lee - [email protected]In this episode of the "WE Have Cancer" podcast, Lee talks with Joe Bullock about his personal experiences with colon cancer and the creation of groups to help men share during their cancer diagnosis, treatment, and after-effects of survival.
From getting his diagnosis and how cancer impacted his relationship with his wife to creating the Howling Place group, Joe talks about the sense of isolation and the loss of personal identity many men go through when dealing with cancer. This is a must-listen episode for men struggling to find their place, their feelings, and others they can talk to about their cancer diagnosis, treatment, and even the aftermath of survival.
Guest biography:Joe Bullock is one of the founders of the Howling Place, along with Trevor Maxwell. After being diagnosed with colon cancer in 2018, Joe was not only able to make it through his journey but become a counselor for men dealing with their own cancer diagnosis and the trauma the disease leaves with those it touches.
Table of contents:Lee talks a bit about Chadwick’s untimely passing and how it relates to his own personal life and battle.
Lee introduces Joe and some of the work they’ve done together, as well as their shared experience with colon cancer.
Joe opens up about originally getting diagnosed and how his wife, an RN, was on top of things from a clinical perspective while he struggled with the emotional side of his colon cancer diagnosis.
Joe talks about getting the all-clear from his doctors and the delayed emotions that came with it. He also discusses meeting Trevor and the foundation of the Howling Place Facebook group in an effort to help other men to not isolate and feel alone in their cancer diagnosis.
One of the most important but less-often talked about points is people losing their identity when they’ve had a cancer diagnosis. Joe and Lee talk about how the feeling that a cancer diagnosis encompasses all of life and instead, taking the time to remember the activities, and hobbies you enjoyed before in an effort to restore your identity.
Lee shares an experience of noticing men typically weren’t at conferences or meetings because they felt awkward about sharing their feelings and vulnerabilities. Joe and Lee talk about how the Facebook group tries to combat this problem by creating a more male-focused space where guys can open up and be vulnerable together.
Lee pointed out Joe often takes the time to be a counselor for others and how the emotional drain many go through, both as active participants and for those that struggle to find their place in groups.
Through a connection at Colon Town, Joe was able to help a pediatric cancer patient and his family who was in town. That included an encouragement-card drive that brought at least 1,000 cards of support through his treatment.
Through the hardship of helping his father pass from cancer despite their strained relationship and the passing of others in the community, Joe was able to come out on the other side with a more meaningful understanding of how being a pillar of support could help him and others while becoming his purpose and passion.
Links mentioned in the show:Subscribe to the “WE Have Cancer” Podcast -
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Check out Luxe Bidets
Man Up To Cancer
Man Up to Cancer – The Howling Place Facebook Group
Interview with Charles Griffin
The Colon Club
Know someone touched by cancer who has an inspiring story? Email LeeThe WE Have Cancer podcast turns to a topic we’ve never discussed before: Hospice and palliation. With Jeff Shufelt as our guest, Lee dives into hospice’s meaning and the misconceptions about hospice care.
While it’s a frightening topic that’s hard to discuss, Lee talks to Jeff about his decision to go from treatment to home hospice and how that’s improved his quality of life. From what is hospice care compared to palliative care, to how the decision has impacted his family, this episode is all about how hospice could be the right decision even earlier than you might think.
Guest biography:Jeff Shufelt has Stage 4 colorectal cancer. After trying different treatment options, Jeff came to the realization hospice care was the right and smart move for him. Looking to improve his quality of life rather than getting more time but being unable to enjoy that time due to treatment, the decision to move into palliation and home hospice has been the right one for Jeff.
Table of contents:Lee introduces Jeff, his story with colorectal cancer and the decision to seek out home hospice.
Jeff got a chance to take his son out on the water for a fishing trip, leading to a discussion about bucket lists and how he got the diagnosis.
Jeff shares his story about first getting diagnosed with cancer, being given two years. Jeff talks about his path to additional opinions, surgery, and several NEDs (no evidence of disease).
Jeff and Lee talk about what is hospice care in order to debunk the misconceptions about palliative care.
Hospice doesn’t necessarily mean someone is going to pass immediately. Jeff talks about how long he’s been on hospice care and what palliation looks like for him personally, including painkillers and increasing his quality of life.
Jeff talks about why he decided to do hospice care as a way to improve his quality of life. With few options available to improve the amount of time he has left and a desire to make memories rather than be in treatment, Jeff decided palliation was the right fit for him and his family.
With his mind made up, Jeff opens up about his family’s reaction to his decision to move into palliation and home hospice care.
Building a support network through this fight is an important part of the process. Jeff and Lee talk about how the Colorectal Cancer Alliance helped make connections and gave him more insight into treatment options.
Jeff and Lee talk about the differences between hospice and palliative care. From managing pain, management of your care, and support to help you get through each day; both hospice and palliative care help you in different ways.
Jeff shares a story of being brought in to potentially join a new drug trial only to waste his time. Jeff talks about the highs of hope to the dread of wasting time he doesn’t have.
Despite still having hope, Jeff opens up about the decision to go into hospice earlier than most in an effort to build memories with his family instead of spending that valuable time trying to chase a cure.
Links mentioned in the show:Subscribe to the “WE Have Cancer” Podcast -
Follow WE Have Cancer on Social Media:
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Check out Luxe Bidets
Prostate Health Podcast
Colorectal Cancer Alliance
Colon Cancer Coalition
Know someone touched by cancer who has an inspiring story? Email Lee
Dr. Dana Cardinas joins us on the WE Have Cancer podcast this week. She shares her personal experience with peripheral neuropathy and Stage 3c colon cancer, and how that’s given her a new mission in life.
Dana went from having a successful podiatry practice to being forced to retire due to neuropathy that eventually led to her colon cancer diagnosis. With her medical knowledge and personal experiences, Dana has turned to help others better manage their peripheral neuropathy with some not-so-well-known tips and treatment options.
Guest biography:Dr. Dana Cardinas started her journey as a well-respected and successful podiatrist before being diagnosed with neuropathy, paraneoplastic syndrome, and stage-3c colon cancer. Now healthy, Dana is looking to bring her experience, both personally and as a doctor, to others dealing with peripheral neuropathy from cancer treatments.
Table of contents:Lee shares about the passing of Sarah and talks about her importance to the show and himself.
Lee introduces Dana and a bit about her story, including having Lynch Syndrome during her battle with Stage-3c colon cancer.
Dana had gone from a thriving podiatry practice to being forced to retire after being diagnosed with Ulnar neuropathy.
Dana recalls the first symptoms she noticed. From some simple bloating to pain, Dana brushed aside some early concerns before eventually being tested and diagnosed with colon cancer.
Following successful surgery, Dana and her oncologist talked about FOLFOX and it’s side effects, which include peripheral neuropathy. That led Dana down the path of another diagnosis, Paraneoplastic syndrome; which impacted her treatment.
With the diagnosis of paraneoplastic syndrome, Dana’s treatment options changed due to fears of how the FOLFOX was furthering her already-present peripheral neuropathy condition at a rapid rate.
Though Dana feels great now, she still has the lingering peripheral neuropathy side effect. She talks about managing and improving her peripheral neuropathy and how that’s turned into her new mission.
Dana’s journey is one of extremes. She went from being a successful doctor to being retired, battling cancer, and dealing with peripheral neuropathy all at the same time. She talks about how her spirituality helped carry her through it all.
Dana talks about why she went into podiatry as a profession.
Dana shares some of the most recent ways doctors are learning to battle peripheral neuropathy from FOLFOX injections, including using ice and the cold to limit the side effects.
Dana breaks down how FOLFOX and other drugs cause peripheral neuropathy in the body from a scientific standpoint. She also explains how neuropathy can feel worse at the end of treatment.
Those that are battling neuropathy have a few different tricks up their sleeves to help them feel better. Dana talks about a few of the tips and tricks she’s learned over the years, including how to combine different things to find the right treatment options.
Through the ColonTown community LiveWire, Dana has now turned her attention to helping others get in front of and better manage their neuropathy from cancer treatment.
Dana talks about the different types of cancer that have chemotherapy protocols that can cause neuropathy so people know what to look out for ahead of time.
Links mentioned in the show:Subscribe to the “WE Have Cancer” Podcast -
Follow WE Have Cancer on Social Media:
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Join our private Facebook group
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Check out Luxe Bidets
Man Up To Cancer Podcast
ColonTown
ColonTown - LiveWire community
Dana's blog
Nerve glide exercise video
ASCO abstract: "Patient initiated approach to prevent oxaliplatin induced peripheral neuropathy: A social media experiment"
Know someone touched by cancer who has an inspiring story? Email Lee
Joana Breckner, an oral-cancer survivor and motivational speaker, joins Lee this week on the WE Have Cancer podcast. The pair talk about Joana’s battle with oral cancer and how the difficulties of her journey helped her discover her power.
After her dentist found some oral cancer symptoms during a routine checkup, Joana’s story truly began. Dealing with several major surgeries that included the loss of part of her tongue and some of her teeth, Joana had to learn how to eat and speak again. In the unlikeliness of scenarios, Joana found a love for motivational speaking and has since turned her story into a drive to help others find ways to better cope with the difficulties of their lives.
Guest biography:Joana Breckner is an oral cancer survivor who has turned her journey of difficulties into one of uplifting others. After being diagnosed with oral cancer and having several major surgeries that impacted how she could eat and talk, Joana is now using her story and outlook to help others discover their power.
Table of contents:Lee opens this week’s episode talking about the Colon Cancer Coalition’s events becoming virtual due to COVID-19.
Lee introduces Joana and talks a bit about her story as an oral cancer survivor.
With a speech impediment and a host of side effects from her battle with oral cancer, Joana is an unlikely motivational speaker. Yet, with resolve, that’s exactly what Joana is doing now.
Joana got her first speaking engagement at a charity event, being able to put a voice to her experience. With a rush of adrenaline and not a dry eye in the building, Joana began getting asked to talk at more and more events moving forward.
Joana talks about her oral cancer diagnosis. A routine checkup at the dentist found some benign white spots on her tongue that were the first oral cancer symptoms noticed. A few years later and she noticed something in her mouth which turned out to be a tumor.
Nearly all the way into remission, Joana’s cancer returned and was aggressive. Her doctor informed her that she needed to have a part of her tongue removed and major reconstructive surgery, including skin graphs.
A year after her first major surgery, Joana found a lump on the side of her neck. A biopsy later and Joana was back on the operating table to remove a tumor on her jugular vein.
After several surgeries and bouts with cancer, Joana is officially cancer-free for nearly seven years.
After major reconstructive surgery on her mouth, Joana had to learn how to eat and talk again. She talks about her treatment, including going to a nutritionist and learning how to eat solids again. Joana also discusses her difficulties with speech, including needing to get a new phone number she could actually say.
Joana talks about what power means to her and some of the things she harnesses to help put her in the right mindset to keep moving forward.
Joana found motivation to create her website and her idea of “discover your power” initially in a depressed woman in her support group. With that woman’s mental state in her mind, Joana wanted to spread hope instead of despair.
Lee and Joana discuss how her website and message have helped others. Using a friend who was feeling off during COVID-19 quarantine as an example, Joana talks about how she found her power through simple tasks like making the bed in the morning, cooking for her family, and watching her son play the piano.
After going through such an ordeal and now being cancer-free, Joana talks about how her journey has changed her. From not taking things for granted and worrying about small things, to living in and for the moment, Joana has grown as a person.
Links mentioned in the show:Joana’s website - Discover Your Power
Follow Joana on Instagram and Facebook
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Know someone touched by cancer who has an inspiring story? Email Lee
We revisit this episode which was originally published in July, 2019.
As a teenager growing up in Kansas, Becca Pendarvis spent her summers doing everything she could to get as tan as possible. Now a mother of a seventeen year-old daughter, she has spent the last eight years dealing with Stage 4 Melanoma skin cancer.
During our conversation we discussed:
Camp Kesem - https://campkesem.org/
Know the ABCDEs of Skin Cancer - https://www.skincancer.org/skin-cancer-information/melanoma/melanoma-warning-signs-and-images/do-you-know-your-abcdes
Follow Becca on Instagram - https://instagram.com/notanisworthdyingfor
Follow Becca on Twitter - https://twitter.com/beccapendarvis
WE Have Cancer LinksSubscribe to the show - https://pod.link/wehavecancerFollow WE Have Cancer on Social MediaLike our Facebook page - https://www.facebook.com/wehavecancershow/
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Know someone touched by cancer who has an inspiring story? Email LeeDr. Garrett Pohlman is a board-certified Urologist still actively practicing in a Midwest Urology group. Every day he is helping men in diagnosing and managing their prostate issues – including but not limited to robotic prostatectomy for men with prostate cancer. He is also the founder and host of the newly launched Prostate Health Podcast. With the podcast – he is helping men and those who care for them better educate themselves regarding prostate health, the conditions that affect the prostate, and the latest technology in managing these conditions. On a weekly basis he is chatting with experts, innovators, and leaders in the field of Urology – sharing useful information with the general public to improve their lives and increase their overall health.
Links Mentioned In the WE Have Cancer PodcastThe Prostate Health Podcast - https://www.prostatehealthpodcast.com/
Free guide: What to Expect From your Urologist appointment - https://www.prostatehealthacademy.com/opt-in
WE Have Cancer LinksSubscribe to the WE Have Cancer Podcast - https://pod.link/wehavecancerFollow WE Have Cancer on Social MediaLike our Facebook page - https://www.facebook.com/wehavecancershow/
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Know someone touched by cancer who has an inspiring story? Email Lee - [email protected]From the publisher's feed