JK It's Not About You with Jen Rouse & Kelli Murcko

#8. Raising a Thriving Child with a Disability


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Episode #8: Sarah Barber, a sophomore at Pepperdine University, joins us to share her inspiring journey living with Spinal Muscular Atrophy (SMA). Diagnosed at age two, Sarah's life has been shaped by resilience and a passion for scientific advancements in medicine. She opens up about how SMA has fueled her ambitions and the way it has influenced her path toward a career in chemistry. Alongside her academic pursuits, Sarah reflects on her experience with the 75 Hard program and our shared adventures as recent empty nesters.

Through her personal narrative, Sarah showcases the importance of curiosity, education, and community. Her story highlights the power of intelligence and supportive environments, from her early school days to her transition into college life. Despite the challenges of SMA, Sarah emphasizes the significance of forming genuine connections, especially with peers who understand the nuances of living with similar challenges. Her experiences navigating physical obstacles and homesickness reveal the strength found in friendships and the drive to build a strong self-image.

As we explore themes of self-confidence and authenticity, Sarah reminds us that not everyone will see your true self, and that's okay. By focusing on those who genuinely value and understand us, we can foster meaningful relationships. Sarah shares touching anecdotes about friends who have been there for her, illustrating the transformative power of being seen and supported by those who matter most. Her journey is a celebration of love, friendship, and personal growth, encouraging listeners to cherish authentic relationships and embrace the beauty of being valued.

Highlights: 

(00:00) Embracing Empty Nesting and Challenges (08:29) Navigating College and Social Challenges (16:54) Finding Confidence and Authentic Relationships (23:48) Supporting Authentic Relationships and Growth

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JK It's Not About You with Jen Rouse & Kelli MurckoBy Iconic Nation Media

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