Joe Sooch points out that we only have one life to live so we better make the most of it.  He has a rare disease called Fibrodysplasia ossificans progressiva (FOP) - a genetic disorder that causes soft tissues to transform permanently into bone. 

Joe uses a wheelchair and FOP has limited his physical abilities in many other ways.  However he is determined to make the most of the time he's been given.

Find Joe Sooch on YouTube or Instagram.  

Listen to Joe interview us on his podcast Two Mics, One Joe Sooch.