Rob Long was on his way to the NFL until a massive brain tumor completely altered his life. 
 
 
 
Rob now serves as the Executive Director of Uplifting Athletes, an organization committed to inspiring the rare disease community through the power of sport. In this episode he shares his personal story and the work of Uplifting Athletes. 
 
 
 
Sean also talks about his traumatic encounter with a scutigera coleoptrata. (We had to look that up). 
 
 
 
Click here for video interview referenced in episode.

Rob Long was on his way to the NFL until a massive brain tumor completely altered his life. Rob now serves as the Executive Director of Uplifting Athletes, an organization committed to inspiring the rare disease community through the power of sport. In this episode he shares his personal story and the work of Uplifting Athletes. Sean also talks about his traumatic encounter with a scutigera coleoptrata. (We had to look that up). Click here for video interview referenced in episode.

Rob Long was on his way to the NFL until a massive brain tumor completely altered his life. 
 
 
 
Rob now serves as the Executive Director of Uplifting Athletes, an organization committed to inspiring the rare disease community through the power of sport. In this episode he shares his personal story and the work of Uplifting Athletes. 
 
 
 
Sean also talks about his traumatic encounter with a scutigera coleoptrata. (We had to look that up). 
 
 
 
Click here for video interview referenced in episode.

070 – Leveraging Sport for Rare Disease

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad.  You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.

Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA).  FA affects their balance and coordination, significantly limiting their physical abilities.  However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM).  Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch.

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The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Join us, subscribe, and tell a friend!

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070 – Leveraging Sport for Rare Disease

070 – Leveraging Sport for Rare Disease

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