@WomensResearch

Patient-oriented research is all about engaging patients, their caregivers, and families as active partners in the research process. By involving them, we ensure that studies focus on the priorities identified by patients themselves, leading to improved outcomes and better care.

In this episode, we have the privilege of speaking with some incredible individuals from the Endometriosis Patient Research Advisory Board. Joining us today are Edurne Lopez de Arbina, Jessica Sutherland, and Heather Noga. They are here to share their valuable insights and experiences in the world of patient-oriented research.

Resources:

Canadas Strategy for patient-oriented research

Patient Engagement in Research Scale (PEIRS) Workbook

Reflections on Patient Engagement by Patient Partners

Patient-oriented research pathways self-assessment readiness tool for researchers

In this episode, Nicole Prestley and Melissa Nelson chat with Brynn Lavery (Communications Coordinator, UBC Sexual Health Research) about ways that TikTok is changing the game for research communications.

Learn more about UBC Sexual Health Research

Check out UBC Sexual Health Research on TikTok

Tori Ford, Founder and Executive Director of Medical Herstory, talks with Nicole Prestley, Knowledge Translation Manager, and Melissa Nelson, Communications Coordinator, about the power of storytelling, lived expertise, and using social media to eliminate medical stigma.

Nicole Prestley, Knowledge Translation Manager, sits down with Dr. Astrid Christoffersen-Deb, AJ Murray, and Sarah Heng Hartse to talk about their collaboration and process for developing a video on miscarriage for patients and their partners.

Learn more about Sarah's work: https://sarahdrawsacrowd.com/ 

In this episode, Dr. Angela Kaida chats with Dr. Nikki Salmond and Dwayne Tucker, recipients of our 2021 Graduate and Fellowship Research Awards in Women's Health. 

Our 2022 competition is live, with applications due on September 19th, 2022! Learn more here: https://whri.org/our-services/graduate-and-fellowship-research-award-in-womens-health-grant-competition/ 

Connect with Angela, Nikki, and Dwayne on Twitter.

About the speakers:

Dr. Angela Kaida is a Co-Producer of the short film HIV Made Me Fabulous. She is a global health epidemiologist and Associate Professor at Simon Fraser University, where she holds a Canada Research Chair in Global Perspectives on HIV and Sexual and Reproductive Health. Her global research program centres on a rights-based, evidence-informed, and community-driven approach to sexual and reproductive health among women and youth living with and affected by HIV. She is a Principal Investigator of several community-based cohort studies in South Africa, Uganda, and Canada, including the CHIWOS study.

Dr. Nikki Salmond is a Postdoctoral Research Fellow in the laboratory of Dr Karla Williams in the Faculty of Pharmaceutical Sciences at the University of British Columbia. Dr Salmond’s research goal is to better understand breast cancer and how we can more effectively treat breast cancer to improve patient survival.

Dwayne Tucker (bio coming soon!)

In this episode, Candice Taguibao chats with Dr. Caroline Figueroa, Dr. Gina Ogilvie, and Dr. Roopan Gill about digital health, equity, and innovation. 

Mentioned in this episode:

About the speakers:

Candice Taguibao is the digital health research manager at the Women’s Health Research Institute. She is interested in the ways that digital technologies can be used responsibly to improve health outcomes and health system processes. Candice has a background in public health and has previously worked in academic and health tech spaces. Candice completed her B.Sc. from McGill University and her MPH at the Yale School of Public Health.

Dr. Roopan Gill is an obstetrician gynecologist with expertise in family planning and abortion care. She completed her training in Canada and holds a Masters in Public Health in Global Health from Harvard T.H. Chan School of Public Health. She has worked as an emergency obstetrician gynecologist in Nigeria and Yemen with MSF and most recently as their Women's Health Advisor supporting projects in countries such as Malawi, Chad and Pakistan.

She has previously worked with the World Health Organization (WHO) providing technical expertise to its Department of Sexual and Reproductive Health Research. She played a pivotal role in the WHO Essential Medicines List application to bring Mifepristone and the combination of Mifepristone and Misoprostol to its core list and was on the Evidence Review team for both their Medical Management of Abortion guidance and the recently launched Abortion Care guidelines. Roopan has published in peer-reviewed journals focussing on better understanding the challenges and needs of women and girls accessing reproductive and sexual healthcare needs. Most recently she was featured in Forbes as one of seven female founders committed to inclusivity and accessibility.

Caroline Figueroa, MD Ph.D., is a Psychiatry Resident at the University Medical Centre in Utrecht, and an affiliate researcher at UC Berkeley School of Social Welfare. She obtained her MD degree and Ph.D. degree at the University of Amsterdam in the Netherlands. Her Ph.D. research took place at the University of Amsterdam and at the University of Oxford, where she studied cognitive and neurobiological vulnerability factors for recurrence of depression in patients remitted from Major Depressive Disorder. Current research interest is on digital interventions for depression, with an emphasis on developing cutting-edge innovations that tailor to the needs of underserved

Gina Ogilvie, MD MSc FCFP DrPH, is a Tier 1 Canada Research Chair in Global Control of HPV related diseases and prevention, Professor at the University of British Columbia in the School of Population and Public Health, and Associate Director of the Women’s Health Research Institute.

Dr. Ogilvie is currently principal investigator on over $13-million in research grants and she has received funding from PHAC, CIHR, Michael Smith Foundation for Health Research, Canadian Foundation for Innovation and private foundations including BC Women’s Hospital Foundation among others.

Her research is focused on both the public health and clinical aspects of reproductive health, sexually transmitted infections, HPV screening and the HPV vaccine, and her findings have been highly influential in setting and directing health policy both in Canada and globally.

HIV Made Me Fabulous is a short film produced through the Faculty of Health Sciences at Simon Fraser University. This episode explores the collaboration and journey that led to this incredible piece of arts-based knowledge translation.

Before listening, we encourage you to view the film at https://www.lifeandlovewithhiv.ca/film. 

The resources mentioned in this episode can all be accessed on the Life and Love with HIV website.

About the speakers

Dr. Angela Kaida is a Co-Producer of the short film HIV Made Me Fabulous. She is a global health epidemiologist and Associate Professor at Simon Fraser University, where she holds a Canada Research Chair in Global Perspectives on HIV and Sexual and Reproductive Health. Her global research program centres on a rights-based, evidence-informed, and community-driven approach to sexual and reproductive health among women and youth living with and affected by HIV. She is a Principal Investigator of several community-based cohort studies in South Africa, Uganda, and Canada, including the CHIWOS study.

Juno Roche is the Writer and Narrator of HIV Made Me Fabulous. She is a writer and campaigner whose work around class, gender, sexuality and trans lives has been funded by the likes of The Paul Hamlyn Foundation and described as 'provocative and innovative'. Juno studied Fine Art and Philosophy at Brighton and English Literature at Sussex, and writes for a wide range of publications including Bitch Magazine, Dazed, Vice, Broadly, Cosmopolitan, The i, The Independent, i-D, The Tate Magazine and Refinery29. Her first three books, Queer Sex, Trans Power and Gender Explorers were published by Jessica Kingsley Publishers. Her memoir, A Working-Class Family Ages Badly, published by Dialogue Books has recently been released.

Edmond Kilpatrick is the Director and Producer of HIV Made Me Fabulous. He has held a professional dance career for over twenty years. His performing career is highlighted by nine years as a featured principle dancer at Ballet BC. Edmond’s career has transitioned from dance performance to film and arts for social change facilitation. He is a graduate of Simon Fraser University.

Azra Bhanji is a recent Master of Public Health graduate from Simon Fraser University. She is currently the research co-ordinator for the short film HIV Made Me Fabulous. Azra also co-ordinates the Life and Love with HIV digital storytelling platform that shares experiences, disseminates scientific evidence and offers support for health and wellbeing among women living with HIV. She also has experience planning, organizing and implementing HIV and youth related programming in Kenya.

This episode features audio titled Borough by Blue Dot Sessions.

In honour of World Maternal Mental Health day, Dr. Kathryn Dewar spoke with Dr. Catriona Hippman and Claire Lawrence about their research and reproductive mental health.

Links: 

Connect with Dr. Hippman:

Keep up to date with the SUPPORT study:

BC Women’s Health Foundation is currently investing in reproductive mental health research and programming through their $4.5 million Reproductive Mental Health Campaign.  Funds raised through the campaign will support world-class research conducted by the Reproductive Mental Health Program at BC Women’s Hospital + Health Centre, helping women across the province better navigate their mental health before, during, and after pregnancy.

This episode features audio titled Borough by Blue Dot Sessions.

Melissa Nelson sits down with Nicole Keay and Stephanie Lam, co-hosts of the Gynecologic Oncology Sharing Hub (or GOSH) podcast to discuss their podcasting journey, the power of storytelling, and patient engagement.

GOSH episodes mentioned:

Season 2 Episode 7: A Chinese Perspective - Hereditary Cancers, Genetic Testing and Language Accessibility ​

Season 2 Episode 3: Gender Diversity in Gynecologic Cancer

Season 2 Episode 8: A New Gynecologic Cancer Survivorship Clinic in BC

Season 1 Episode 8: On Cancer Survivorship, Sexual Health and Mindfulness

Listen to the GOSH podcast: https://www.buzzsprout.com/1387837

Keep up with the Gynecologic Cancer Initiative:

This episode features audio titled Borough by Blue Dot Sessions.

Dr. Angela Kaida sits down with Dr. Jennifer Gardy to discuss her journey, from research with the BC Centre for Disease Control, to her path to television, to her current position with the Bill & Melinda Gates Foundation, and what it means to think about local research in a global context.

RESOURCES MENTIONED: 

Gender Equality Toolbox

This episode features audio titled Borough by Blue Dot Sessions.