The Itch: Allergies, Asthma, Eczema & Immunology

#118 - Do Indolent Systemic Mastocytosis Patients & Providers Agree on Symptom Control?


Listen Later

Do patients and their healthcare teams view the impact of indolent systemic mastocytosis on quality of life in the same way?

In this episode of The Itch Review, we unpack key findings from a May 4, 2025, descriptive study from The Journal of the Advanced Practitioner in Oncology, “Patient and Advanced Practitioner Perspectives on Symptom Burden and Symptom Management in Indolent Systemic Mastocytosis.”

Is there a disconnect between what patients feel and what providers think when it comes to indolent systemic mastocytosis (ISM)? A new study suggests yes, revealing a mismatch between how patients and advanced practitioners (APs) perceive disease control and what that means for care. This episode dives into whether research like this could help bridge the gap between patient experience and clinical perspective.

What we cover in our episode about the indolent systemic mastocytosis:
  • Understanding ISM: What makes indolent systemic mastocytosis a unique multisystem condition?
  • Symptom burden explained: Frequency, severity, duration, distress, and functional interference.
  • Patient vs practitioner views: Understanding the most impactful symptoms differs from patient to AP. 
  • Practical tools: The Indolent Systemic Mastocytosis-Symptom Assessment Form (ISM-SAF) is a validated instrument that can be used to determine symptoms and severity.
  • Barriers and solutions: Why tracking symptoms is hard and how clinics can improve coordination.
  • AP-focused Toolkit: Resources to help nurse practitioners, PAs, and pharmacists provide patient-centered ISM care.
  • GET THE INFOGRAPHIC HERE

    ***

    The Itch Review, hosted by Dr. Gupta, Kortney, and Dr. Blaiss, explores the latest allergy and immunology studies, breaking down complex research in conversations accessible to clinicians, patients, and caregivers. Each episode provides key insights from journal articles and includes a one-page infographic in the show notes for easy reference.

    ***

    This podcast is made in partnership with The Allergy & Asthma Network.

    Thanks to Blueprint Medicines for sponsoring today’s episode.

    This podcast is for informational purposes only and does not substitute professional medical advice. Always consult with your healthcare provider for any medical concerns.

    ...more
    View all episodesView all episodes
    Download on the App Store

    The Itch: Allergies, Asthma, Eczema & ImmunologyBy The Itch: Allergies, Asthma & Immunology

    • 4.3
    • 4.3
    • 4.3
    • 4.3
    • 4.3

    4.3

    92 ratings


    More shows like The Itch: Allergies, Asthma, Eczema & Immunology

    View all
    Stuff You Should Know by iHeartPodcasts

    Stuff You Should Know

    78,247 Listeners

    The Human Upgrade: Biohacking for Longevity & Performance by Dave Asprey

    The Human Upgrade: Biohacking for Longevity & Performance

    7,219 Listeners

    The Skinny Confidential Him And Her Show by Lauryn Bosstick and Michael Bosstick / Dear Media

    The Skinny Confidential Him And Her Show

    14,948 Listeners

    Frankly Speaking About Family Medicine by Pri-Med

    Frankly Speaking About Family Medicine

    260 Listeners

    The Curbsiders Internal Medicine Podcast by The Curbsiders Internal Medicine Podcast

    The Curbsiders Internal Medicine Podcast

    3,331 Listeners

    Calm Parenting Podcast by Kirk Martin

    Calm Parenting Podcast

    1,447 Listeners

    Dhru Purohit Show by Dhru Purohit

    Dhru Purohit Show

    3,523 Listeners

    The Dr. Hyman Show by Dr. Mark Hyman

    The Dr. Hyman Show

    9,228 Listeners

    AAAAI Podcast: Conversations from the World of Allergy by The American Academy of Allergy, Asthma & Immunology (AAAAI)

    AAAAI Podcast: Conversations from the World of Allergy

    51 Listeners

    The Bible Recap by Tara-Leigh Cobble

    The Bible Recap

    35,710 Listeners

    AllergyTalk by allergytalk

    AllergyTalk

    51 Listeners

    Bendy Bodies with Dr. Linda Bluestein by Dr. Linda Bluestein

    Bendy Bodies with Dr. Linda Bluestein

    221 Listeners

    Huberman Lab by Scicomm Media

    Huberman Lab

    29,184 Listeners

    Good Inside with Dr. Becky by Dr. Becky Kennedy

    Good Inside with Dr. Becky

    4,531 Listeners

    The Mel Robbins Podcast by Mel Robbins

    The Mel Robbins Podcast

    20,249 Listeners