<p>A brief overview of the rare disease, Familial Adenomatous Polyposis, and Life's a Polyp.</p>
<p>This Episode was originally published to Life's a Polyp's Youtube in 2017.</p>

A brief overview of the rare disease, Familial Adenomatous Polyposis, and Life's a Polyp. This Episode was originally published to Life's a Polyp's Youtube in 2017.

What is Familial Adenomatous Polyposis and Life's a Polyp?

Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS) and uses her platform of Life's a Polyp (blog, vlog, and shop) focused on raising awareness about FAP, SBS, and patient empowerment. She started the NORD FAP Research Fund in 2015 and donates profits from Life's a Polyp Shop and her FAP Children's Book - Life's a Polyp with Zeke and Katie. 
Her FAP related surgeries (8 total) started at age 9. She's experienced life-threatening complications resulting in medical PTSD and lived with an ileostomy for 6 years before having it reversed.

Society & Culture

Personal Journals

Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS) and uses her platform of Life's a Polyp (blog, vlog, and shop) focused on raising awareness about FAP, SBS, and patient empowerment. She started the NORD FAP Research Fund in 2015 and donates profits from Life's a Polyp Shop and her FAP Children's Book - Life's a Polyp with Zeke and Katie. Her FAP related surgeries (8 total) started at age 9. She's experienced life-threatening complications resulting in medical PTSD and lived with an ileostomy for 6 years before having it reversed.

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What is Familial Adenomatous Polyposis and Life's a Polyp?

What is Familial Adenomatous Polyposis and Life's a Polyp?