YOPN’s Living Well Starts Here

By YOPN

What's YOPN’s Living Well Starts Here about?

Join us as we chat with members of the YOPD community Disease, care partners and experts in the YOPD field to learn more about this neurodegenerative disease and those living with it.

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YOPN’s Living Well Starts Here episodes:

06.12.2024
Thinkin' 'bout drinkin'
06.12.2024
Thinkin' 'bout Drinkin' ( Audio only )
05.31.2024
She Said...
05.31.2024
SheSaid... (audio only)
05.30.2024
He Said...
05.30.2024
He Said.... (audio only)
05.14.2024
Mental Health
05.14.2024
Mental Health (Audio Only)
04.30.2024
Creativity
04.30.2024
Creativity (Audio only)
04.14.2024
Getting to know you (Audio only)
04.09.2024
Getting to know you.
12.01.2023
Perspective of a carepartner - George Ackerman
The YOPN Podcast is thrilled to welcome George Ackerman to our community. George a PhD, is a dedicated advocate for the Parkinson's Disease (PD) community. Following the passing of his mother, Sharon Riff Ackerman, on January 1, 2020, due to...
11.28.2023
Rhythms of Resilience: Navigating Life’s Challenges with Carl Beech
The Young Onset Parkinson's Network is delighted to introduce Carl Beech, a prominent figure on TikTok and the Chief Executive Officer of Spotlight YOPD, a non-profit organization in the UK. In addition to his role as CEO at Edge Ministries,...
11.13.2023
Unveiling Resilience: Journeys Beyond Challenges
The Young Onset Parkinson's Network is privileged to present a touching interview with Gavin Mogan. Imagine the shift from being the one in need of care to becoming the caregiver, all the while maintaining a unwavering focus on the positive...
11.02.2023
Unlocking Minds: Conversations That Inspire with Anna Grill
Anna Grill is the driving force behind the Young Onset Parkinson’s Network (YOPN). She was diagnosed with Young Onset Parkinson’s Disease (YOPD) at 38 while excelling in her career and juggling family life. After keeping her condition a secret for...
10.24.2023
Unstoppable Stories: Susan Scarlett and BJ Bement on Life, Love, and Triumph Over Parkinson’s
This episode contains candid discussions about suicide and may not be suitable for younger audiences. The YOPN Podcast proudly features captivating interviews with two remarkable individuals, Susan Scarlett and BJ Bement. Susan Scarlett's love for life shines through every facet of her...
10.13.2023
Esther’s Story Part 2
In the second part of the Esther Labib-Kiyarash interview, she delves into the topic of hospital and emergency care for Parkinson's disease patients, drawing from her extensive experience as a Certified Professional of Healthcare Quality, where she has worked in...
10.04.2023
Esther’s Story: Part One of Two
Welcome to the YOPN Podcast. Our guest today is Esther Labib-Kiyarash, a Certified Professional of Healthcare Quality with extensive experience in both hospital and ambulatory quality management. Esther's specialties encompass regulatory compliance, all facets of Quality Improvement, Lean methodology, and...
09.20.2023
Thrive with YOPD: YOPD-CON 2023 Unveiled!
Welcome to the YOPN Podcast! Today's guest is Jennifer Gillick, Program Manager of APDA Northwest Chapter, in this episode she unveils YOPD-CON 2023: Your Gateway to Thriving with Young Onset Parkinson's Disease! Join us at the Four Points by Sheraton...
09.12.2023
The Parkinson’s Prison and the Hero’s Journey to Escape
Today's episode holds a deeply personal significance for me. You see, I grapple with cognitive issues that make it challenging for me to articulate my thoughts clearly and concisely. It's essential to note that these issues aren't indicative of dementia...
09.05.2023
A Journey through Parkinson’s, Pictures and Love in :”Personality Crash”
The YOPN Podcast is proud to present award winning photographer Safi Alia Shabaik. Check out her project Personality Crash: "Personality Crash" is a touching project documenting the author's father's journey through Parkinson's Disease, dementia, and Sundowners Syndrome. Initiated in 2013 to bring...
08.22.2023
What I Didn’t Say - A Journey Through Parkinson’s by Matthew Moore
The YOPN Podcast is excited to feature Matthew Moore, an actor, director, writer, and teacher who was diagnosed with Young Onset Parkinson's in 2019. Moore turned his diagnosis into an opportunity to raise awareness by writing the play 'What I...
08.14.2023
FIVE YEARS LATER - ALLISON TOPPERWEIN
Get ready to embark on a captivating journey with the Young Onset Parkinson's Network in our podcast series, “5 Years Later” Join us as we reconnect with guests we spoke to over five years ago, who bravely share their experiences...
08.01.2023
FIVE YEARS LATER - JIMMY CHOI
Get ready to embark on a captivating journey with the Young Onset Parkinson's Network in our podcast series, “5 Years Later” Join us as we reconnect with guests we spoke to over five years ago, who bravely share their experiences...
07.14.2023
Parkinson’s, Bats and Crop Protection. Unveiling Nature’s Solution to Pesticides.
Welcome to the YOPN Podcast, where we are thrilled to bring you a special guest, Dr. Merlin Tuttle. Known as "Batman," Dr. Tuttle has dedicated over six decades to the study of bats. As seen on the Joe Rogan Experience...
06.28.2023
Smiling through Parkinson’s: Unmasking the Journey
The Young Onset Parkinson's Network (YOPN) Podcast is thrilled to present Lucy Jung, the CEO of Charco Neurotech (https://charconeurotech.com/) Charco Neurotech is a medical technology company focused on improving the quality of life for individuals with Parkinson's disease. Their mission is...
06.26.2023
Voices Unveiled: Breaking Barriers with Speech Accessibility
The YOPN Podcast is proud to present Mark Hasagawa-Johnson and Clarion Mendes as we discuss the Speech Accessibility Project The Speech Accessibility Project aims to collect diverse speech samples to improve the representation of speech patterns in machine learning models. UIUC...
06.21.2023
Unshakable Journeys: Parkinson’s Pioneers Across America
The Young Onset Parkinson's Network (YOPN) Podcast, poudly presents Scott Rider. Scott Rider and his long-time friend Jim Morgan, both diagnosed with Parkinson's disease 17 years ago, embarked on a remarkable journey across America. During their travels, they met numerous inspiring...
06.13.2023
Brushes of Resilience: Unveiling the Power of Art in Healthcare
The YOPN Podcast proudly presents an interview with patient advocate Ted Meyer! Ted Meyer, an artist, curator, and patient advocate, uses art to find inspiration in the adversity of the patient experience. In his 2016 TEDMED Talk, he shares how art...
06.01.2023
Passion, Purpose, and Parkinson’s: Overcoming Challenges in the Creative World
Passion, Purpose, and Parkinson's: Overcoming Challenges in the Creative World Discover the inspiring short documentary "Passion, Purpose, and Parkinson's," crafted by the talented 23-year-old director, Olz McCoy. Created in honor of World Parkinson's Month, this remarkable film shares the incredible stories...
05.31.2023
Climbing the Heights: Ian O’Brien’s Parkinson’s Journey of Triumph
This week on the Young Onset Parkinson’s Network podcast (YOPN PODCAST) Meet Ian O'Brien, a determined 43-year-old father who refuses to let Parkinson's Disease hinder his enjoyment of life. Ian is an unwavering advocate of pushing his limits and embracing challenges....
05.15.2023
Overcoming Adversity: Antonia Kotsiros Journey of Healing, Hope and Inspiration
Today's YOPN podcast episode features Antonia Kotsiros, who has worked in the music industry and operated businesses in the coffee and holiday accommodation industries. Antonia's life took a dramatic turn when she was diagnosed with Parkinson's disease, leading to the...
05.08.2023
Rising to the Challenge: Al Latullippe’s Journey from Groupon to Rock Steady Boxing Pioneer
The YOPN Podcast features Albert Latullippe, who shares his inspiring journey of how a chance encounter with Greg Geheb at his gym, with an expired groupon, led him to start the first Rock Steady Boxing Program in New England. Al...
05.02.2023
Parkinson’s Advocate on a Mission: Jon Pawelkop’s Journey to Rock Steady Boxing”
Jon Pawelkop, an Ambassador for the World Parkinson’s Congress 2023, was recently featured on the YOPN podcast. He promotes Rock Steady Boxing (RSB) and encourages others to "Make It Mean Something" (MIMS). In May 2018, Jon started a personal challenge...
04.25.2023
Empowering Parkinson’s Caregivers: Insights from a Trauma-Informed Healthcare Professional
The YOPN Podcast (https://yopnetwork.org/) proudly presents Terri Pease Ph.D. Dr. Pease released a book entitled Love, Dignity and Parkinson's: from Care Partner to Caregiver (https://www.amazon.com/Love-Dignity-Parkinsons-Partner-Caregiver/dp/B0BK311HKF) If your spouse or loved one has been diagnosed with Parkinson's Disease, you may be feeling overwhelmed...
04.17.2023
Shining a Light Through Parkinson’s: The Inspiring Story of Miguel Sanchez in the Entertainment Industry
Welcome to this week's episode of YOPN podcast! Today, we have the privilege of sharing the inspiring story of Miguel Sanchez, a skilled professional who worked as a lead on lighting sets for a plethora of movies and television shows,...
04.10.2023
Driving Parkinson’s Education: Meet the Content Creator Making a Difference!
Get ready for an inspiring episode of the Young Onset Parkinson's Network podcast! Today, we're thrilled to introduce you to Mel Dizon, a content creator and Parkinson's disease advocate who's changing lives through education. From driving the Davis Phinney Foundation's...
03.28.2023
From Principal to Parkinson’s Advocate: A.C. Woolnough’s Inspiring Journey
This weeks "Living Well Starts Here" podcast features A.C. Woolnough, a retired school principal diagnosed with Parkinson's Disease in 2015. A.C. has become an active writer, speaker, and advocate within the Parkinson's community, participating in research projects and presenting at...
03.22.2023
Cracking the Code of Neurodegeneration: A Conversation with Dr. Jennifer Johnston
Dr. Jennifer Johnston has spent 20 years studying neurodegenerative disease, including the discovery of aggresomes and their link to neurodegeneration. She is now the Co-Founder/CEO of NysnoBio, a biotech company focused on modulating the parkin enzyme pathway for unmet medical...
03.13.2023
Disability Insurance Nightmare: One Man’s Struggle with the system
Please note the information on this episode is in process of being fact checked. Welcome to the YOPN podcast! In today's episode, we'll be discussing Tim Brandt's frustrating experience with long-term disability insurance. Many of us rely on insurance to protect...
03.08.2023
Shaking Up Awareness: High School Students Take On Parkinson’s Disease
A group of high school students are spreading awareness about Parkinson's Disease for their HOSA project, which is a worldwide club for future health professionals. Their idea came from one of the group member's uncle who has suffered from the...
03.07.2023
From Trauma to Triumph: Melissa’s Inspiring Story on YOPN Podcast
Hey everyone!
02.27.2023
NoSilverBullett4PD: Michel Planquart and Mark Limebear become fast friends and start an international support group
Welcome to this week's episode of the "YOPN Podcast" where we explore the incredible power of human connection and the extraordinary things that can happen when people come together. Today, we bring you the inspiring story of Michel Planquart and Mark...
02.27.2023
Non runner Kamal Julka trains for 5 weeks and completes the NYC Marathon
Welcome to this week's episode of "The YOPN: Living well starts here Podcast", where we share the inspiring stories of people who have overcome incredible challenges and achieved what was thought to be impossible. Today, we bring you the incredible...
02.21.2023
Koren Snow takes on Parkinson’s through exercise and attitude
Hello and welcome to today's podcast! Today, we have the privilege of introducing you to an incredible individual who embodies resilience, determination, and inspiration. Despite facing the challenges of Parkinson's disease, she has continued to shine and uplift those around...
02.21.2023
Kat and Ken Hill sell everything to travel the country in an airstream
Ladies and gentlemen, welcome to today's episode of our podcast. Today, we have the privilege of speaking with Kat Hill, a Davis Phinney Foundation YOPD Council Leader, who was diagnosed with Parkinson's disease in her mid-40s. Kat's journey with Parkinson's...
02.13.2023
Mountain Climber trainer Molly Cupka (Donelan) discusses the benefits of indoor Mountain Climbing for Parkinson’s
Welcome back to the YOPN podcast! Sponsored by the Young Onset Parkinson's Network (YOPNetwork.org), and radioparkies.com. This episode features Molly Cupka (Donelan), who's passionate about rock climbing and how it can help people living with Parkinson's disease. Molly's movement, Upend...
02.13.2023
The story of Dianne Bramble ”Genes: The Story of an Accidental Superhero”
Join the Young Onset Parkinson's Network (YOPNetwork.org) in celebrating Dianne Goebel Bramble's inspiring story! Dianne's small business, Mind and Body Wellness for You, offers coaching and personal training (mindandbodywellnessforyou.com) . She also sells her beautiful Parkinson's-inspired paintings on Facebook and...
02.07.2023
Tati Mayorga Wolfe discovers ayurvedic holistic medicine
Tati Mayorga Wolfe was diagnosed with Young Onset Parkinson's Disease (YOPD) at 31. Now 35 She has fought back from deep depression, and discovered ayurvedic holistic medicine Ayurveda. While the word may be unknown to many, this holistic approach to medicine...

What's YOPN’s Living Well Starts Here about?

Download our free app to listen on your phone

YOPN’s Living Well Starts Here episodes:

Thinkin' 'bout drinkin'

Thinkin' 'bout Drinkin' ( Audio only )

She Said...

SheSaid... (audio only)

He Said...

He Said.... (audio only)

Mental Health

Mental Health (Audio Only)

Creativity

Creativity (Audio only)

Getting to know you (Audio only)

Getting to know you.

Perspective of a carepartner - George Ackerman

Rhythms of Resilience: Navigating Life’s Challenges with Carl Beech

Unveiling Resilience: Journeys Beyond Challenges

Unlocking Minds: Conversations That Inspire with Anna Grill

Unstoppable Stories: Susan Scarlett and BJ Bement on Life, Love, and Triumph Over Parkinson’s

Esther’s Story Part 2

Esther’s Story: Part One of Two

Thrive with YOPD: YOPD-CON 2023 Unveiled!

The Parkinson’s Prison and the Hero’s Journey to Escape

A Journey through Parkinson’s, Pictures and Love in :”Personality Crash”

What I Didn’t Say - A Journey Through Parkinson’s by Matthew Moore

FIVE YEARS LATER - ALLISON TOPPERWEIN

FIVE YEARS LATER - JIMMY CHOI

Parkinson’s, Bats and Crop Protection. Unveiling Nature’s Solution to Pesticides.

Smiling through Parkinson’s: Unmasking the Journey

Voices Unveiled: Breaking Barriers with Speech Accessibility

Unshakable Journeys: Parkinson’s Pioneers Across America

Brushes of Resilience: Unveiling the Power of Art in Healthcare

Passion, Purpose, and Parkinson’s: Overcoming Challenges in the Creative World

Climbing the Heights: Ian O’Brien’s Parkinson’s Journey of Triumph

Overcoming Adversity: Antonia Kotsiros Journey of Healing, Hope and Inspiration

Rising to the Challenge: Al Latullippe’s Journey from Groupon to Rock Steady Boxing Pioneer

Parkinson’s Advocate on a Mission: Jon Pawelkop’s Journey to Rock Steady Boxing”

Empowering Parkinson’s Caregivers: Insights from a Trauma-Informed Healthcare Professional

Shining a Light Through Parkinson’s: The Inspiring Story of Miguel Sanchez in the Entertainment Industry

Driving Parkinson’s Education: Meet the Content Creator Making a Difference!

From Principal to Parkinson’s Advocate: A.C. Woolnough’s Inspiring Journey

Cracking the Code of Neurodegeneration: A Conversation with Dr. Jennifer Johnston

Disability Insurance Nightmare: One Man’s Struggle with the system

Shaking Up Awareness: High School Students Take On Parkinson’s Disease

From Trauma to Triumph: Melissa’s Inspiring Story on YOPN Podcast

NoSilverBullett4PD: Michel Planquart and Mark Limebear become fast friends and start an international support group

Non runner Kamal Julka trains for 5 weeks and completes the NYC Marathon

Koren Snow takes on Parkinson’s through exercise and attitude

Kat and Ken Hill sell everything to travel the country in an airstream

Mountain Climber trainer Molly Cupka (Donelan) discusses the benefits of indoor Mountain Climbing for Parkinson’s

The story of Dianne Bramble ”Genes: The Story of an Accidental Superhero”

Tati Mayorga Wolfe discovers ayurvedic holistic medicine