Chris Macleod is a Candian with CF who was one of Canada's first patients on Kalydeco ten years ago. He’s now 52 and has advocated for CF for many years. He’s also written a book called Beating The Odds: 11 Lessons to Overcome a Health Crisis and Lead a Resilient Life.

We talk about his life with CF, his career as a Lawyer and how that's helped him advocate for the Canadian CF community and how his book can help us all become more resilient.

You can follow Chris on Instagram as @chrismacleodbto

Get your hands on a copy of Chris's book at https://www.beatingtheodds.ca/

Welcome to Season 2 or What the CF! We're so happy to be back and ready to share lots of CF stories about treatment with you.If you're part of the CF community and not aware of Trikafta (or Kraftrio) then you've been living under a rock! This 'miracle' treatment isn't yet funded in New Zealand and we want that to change ASAP. 

Edward Lee is a 39-year-old PWCF living in Wellington. He self funds Trikafta and is celebrating two years on this life-changing drug. I wanted to speak to Ed to find out more about his life with CF and his journey to getting Trikafta. Many of you will know him from various media interviews he's given and his involvement in campaigning to get Trikafta for Kiwis. Ed was very open, knowledgeable and positive about the future so I hope you enjoy getting to know him better in this podcast.

You can follow Ed on Instagram as @kiwi_cf_warrior

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Eddie, Henry and David are all parents of little CFers. Ian chats to these three dads about diagnosis, telling friends and family, and what NOT to say to a CF parent. Thanks again to our guests for sharing so candidly and we know it's going to help others in the community. For further info visit whatthecf.com.

Trigger warning  - this podcast discusses pregnancy termination following pre-natal testing.

Ingrid chats with Genetic Counsellor Kelly Sullivan about all things genes when it comes to getting the Cystic Fibrosis initial diagnosis. Kelly explains what causes CF, what happens in your genetic counsellor meeting, and the options for couples wanting more children.

Check out our blog for further reading as discussed in the podcast.

Sophie, Kayla and Jessica are all mums of little CFers born during the pandemic. Ingrid chats to these mums about diagnosis, telling friends and family and what NOT to say to a CF parent.

Ingrid chats to Sue Lovelock, Southern Fieldworker for Cystic Fibrosis New Zealand. 

Sue has worked as a fieldworker for 14 years and knows all too well the pain and fear of diagnosis, the heartbreak of the disease and the positive and happy lives that people with CF can live in NZ. Thanks so much to Sue for such a great chat. Find out more about CFNZ here https://www.cfnz.org.nz/ to access any of the resources we discuss in this podcast.

We discuss the journey to diagnosis for our son Orson at six months old. From pregnancy and birth, tests, diagnosis and processing the news.

It's emotionally a highly charged episode but we end up laughing quite a bit which we're pleased to be able to do together through this crazy journey.

We'd love to hear from you. You can leave a voice message for us here  - comments, stories or questions. And, feel free to comment, like, share and subscribe on any other channels. If you'd prefer to email us please contact [email protected]

Check out the trailer for the very first episode of What The CF! A Cystic Fibrosis Podcast - COMING SOON -  episode 1, we chat about our journey to getting a diagnosis for our son -  just prior to the first lockdown in March 2020.