This was the 43rd annual National Tay-Sachs and Allied Diseases (NTSAD) family conference and we were honored to moderate the opening session - a panel with Sarah, Kevin, and Staci. 
 
 
 
 
 
 
 
 
 
 
 
The video that Sean referenced near the beginning of the episode: https://www.youtube.com/watch?v=XFEXsquCA8U 
 
 
 
 
 
 
 
Learn More about the family conference at https://ntsad.org/index.php/2021-annual-family-conference 
 
 
 
 
 
 
 
More about NTSAD at https://ntsad.org

This was the 43rd annual National Tay-Sachs and Allied Diseases (NTSAD) family conference and we were honored to moderate the opening session - a panel with Sarah, Kevin, and Staci. The video that Sean referenced near the beginning of the episode: https://www.youtube.com/watch?v=XFEXsquCA8U Learn More about the family conference at https://ntsad.org/index.php/2021-annual-family-conference More about NTSAD at https://ntsad.org

This was the 43rd annual National Tay-Sachs and Allied Diseases (NTSAD) family conference and we were honored to moderate the opening session - a panel with Sarah, Kevin, and Staci. 
 
 
 
 
 
 
 
 
 
 
 
The video that Sean referenced near the beginning of the episode: https://www.youtube.com/watch?v=XFEXsquCA8U 
 
 
 
 
 
 
 
Learn More about the family conference at https://ntsad.org/index.php/2021-annual-family-conference 
 
 
 
 
 
 
 
More about NTSAD at https://ntsad.org

153 – NTSAD Annual Family Conference

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad.  You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.

Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA).  FA affects their balance and coordination, significantly limiting their physical abilities.  However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM).  Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch.

Join us, subscribe, and tell a friend!

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The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Join us, subscribe, and tell a friend!

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153 – NTSAD Annual Family Conference

153 – NTSAD Annual Family Conference

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