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Working With FND : Tiarnes experience : The FND PODCAST
In this heartfelt episode of The FND Podcast, Detty welcomes back the inspiring Tiarne, who bravely shares her personal journey of returning to work while living with Functional Neurological Disorder (FND). From the early days of navigating symptoms and mobility aids to finding the balance between part-time work and self-care, Tiarne opens up about the realities, challenges, and victories of employment with a chronic condition.
Whether you’re considering re-entering the workforce, looking into volunteering, or simply curious about how others manage FND in the workplace — this conversation is filled with honesty, insight, and encouragement. Tiarne reminds us that pacing, self-awareness, and finding supportive environments can make all the difference.
We also talked about
– Flexible working arrangements
– Managing symptoms on the job
– Advocating for your needs
– What really matters when you’re living with FND
– The power of purpose and doing what you love
A huge thank you to Tiarne for being so open and sharing her lived experience working with FND
Don’t forget to check out the show notes for helpful resources and past episodes, including Tiarne’s My FND Reality and our insightful chat with Katherine Gill from FND Australia Support Services on returning to work.
As always — stay safe, love hard, and peace. See you on the flip side
To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone. Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes. click here to listen to this episode
To listen to Tiarnes FND Journey and her FND REALITY episode CLICK HERE
This Episodes notes:
Job Access : the guide to disability employment : click here for more details
Disability support services Australia in Victoria click here for more details
Employment programs: disability *Aus government.
Returning back to work presentation on FND Australia Support Services Channel : Click here for more details
Transitioning from school to work with a disability: click here for more details
If you feel like you would like to Volunteer in Australia : click here for more details
Caitlins story with FND and work :
If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more details
Note: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that I've found so far however there is more out there :
For USA from what I could see : Job Training and programs for people with a disability
Americans with Disability Act : protecting people with disabilities from discrimination
Office for disability employment policy click here
For Canada: Canadian Association for Supported Employment click here
Canada employment Strategy for Canadians with disabilities click here
For England: Employment disability rights click here:
Careers and work for disabled people from Disability rights UK click here
Ability Net : Information about Disability and Employment
Music used in this Podcast is from Soundstripe : licensed for use
Lets be three by Sam Marsh
Just like me by Thruline
Light the way by Ian Kelosky
Map zoom out
Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.
FND AUSTRALIAN SUPPORT SERVICES :https://fndaus.org.au/fnd-symptoms/
A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
IF you would like to support FND Australia Services and would like to have a look at some merchandise click here
FND ACTION : https://www.fndaction.org.uk
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
FND GUIDE. :https://neurosymptoms.org/en/
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
FND DIMENSIONS: http://fnddimensions.org/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit click here to have a look
RewiredOT (click here to check it out) is a compassionate, educational resource hub created by an Occupational Therapist Jason Kruzeman. It offers a unique blend of clinical knowledge and personal insight, focusing on nervous system regulation, sensory processing, and trauma-informed support for people living with FND and other complex conditions.
The website provides accessible guides, tools, and reflections that help people better understand their body’s responses, build safety into daily life, and work with—not against—their nervous system.
Rather than pushing through or "fixing" symptoms, RewiredOT encourages gentle curiosity, pacing, and self-kindness—a refreshing and validating approach for anyone navigating FND.
Whether you're newly diagnosed or looking to deepen your understanding, RewiredOT is a safe, thoughtful space that meets you where you are.https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
The FND Podcast song of the week:
U & I by Kolidescopes click to listen here
Just a really uplifting song
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
The published research Paper on FND by Haseel Bhatt
FND is not fake or Malingering
Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have.
View all episodes
By Odettecreates, Detty, Odette Placido
In this heartfelt episode of The FND Podcast, Detty welcomes back the inspiring Tiarne, who bravely shares her personal journey of returning to work while living with Functional Neurological Disorder (FND). From the early days of navigating symptoms and mobility aids to finding the balance between part-time work and self-care, Tiarne opens up about the realities, challenges, and victories of employment with a chronic condition.
Whether you’re considering re-entering the workforce, looking into volunteering, or simply curious about how others manage FND in the workplace — this conversation is filled with honesty, insight, and encouragement. Tiarne reminds us that pacing, self-awareness, and finding supportive environments can make all the difference.
We also talked about
– Flexible working arrangements
– Managing symptoms on the job
– Advocating for your needs
– What really matters when you’re living with FND
– The power of purpose and doing what you love
A huge thank you to Tiarne for being so open and sharing her lived experience working with FND
Don’t forget to check out the show notes for helpful resources and past episodes, including Tiarne’s My FND Reality and our insightful chat with Katherine Gill from FND Australia Support Services on returning to work.
As always — stay safe, love hard, and peace. See you on the flip side
To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone. Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes. click here to listen to this episode
To listen to Tiarnes FND Journey and her FND REALITY episode CLICK HERE
This Episodes notes:
Job Access : the guide to disability employment : click here for more details
Disability support services Australia in Victoria click here for more details
Employment programs: disability *Aus government.
Returning back to work presentation on FND Australia Support Services Channel : Click here for more details
Transitioning from school to work with a disability: click here for more details
If you feel like you would like to Volunteer in Australia : click here for more details
Caitlins story with FND and work :
If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more details
Note: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that I've found so far however there is more out there :
For USA from what I could see : Job Training and programs for people with a disability
Americans with Disability Act : protecting people with disabilities from discrimination
Office for disability employment policy click here
For Canada: Canadian Association for Supported Employment click here
Canada employment Strategy for Canadians with disabilities click here
For England: Employment disability rights click here:
Careers and work for disabled people from Disability rights UK click here
Ability Net : Information about Disability and Employment
Music used in this Podcast is from Soundstripe : licensed for use
Lets be three by Sam Marsh
Just like me by Thruline
Light the way by Ian Kelosky
Map zoom out
Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.
FND AUSTRALIAN SUPPORT SERVICES :https://fndaus.org.au/fnd-symptoms/
A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
IF you would like to support FND Australia Services and would like to have a look at some merchandise click here
FND ACTION : https://www.fndaction.org.uk
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
FND GUIDE. :https://neurosymptoms.org/en/
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
FND DIMENSIONS: http://fnddimensions.org/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit click here to have a look
RewiredOT (click here to check it out) is a compassionate, educational resource hub created by an Occupational Therapist Jason Kruzeman. It offers a unique blend of clinical knowledge and personal insight, focusing on nervous system regulation, sensory processing, and trauma-informed support for people living with FND and other complex conditions.
The website provides accessible guides, tools, and reflections that help people better understand their body’s responses, build safety into daily life, and work with—not against—their nervous system.
Rather than pushing through or "fixing" symptoms, RewiredOT encourages gentle curiosity, pacing, and self-kindness—a refreshing and validating approach for anyone navigating FND.
Whether you're newly diagnosed or looking to deepen your understanding, RewiredOT is a safe, thoughtful space that meets you where you are.https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
The FND Podcast song of the week:
U & I by Kolidescopes click to listen here
Just a really uplifting song
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
The published research Paper on FND by Haseel Bhatt
FND is not fake or Malingering
Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have.