Join us for this episode as our host Tim interviews Rick Whitehead, an artist who has FSHD. Rick has been aware of his FSHD since his teens. He has been in five clinical trials and is “trying to be on the front line and as proactive as I can be.”

Listen in to Tim and Rick's conversation as they discuss Rick's story with FSHD, his work as an artist, and his experience with the importance of being actively involved in the FSHD community.

For more details about our Radio Show, click here: https://www.fshdsociety.org/fshd-radio/