It’s World FSHD Day! To celebrate today, Tim Hollenback, FSHD Straight Talk host, talks with: Ricardo Gerpe from FSHD Spain; Chelsea Moeller from the FSHD Society; Rick & Terry Colella from Friends of FSH Research; Jennifer Cherniwchan or the Alberta Chapter; and Chris Carrino, announcer for the Brooklyn Nets and founder of the Chris Carrino Foundation for FSHD. 

For more information about World FSHD, please visit the FSHD Society website. 

If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media. 

Email: [email protected]