For Rare Disease Day 2023, we were honored to moderate a virtual panel with our friends at <a href= "https://www.jettfoundation.org/">Jett Foundation</a>.  The theme was Thriving with Duchenne; a Rare Disease Day event focused on mental health and anxiety and it features a diverse panel of patients, caregivers, a life coach, and a Psychologist.  Duchenne Muscular Dystrophy (DMD) affects mostly males and causes progressive muscle damage in the entire body. It is the most common fatal pediatric disorder.  Duchenne has no cure. But the individuals in this episode are determined to Thrive with Duchenne.

For Rare Disease Day 2023, we were honored to moderate a virtual panel with our friends at Jett Foundation. The theme was Thriving with Duchenne; a Rare Disease Day event focused on mental health and anxiety and it features a diverse panel of patients, caregivers, a life coach, and a Psychologist. Duchenne Muscular Dystrophy (DMD) affects mostly males and causes progressive muscle damage in the entire body. It is the most common fatal pediatric disorder. Duchenne has no cure. But the individuals in this episode are determined to Thrive with Duchenne.

For Rare Disease Day 2023, we were honored to moderate a virtual panel with our friends at <a href="https://www.jettfoundation.org/" rel="noopener noreferrer">Jett Foundation</a>.&nbsp; The theme was Thriving with Duchenne; a Rare Disease Day event focused on mental health and anxiety and it features a diverse panel of patients, caregivers, a life coach, and a Psychologist.&nbsp; Duchenne Muscular Dystrophy (DMD) affects mostly males and causes progressive muscle damage in the entire body. It is the most common fatal pediatric disorder.&nbsp; Duchenne has no cure. But the individuals in this episode are determined to Thrive with Duchenne.

211 - Thriving with Duchenne, RDD 2023

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad.  You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.

Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA).  FA affects their balance and coordination, significantly limiting their physical abilities.  However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM).  Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch.

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The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Join us, subscribe, and tell a friend!

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211 - Thriving with Duchenne, RDD 2023

211 - Thriving with Duchenne, RDD 2023

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