WE Have Cancer

 
Seeking out a 2nd and 3rd opinion in her cancer treatment resulted in a dramatic improvement in Sasha Denisova's quality of life.

Sasha first appeared on this podcast in Episode 83 where she shared the struggle she faced getting doctors to take her colorectal cancer symptoms seriously.

During our latest conversation she discussed why she made the decision to forego treatment at the Mayo Clinic in Minnesota to seek treatment at Memorial Sloan Kettering in New York City. We also discussed:

• How she got the courage to challenge the initial treatment recommendations made by her doctor and why it's important for everyone to advocate for their best care.
• The importance 0f seeking out opinions from the top rated cancer facilities in the U.S.
• How she eased herself back into working out in the gym and why working with a guided fitness instructor was important.
• Why exercise is vital to her well-being and how most cancer patients can find an exercise routine that works for them.

Learn More About Sasha's Story

https://coloncancercoalition.org/2018/11/26/faces-of-blue-update-sasha-denisova/

WE Have Cancer Links Subscribe to the show - https://pod.link/wehavecancer Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee [email protected]

 

In the fall of 2013, Shawn Watson was diagnosed with Stage 4 Lymphoma. Shawn credits his faith and passion for exercise, specifically cycling for helping him recover from his diagnosis. During our conversation we discussed:

• How he went from barely being able to walk 300 steps in a day to cycling up to 100 miles.
• The role his faith has played in his recovery.
• His thoughts on how anyone can use exercise in their cancer recovery.
• Why he refers to himself as The world's okayest cyclist.
• Why it's important to him to build a community and help others.
• How he got into public speaking by reaching out to the manufacturer of one of the drugs used in his treatment.
• How he has dealt with people who "don't know what to say."
• The smartphone apps he uses to track his exercise and keep him motivated.

Links Mentioned In the Show Amgen Break Away From Cancer - https://www.breakawayfromcancer.com/ The Conqueror Events/My Virtual Mission - https://www.theconqueror.events/ HRV4 Training - https://www.hrv4training.com/ Connect With Shawn

On Instagram - https://instagram.com/worlds_okayest_cyclist

On Twitter - https://twitter.com/okayestcyclist

His blog - https://worldsokayestcyclist.wordpress.com/

 

WE Have Cancer Links Subscribe to the show - https://pod.link/wehavecancer Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee [email protected]

Susan Strong was first diagnosed with cancer shortly after graduating high school when she was diagnosed with Hodgkin's Lymphoma at the age of 17. Like many childhood cancer survivors she was unaware of the health complications she would face many years later, including heart-valve replacement surgery and a breast cancer diagnosis, as a result of her treatment for her Lymphoma.

During our conversation she shared:

• The emotional struggle she faced as a childhood cancer patient.
• How she coped with both a heart-valve replacement and breast cancer diagnosis within a short time period.
• Why she decided to walk away from her career as a classroom teacher and pursue her passion.
• The advocacy and support work she's doing for cancer patients and survivors and her long-term goals.
• How post-traumatic stress disorder (PTSD) manifested itself and how she managed its effects.

Connect With Susan, Links Mentioned on the Show

Check out her blog - https://stronglifenow.wixsite.com/stronglifenow

The American Heart Association's profile on Susan - https://newsarchive.heart.org/strong-to-celebrate-her-valversary/

Follow Susan on Instagram - https://instagram.com/livinglifeafterlymphoma

Follow Susan on YouTube - https://www.youtube.com/playlist?list=PLBw9pWNLQth953VjT48qlnRGiZECCbjj9

Have Susan speak to your organization - https://speakerhub.com/speaker/susan-strong

National Cancer Institute, Cancer Screening - https://www.cancer.gov/about-cancer/screening/patient-screening-overview-pdq

TAVR (Transcatheter aortic valve replacement) - https://www.mayoclinic.org/tests-procedures/transcatheter-aortic-valve-replacement/about/pac-20384698

EMDR (Eye Movement Desensitization and Reprocessing) - https://www.emdr.com/what-is-emdr/

 

WE Have Cancer Links Subscribe to the show - https://pod.link/wehavecancer Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee [email protected]

Doug Dallmann leads a very active life despite his ostomy. That wasn't always the case; however. When he awoke from his surgery for stage 3 colorectal cancer in 2010 he was devastated to learn he was left with a permanent ostomy. He was "filled with anxiety, depression and uncertainty."

Adjusting to life as an ostomate took time, but within a few months he achieved his goal of completing a 100-mile century bike ride.

During our interview we covered:

• Why he wanted to take on the physical challenge of hiking the Pacific Crest Trail and the unique challenges doing so with an ostomy.
• The emotional challenge of accepting his ostomy and how he moved from "denial" to embracing his new life.
• Navigating the social and dating scene with an ostomy.
• Why he decided to compete in a body-building competition.
• What's next for him on his list of adventures.

Connect with Doug

His story featured on the Colon Cancer Coalition website: https://coloncancercoalition.org/2018/10/06/an-ostomy-life-unlimited/

On Instagram - https://instagram.com/pacnwtrekker

On Facebook - https://www.facebook.com/doug.dallmann

WE Have Cancer Links Subscribe to the show - https://pod.link/wehavecancer Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee [email protected]

The WE Have Cancer community mourns the passing this week of Chere Garcia. Chere was a guest on the podcast in 2016. You can listen to our conversation at https://wehavecancershow.com/026. May her memory serve as a blessing to her family, friends and all who loved her.

In this episode I had the pleasure of speaking to fellow colon cancer survivor and fellow podcaster Truitt Taylor. During our interview we discussed:

• The meaning behind "One Percent" and why he created the podcast.
• Why he believes it's important for people to tell their story.
• The importance of creating a legacy.
• How he came to be diagnosed at the age of 31.
• How cancer helped him revaluate his personal and professional priorities.
• His long-term goal for the One Percent Podcast.

Connect With the One Percent Podcast

Listen and subscribe to the One percent Podcast - https://itunes.apple.com/us/podcast/one-percent-podcast/id1435009129?mt=2

Email Truitt - [email protected]

Follow the One Percent Podcast on Instagram - https://instagram.com/onepercentpodcast

Follow One Percent Podcast on Twitter - https://twitter.com/1percentpodcast

Like One Percent Podcast on Facebook - https://www.facebook.com/onepercentpodcast/

Listen to Truitt's Interview With Lee - https://open.spotify.com/episode/1rr2Yi4O0WJSZgcjTrTooS

WE Have Cancer Links Subscribe to the show for free - https://pod.link/wehavecancer Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee [email protected]

The Dana-Farber Cancer Institute opened the doors to its new Young-Onset Colorectal Cancer Center this past week. In anticipation of this exciting news I interviewed Dr. Kimmie Ng, Founding Director, and young-onset survivor, Pat Beauregard.

During our interview we discussed:

• The goals of the Dana-Farber Young-Onset Colorectal Cancer and why it was created.
• How Pat came to be diagnosed with Young-Onset Colorectal Cancer at the age of 29
• The challenges in raising awareness around young-onset colorectal cancer and how it often leads to a late-stage diagnosis.
• The three main areas of focus of the center
• Where Pat currently is with his treatment

WE Have Cancer Links Subscribe to the show: Apple Podcast - https://itunes.apple.com/us/podcast/the-colon-cancer-podcast/id970806995?mt=2 Google Podcasts - https://www.google.com/podcasts?feed=aHR0cHM6Ly93ZWhhdmVjYW5jZXJzaG93LmxpYnN5bi5jb20vcnNz Spotify - https://open.spotify.com/show/798gZB3qGwUnpwopVV2Bxh?si=PIzyypykRauLKckji9LXsQ Stitcher - https://www.stitcher.com/s?fid=61770&refid=stpr Links Mentioned In the Show

Dana-Farber Young-Onset Colorectal Cancer Center - https://www.dana-farber.org/young-onset-colorectal-cancer-center/

Dr. Kimmie Ng - https://www.dana-farber.org/find-a-doctor/kimmie-ng/

Connect with Pat on Facebook - https://www.facebook.com/pat.beauregard.79

Follow Pat on Instagram - https://instagram.com/pbo15

Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee [email protected]

I

n our first episode supporting 2019 Colon Cancer Awareness Month, Carole Motycka talks about how advocacy and faith has helped her far outlive her doctor's initial prognosis.

During this interview we talked about:

• How a minor hiking accident led to her diagnosis of stage 4 colon cancer and Juvenile Polyposis Syndrome (JPS).
• Her doctors giving her a 6-11 month prognosis, three years ago.
• The treatment and support she received from the Cleveland Clinic.
• Why she needed a liver transplant after doctors finding No Evidence of Disease.
• How a liver donor was found and her relationship with this fellow church member.
• The role her faith played in her diagnosis, recovery and her life going forward.

Connect With Carole

Instagram: https://instagram.com/swtcareline

 

WE Have Cancer Links Subscribe to the show: Apple Podcast - https://itunes.apple.com/us/podcast/the-colon-cancer-podcast/id970806995?mt=2 Google Podcasts - https://www.google.com/podcasts?feed=aHR0cHM6Ly93ZWhhdmVjYW5jZXJzaG93LmxpYnN5bi5jb20vcnNz Spotify - https://open.spotify.com/show/798gZB3qGwUnpwopVV2Bxh?si=PIzyypykRauLKckji9LXsQ Stitcher - https://www.stitcher.com/s?fid=61770&refid=stpr Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee [email protected]

Host Lee Silverstein, shares surprising news and it's definitely not the surprise he was expecting.

 

WE Have Cancer Links Subscribe to the show: Apple Podcast - https://itunes.apple.com/us/podcast/the-colon-cancer-podcast/id970806995?mt=2 Google Podcasts - https://www.google.com/podcasts?feed=aHR0cHM6Ly93ZWhhdmVjYW5jZXJzaG93LmxpYnN5bi5jb20vcnNz Spotify - https://open.spotify.com/show/798gZB3qGwUnpwopVV2Bxh?si=PIzyypykRauLKckji9LXsQ Stitcher - https://www.stitcher.com/s?fid=61770&refid=stpr Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee [email protected]

Nicole Body has been surviving cancer through faith, love and passion for writing. A Stage 3 sarcoma survivor, Nicole chronicled her cancer experience through her blog; sparklysurvivor.com.

During our conversation we discussed:

• How she came to be diagnosed
• The importance of exercise and the role it plays in her cancer recovery
• Why presence and not taking things for granted is incredibly important to her
• Why she chose to leave social media during her treatment and focus on writing
• The important role her husband, Wes, has played in her life and her cancer experience
• The crucial role her faith plays in her life and in her recovery
• How she handles friends and family who "don't know what to say" when it comes to cancer
•  The poor relationship she had with food and how she overcame it and became more focused on nutrition

Connect with Nicole

Her blog - https://sparklysurvivor.com/

On Instagram - https://instagram.com/sparklysurvivor

On Twitter - https://twitter.com/sparklysurvivor

On Pinterest - https://pinterest.com/sparklysurvivor

On Facebook - https://www.facebook.com/SparklySurvivor/

WE Have Cancer Links Subscribe to the show: Apple Podcast - https://itunes.apple.com/us/podcast/the-colon-cancer-podcast/id970806995?mt=2 Google Podcasts - https://www.google.com/podcasts?feed=aHR0cHM6Ly93ZWhhdmVjYW5jZXJzaG93LmxpYnN5bi5jb20vcnNz Spotify - https://open.spotify.com/show/798gZB3qGwUnpwopVV2Bxh?si=PIzyypykRauLKckji9LXsQ Stitcher - https://www.stitcher.com/s?fid=61770&refid=stpr Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee [email protected]

 

 

 

Michele Longabaugh is a 9-year stage 4 cancer survivor. She was diagnosed in 2010 with anal cancer and has far exceeded her 3-year "expiration date," as she described it.

During our conversation we discussed:

• The challenging treatment she went through
• The stigma associated with anal cancer
• The long term side effects of her treatments and how she's managing them
• What she meant when she said "I wish they would have treated me like I was going to survive."
• Why she feels like she's now "living the dream" as a cancer survivor.
• The fact that many oncologists and surgeons fail to address the impact of cancer on the sexual function of cancer survivors and patients and how she'd like this to change.
• How she wishes patients would be offered "cancer rehab."
• How surviving cancer has changed her.

Links Mentioned In The Show

Interview with Dr. Sage Bolte - https://wehavecancershow.com/069

52 Shades of Blue - http://www.52shadesofblue.com

Michele's book If You're Not Laughing, You're Dying - http://www.52shadesofblue.com/her-book/#

Follow Michele

Her blog - http://ihavebuttwhat.tumblr.com

On Instagram - https://instagram.com/pollyannalife

On Twitter - https://twitter.com/crazyasscancer

WE Have Cancer Links Subscribe to the show: Apple Podcast- https://itunes.apple.com/us/podcast/the-colon-cancer-podcast/id970806995?mt=2 Google Podcasts - https://www.google.com/podcasts?feed=aHR0cHM6Ly93ZWhhdmVjYW5jZXJzaG93LmxpYnN5bi5jb20vcnNz Spotify- https://open.spotify.com/show/798gZB3qGwUnpwopVV2Bxh?si=PIzyypykRauLKckji9LXsQ Stitcher- https://www.stitcher.com/s?fid=61770&refid=stpr Follow WE Have Cancer on Social Media Like our Facebook page- https://www.facebook.com/wehavecancershow/ Join our private Facebook group- https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter- https://twitter.com/wehavecancerpod Follow us on Instagram- https://instagram.com/wehavecancerpod Follow us on LinkedIn- https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest Email Lee [email protected]