2 Mikes Parkinson’s Podcast

RePOST from (6/3/21, 5:00-6:00 PM EST we have Rachel Moss.

Rachel is a Physician Assistant (PA) at the Michigan Institute for Neurological Disorders (MIND). As a PA (specializing in Movement disorders), Rachel works directly with the patients. In this interview we talk about why she chose Parkinson’s Patients, the motor and non-motor symptoms associated with PD and her work with Dr. Aaron Ellenbogen at MIND.

https://mindonline.com/

MIND – Michigan Institute for Neurological Disorders is the area’s leading provider of comprehensive neurological care for the full range of injuries and disorders of the brain, spine and nervous system. With state-of-the-art technology and cutting-edge resources on site, MIND is a one-stop shop for the diagnosis, treatment and management of neurological disorders. MIND provides individualized care to help improve symptoms as well as assisting with emotional and lifestyle needs

INTERVIEW ONLY: Biographer Jake Brown Catherine Powers talks about her late husband's battle with Parkinson's how he enjoyed life

RePost of last nights show (Thursday May 20) on Radioparkies @ 6:00 EST

We start off with the executive director of the APDA of Massachusetts, Bill Patjane. Join us as Bill talks about this year’s optimism walk.

Next up we talk again with Nathan Lee Ward who was diagnosed with Parkinson’s at 26. Nathan discusses hitting rock bottom, finding God, helping others and finding purpose in our acceptance of PD

Last up we have Catherine Powers and biographer Jake Brown

Catherine is the wife of late country music legend Freddy Powers. Freddy wrote numerous hit country songs for artists such as Willie Nelson, Merle Haggard (6 number ones), Big & Rich and many others. Freddy also produced and performed many great country songs. Join us as we talk about their lives, how Freddy worked through PARKINSON’S INSPIRING MANY and continued to live the life he wanted, culminating in the book and MOVIE (In the works) called The Spree of 83: The Life And Times Of Freddy Powers

The Spree of 83: The Life And Times Of Freddy Powers was co-written with by Freddy with his wife, Catherine Powers, and biographer Jake Brown. The memoir recounts first-hand the story behind Powers’ decades-long career in the music business, including his battle with Parkinson’s disease in the years leading to his death in 2016.

We talk again with Nathan Lee Ward who was diagnosed with Parkinson’s at 26. Nathan discusses hitting rock bottom, finding God, helping others and finding purpose in our acceptance of PD.

Executive Director of the APDA of Massachusetts, Bill Patjane. Join us as Bill talks about this year’s optimism walk

Repost from Thursday May 13 on at 6:00 EST on Radioparkies.com we have the one and only Jimmy Choi! Check it out as we talk with Jimmy about:

Setting burpee and push up world records

The gifts from Parkinson's

His book in the very early stages

How Cheryl balances his crazy

PD hitches since High School baseball

Great friendships and support from the Ninja and Parkinson Communities

How his parents shaped him to who he is today

Name drops include John Ball, Paul Cluff (will Paul make a run at Jimmy's records?) and Eric Slominski

Special thanks to co-hosts Mike Achin, Gavin Mogan and Heather Kennedy

RePost from 5/6 on radioparkies.com, we have an amazing chat with Maryum "May May Ali". Listen in as she discusses the Unity walk and shares some personal stories about her, her world famous father/boxing legend Muhammad Ali.

 

"May May Ali, you are an amazing force for good, thank you for your advocacy!" Mary Beth Arzac @ArzacBeth

 

Interview starts at 4.30 ends at 45.30

 

#Parkinsons #interview #MuhammadAli #podcast #2MikesPDPodcast

*Warning sensitive subject matter about living with Parkinson’s and the medication involved will be discussed (among other subjects)

PODCAST of LIVE show on Radioparkies.com 2/29/21 were the stories of Vicki Dillon and Gaynor Edwards

About Vicki:

Vicki was diagnosed with Young Onset Parkinson's Disease (YOPD) in February 2007, aged just 35.

Vicki is passionate about speaking about living with Parkinson's and has travelled the word telling her powerful, sad, funny, disturbing, medical-history-making and ultimately heart warming story in her own unique style.

Life with Parkinson's is never boring and Vicki's aim is to educate and inspire you - with some laughter, tears and brain surgery along the way.

About Gaynor:

After a few years experiencing symptoms she attributed to stress, Gaynor Edwards visited her general practitioner and learned that the symptoms instead were caused by something neurological. Nine months of various scans later, she received a diagnosis of Young Onset Parkinson’s at the age of 42. “‘You have Parkinson’s.’ Those are three words no one wants to hear,” she says.

Gaynor found support and resources in the UK’s major Parkinson’s charity, but she quickly discovered that YOPD wasn’t a focus there. “I thought, ‘Well, it’s needed. We need to start a charity dedicated to Young Onset. I guess I’ll have to do it.’ So, I did.”

Gaynor founded and continues to lead Spotlight YOPD (a registered charity in the UK)

*The views expressed are not necessarily the views of 2 Mikes PD Podcast, its hosts, or radioparkies

Only 29 when diagnosed with PD, Benjamin Stecher, co-authored the book Brain Fables.

Brain Fables

An estimated 80 million people live with a neurodegenerative disease, with this number expected to double by 2050. Despite decades of research and billions in funding there are no medications that can slow, much less stop, the progress of these diseases. The Time to rethink degenerative brain disorders has come. With no biological boundaries between neurodegenerative diseases, illnesses such as Parkinson's and Alzheimer's result from a large spectrum of biological abnormalities, hampering effective treatment. Acclaimed neurologist Dr Alberto Espay and Parkinson's advocate Benjamin Stecher present compelling evidence that these diseases should be targeted according to genetic and molecular signatures rather than clinical diagnoses. BRAIN FABLES is a wakeup call to the scientific community, explaining why we have no effective disease-modifying treatments, and how we can get on track

Nathan Lee Ward was diagnosed with Parkinson's at 26. Nathan battled through agonist drugs, brain fog and other PD related issues such as appetite and sleep deprivation. Nathan decided to give cannabis a try., and eventually gave up his Parkinson's drugs. With the right strain and right approach Nathan feels clear headed, sleeps better, and has improved his appetite.

He understands this may not work for everyone; it does work for him.