Zebra Talks: Living Your Best Bendy Life

Zebra Talks: Living Your Best Bendy Life

By Dr Libby HinsleyHealth & Fitness
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Zebra Talks: Living Your Best Bendy Life episodes

  • Nutrition Foundations for Hypermobility with Jennifer Parkinson
    Host Dr. Libby Hinsley welcomes Jennifer Parkinson, a certified functional nutrition practitioner and founder of EDS Nutritionist, who supports people with Ehlers-Danlos Syndrome, MCAS, and POTS.
     
    Jennifer shares her long journey from early joint pain, repeated shoulder surgeries, gut and gynecologic surgeries, dizziness and brain fog, and eventual EDS diagnosis after years of dismissal, to pursuing functional nutrition training. She explains differences among nutrition professionals, emphasizing individualized, root-cause approaches rather than one-size-fits-all diets.
     
    Key themes include stabilizing blood sugar, assessing mineral patterns, histamine “bucket” concepts, and iron dysregulation. She also highlights how mineral balance can impact pain, muscle-building, and subluxations alongside physical therapy.
     
    00:00 Welcome to Zebra Talks
    00:35 Meet Jennifer Parkinson
    01:50 Early Symptoms and Surgeries
    03:50 Finally Naming EDS
    06:09 Finding Functional Nutrition
    09:35 Credentials and Training Paths
    11:10 Nutrition Is Individual
    12:48 Minerals Explained
    15:04 Foundations Beyond Food
    16:22 Sensitive Bodies and Normal Labs
    17:55 Iron and Next Steps
    18:00 Iron Testing Pitfalls
    19:07 Iron Overload Clues
    20:16 Liver Link to Iron
    22:33 Liver Support Basics
    23:36 Castor Oil Packs
    24:46 Minerals and Blood Sugar
    27:30 Protein and Meal Timing
    29:22 Signs of Dysregulated Glucose
    30:20 Minerals for Joint Stability
    33:46 Whole Body Approach
    34:17 Where to Find Jennifer
    34:48 Final Wrap Up
    36 min
  • Scoliosis and Hypermobility: Symptoms, Treatment, and Moving Without Fear with Dr. Laura Glazebrook
    Host Dr. Libby Hinsley welcomes physical therapist Dr. Laura Glazebrook to discuss scoliosis, especially its overlap with hypermobility. Laura shares her own history of rapidly progressing scoliosis, undergoing a spinal fusion at age 11, and later realizing she likely falls on the hypermobility spectrum.
     
    They review scoliosis prevalence in the general population, current thinking on adolescent development, and why Cobb angle doesn’t reliably predict pain. Glazebrook describes typical signs and symptoms and outlines scoliosis-specific exercise approaches like the Schroth method using breath, pressure management, and progressive stabilization. They discuss surgical thresholds (often >46°), evolving views on quality of life at higher angles, and counter fear-based messaging by emphasizing safe, individualized movement and strength. 
     
    00:00 Welcome to Zebra Talks
    00:35 Meet Dr. Laura Glazebrook
    02:04 Laura’s Scoliosis Story
    04:12 Fusion Surgery Aftermath
    04:56 How Common Is Scoliosis
    06:14 Why Scoliosis Develops
    07:58 Degrees vs Symptoms
    09:46 Common Signs and Clues
    12:02 Schroth Method Basics
    14:48 What Improves With Therapy
    16:17 When Surgery Is Considered
    19:05 Fusion and Tethering Options
    19:52 Hypermobility Overlap Patterns
    22:05 Movement Fear and Confidence
    25:08 Activity Myths Debunked
    27:19 Where to Find Dr. Glazebrook
    28:11 Final Thanks and Goodbye
    29 min
  • Bendy Menopause: Impacts of Hypermobility on Menopause with Vanessa Weiland
    Dr. Libby Hinsley welcomes menopause specialist and nurse practitioner Vanessa Weiland, founder of Phases Clinic and creator of Bendy Menopause, who also has hypermobile EDS and MCAS.
     
    Their conversation covers why hypermobility symptoms can shift with hormonal changes, how perimenopause is driven by fluctuating ovarian hormones, and why blood tests are often unhelpful in perimenopause except in specific situations. They discuss HRT in perimenopause, contraception considerations, benefits and risks of modern hormone therapy (including heart and bone health), and the possible role of testosterone. Vanessa emphasizes the importance of individualized symptom-based care, and notes nuances like MCAS sensitivity and progesterone intolerance.
     
    00:00 Welcome to Zebra Talks
    00:35 Meet Vanessa Weiland
    01:16 Her Menopause Journey
    03:53 Discovering hEDS
    05:00 Hypermobility Meets Menopause
    07:25 Why Symptoms Shift
    10:35 Defining Perimenopause
    12:48 Do Hormone Tests Help
    14:26 HRT in Perimenopause
    15:56 Tracking and Advocacy Tips
    18:23 HRT Risks and Benefits
    21:38 Bones and Brain Fog
    24:58 Testosterone Talk
    28:25 Avoiding Misinformation
    33:36 Progesterone Intolerance
    35:15 Where to Find Vanessa
    36:02 Final Thanks and Wrap Up
    37 min
  • Abbey Phillipson on Visibility & Advocacy for Rare Types of EDS
    Host Dr. Libby Hinsley interviews Abbey Phillipson, a classical Ehlers-Danlos syndrome (EDS) advocate and Paralympic strength and conditioning coach at the University of Michigan. Abbey shares her experience with early signs, diagnosis via genetics (COL5A1), and serious complications of Classical EDS.
     
    She discusses why some rare EDS types may be diagnosed earlier yet still missed, de novo mutation rates, and definitions and prevalence of rare vs ultra-rare EDS types. Abbey describes founding the patient-led Collagen Advocacy Network to connect people with rare subtypes, critiques how growing EDS awareness can create misunderstanding of rare types, and proposes more nuanced naming to support individualized care amid anticipated 2026 criteria changes.
     
    She also shares a bit about her inspiring work in adaptive sports and disability-inclusive fitness.
     
    00:00 Welcome to Zebra Talks
    00:35 Meet Abbey Phillipson
    01:59 Classical EDS Diagnosis Story
    04:07 Symptoms and Complications
    05:55 When Rare Types Get Diagnosed
    07:46 De Novo Mutations Explained
    08:42 Rare vs Ultra Rare Prevalence
    11:51 Building a Rare Types Group
    13:21 Making Rare Real Together
    14:36 Awareness Boom and Erasure
    19:21 A More Nuanced Future
    22:54 Renaming and Reorganizing EDS
    26:34 Criteria Changes and 2026
    30:58 Collagen Advocacy Network
    32:08 Paralympic Coaching and Adaptive Sport
    34:34 Strength Training and Joyful Movement
    35:48 Final Thanks and Goodbye
    37 min
  • Pelvic Floor Dysfunction & Hypermobility with Dr. Amy Stein
    Host Dr. Libby Hinsley interviews pelvic floor physical therapist and author Dr. Amy Stein, founder of Beyond Basics Physical Therapy. Stein discusses the strong overlap she sees between hypermobility and pelvic floor dysfunction (estimating about 70% of her patients), including patterns of pelvic floor gripping used for stability, pelvic pain, prolapse, hernias, constipation/IBS symptoms, possible pelvic congestion, and bladder, bowel, and sexual dysfunction across all genders.
     
    She emphasizes a multimodal approach: calming tissues, building stability gradually with isometrics and deep core work, modifying exercise, and prioritizing nervous system regulation and mindfulness. Stein also addresses perimenopause/menopause and their effects on symptoms, tissue elasticity, muscle health, and the role of hormone therapy and topical creams. She describes her Wellness By Nature CBD products and advises seeking experienced pelvic floor PTs with thorough assessment.
     
    Highlights of this episode include:
     
    00:00 Welcome to Zebra Talks
    00:35 Meet Amy Stein
    01:45 Hypermobility overlap
    03:59 Amy’s bendy story
    05:57 Common pelvic patterns
    07:26 Multimodal treatment
    09:47 Pelvic floor basics
    12:07 Stability and exercise
    15:35 Bowel and congestion
    18:18 Perimenopause and hormones
    22:48 Tissue changes and creams
    24:18 CBD products explained
    27:37 Lifestyle and whole body
    31:27 Finding the right pelvic PT
    33:40 Wrap up and resources
    36 min
  • Hip Dysplasia, Micro-Instability, and Hypermobility with Dr. Ginger Garner
    Host Dr. Libby Hinsley welcomes pelvic and orthopedic rehabilitation expert Dr. Ginger Garner to Zebra Talks to discuss hip pain in hypermobility syndromes, focusing on hip dysplasia, borderline dysplasia, and micro-instability, which commonly coexist with generalized joint hypermobility. Garner cites studies showing over two thirds—and up to 78% in one cohort—of patients with hip dysplasia meet hypermobility criteria, emphasizing screening beyond labral tears and FAI. She describes practical signs and stresses the value of weight-bearing x-rays, manual therapy, and self-treatment tools, and shares her background integrating yoga, public health, and lifestyle medicine.
     
    00:00 Welcome to Zebra Talks
    00:35 Meet Dr Ginger Garner
    02:28 Why Hips Matter
    03:07 Dysplasia and Hypermobility
    05:33 What Hip Dysplasia Is
    07:00 Quick Screening Clues
    10:36 Why Dysplasia Gets Missed
    13:17 Stuck Tight Yet Unstable
    15:40 Choosing the Right Surgeon
    19:01 Imaging Red Flags
    20:54 Treatment Phases Overview
    22:39 Imaging the Glute Med
    25:24 Trauma and Pelvic Floor Findings
    26:40 Manual Therapy for Relief
    27:46 Imaging Breakthrough
    28:36 Manual Therapy Matters
    29:54 Rant on Rehab Protocols
    32:14 Self Treatment Tools
    36:46 Surgery vs Rehab Choices
    38:35 Hormones and Systemic Drivers
    40:04 Origin Story and Yoga
    47:36 Red Flags and Where to Find Help
    49:40 Wrap Up and Next Episode
    51 min
  • Hypermobility & Foot Pain with Kala Hildebrand

    In this episode, Dr. Libby Hinsley hosts Zebra Talks and interviews physical therapist and massage therapist Kala Hildebrand about hypermobility and feet, including common presentations of chronic foot pain in bendy bodies and why issues aren’t limited to “floppy” overpronation. Kala discusses how long-standing pain often comes with fear, limited information, and habituated strategies like constant shoe use or lifelong orthotics without an exit plan, and emphasizes reassessing current reality rather than old stories. They explore the value of gradually reintroducing sensory input and progressing slowly toward functional strength, while considering whole-chain contributors from foot to hip and pelvis. 

     

    00:00 Welcome to Zebra Talks

    00:35 Meet Kala Hildebrand

    02:03 Dance and Hypermobility

    04:13 Common Foot Pain Patterns

    05:41 Chronic Pain Stories

    09:03 Barefoot Tolerance Check

    11:24 Feet Freedom Myth

    13:56 Libby Foot Pain Journey

    15:59 Whole Body Foot Clues

    18:45 Hip Mobility Meets Feet

    20:43 Pain Free Loading

    21:26 Motor Control Lightbulbs

    22:44 Compression vs Distraction

    23:02 Force Transmission Chain

    24:01 Isometrics for Foot Pain

    25:33 Progressive Loading Mindset

    28:16 Thriving Not Striving

    29:29 Plantar Fasciitis Myths

    30:58 Orthotics Exit Strategy

    33:28 Intrinsic Foot Strength Plan

    36:35 Resources and Wrap Up

    40 min
  • Taming the Zebra: Tethered Cord and Cranio-Cervical Instability in Hypermobility with Heather Purdin

    Host Dr. Libby Hinsley welcomes physical therapist and manual therapist Heather Purdin, co-author of “Taming the Zebra,” to discuss her book and her biopsychosocial approach to treating hypermobility syndromes. The conversation continues by highlighting tethered cord syndrome, its key features, imaging considerations, conservative/manual approaches, and surgical cautions. They also discuss cranio-cervical instability versus a hypermobile neck, the role of inflammation/MCAS, stabilization strategies, and referrals, and share where to find Purdin’s resources and courses.

     

    00:00 Welcome to Zebra Talks

    00:35 Meet Heather Purdin

    02:31 Becoming a Zebra Tamer

    04:15 Why Write Taming the Zebra

    06:52 What Volume Two Covers

    09:56 Systemic Context for PT

    11:36 Reader Feedback and Hope

    12:29 Tethered Cord Explained

    15:30 Symptoms and Screening Clues

    17:28 Bladder Testing and Differentials

    19:06 MCAS and Fascia Research

    21:43 When to Refer and Imaging

    23:46 Prone MRI Insights

    24:36 Gentle Tethered Cord Relief

    25:29 Alignment Triggers and Safety

    27:52 CCI Versus Hypermobility

    28:56 Symptoms and Muscle Retraining

    32:05 Inflammation, MCAS, and Imaging

    34:45 Stabilization Training Example

    38:48 Posture Pelvis Ribcage Link

    40:22 Neck Exercise Progressions

    42:41 Mindset and Finding Providers

    44:31 Resources and Wrap Up

     

    EPISODE LINKS & RESOURCES:

    Taming the Zebra

    Good Health Physical Therapy and Wellness

    Follow Heather Purdin on Instagram @heather_purdinpt

    Follow Taming the Zebra on Instagram @tamingthezebra

    Follow Good Health Physical Therapy and Wellness on Instagram @goodhealthptpdx

    Follow Good Health Physical Therapy and Wellness on Facebook


    LINKS AND RESOURCES:

    Learn more about Dr. Libby Hinsley, How to Work with Her, or Join her Email List

    Follow Libby Hinsley on Instagram @libbyhinsleypt

    Follow Libby Hinsley on Facebook

    Leave a review on iTunes

    46 min
  • Eating Disorders and Hypermobility: An Embodied Recovery Approach with Heidi Andersen
    Host Dr. Libby Hinsley welcomes Heidi Andersen, a licensed clinical mental health counselor supervisor and founder of Reclaiming Beauty, to discuss eating disorders and their overlap with hypermobility syndromes. Heidi describes shifting from traditional CBT/DBT-focused treatment toward Embodied Recovery for Eating Disorders, reframing disordered eating and chronic tension as adaptive responses shaped by nervous system regulation, sensory processing, trauma, attachment history, and underlying health issues, including hypermobility syndromes and related comorbidities.
     
    EPISODE HIGHLIGHTS:
    00:00 Welcome to Zebra Talks
    00:41 Meet Heidi Andersen
    02:45 From Burnout to Embodied Recovery
    06:58 Hypermobility and Nourishment Clues
    08:08 Why This Overlap Is Trending
    11:07 Eating Disorder Definitions
    15:41 Age of Onset and Diagnostic Confusion
    18:16 Research on Anorexia and Hypermobility
    21:23 Containment Safety and Proprioception
    23:09 Strength Training Grounding
    24:25 Developmental Movement Push
    27:15 Reframing Restriction Wisdom
    28:06 Autism Sensory Overlap
    31:21 Treatment Window Tolerance
    33:43 Medical Motility Referrals
    34:55 Vagus Nerve Compression
    38:07 Somatic Tools Boundaries
    39:00 Directories Closing Resources
     

    EPISODE LINKS & RESOURCES:

    Reclaiming Beauty

    Follow Heidi Andersen at Reclaiming Beauty on Instagram @reclaimingbeauty


    LINKS AND RESOURCES:

    Learn more about Dr. Libby Hinsley, How to Work with Her, or Join her Email List

    Follow Libby Hinsley on Instagram @libbyhinsleypt

    Follow Libby Hinsley on Facebook

    Leave a review on iTunes

    42 min
  • POTS, MCAS, and Pelvic Venous Disease: Dr. Alexis Cutchins on the “Bendy, Itchy, and Dizzy” Trifecta

    Host Dr. Libby Hinsley welcomes cardiologist Dr. Alexis Cutchins, who left Emory after 13 years to open a private practice in New York City with the goal of building a multidisciplinary center for hypermobility spectrum disorders. Dr. Cutchins describes how curiosity led her into treating patients with POTS, dysautonomia, long COVID, EDS, and MCAS, and explains that MCAS can both drive and be triggered by POTS physiology. She also explains pelvic venous disease/left iliac vein compression as a frequent contributor to pooling, reduced cerebral perfusion, and orthostatic symptoms, sometimes treated mechanically with venous stenting.

     

    EPISODE HIGHLIGHTS:

    00:00 Welcome to Zebra Talks

    00:35 Meet Dr Alexis Cutchins

    02:13 Why She Focuses on POTS

    04:24 Leaving Emory for NYC

    05:09 Building a Center of Excellence

    06:40 Hypermobility in POTS Patients

    07:44 MCAS and Connective Tissue Link

    08:35 How MCAS Worsens POTS

    12:24 Treating MCAS Stepwise

    14:56 Do POTS Subtypes Matter

    16:30 Tilt Table Test Debate

    19:07 Stigma Around POTS Diagnosis

    20:04 Stigma And Awareness

    20:27 Primary Care POTS Care

    20:51 Heart Rate Reassurance

    22:11 MCAS Symptom Overlap

    23:55 Why Mast Cells Trigger

    26:04 Pelvic Venous Disease

    27:51 Iliac Compression Explained

    31:14 Symptoms And Red Flags

    33:19 Stents And Treatment

    35:39 Where To Find Dr. Cutchins

    36:34 Telehealth And Wrap

     

    EPISODE LINKS & RESOURCES:

    Cutchins Cardiovascular Medicine

    Follow Dr. Alexis Cutchins, MD on Instagram @drcutchins

    Follow Dr. Alexis Cutchins, MD on YouTube @DrCutchins

     

    LINKS AND RESOURCES:

    Follow Libby Hinsley on Instagram @libbyhinsleypt

    Follow Libby Hinsley on Facebook

    Learn more about Libby Hinsley, How to Work with Her, or Join her Email List

    Leave a review on iTunes

    38 min

About Zebra Talks: Living Your Best Bendy Life

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Dr Libby Hinsley and guests help people with hypermobility live their best bendy lives.

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