hi hello hey, we need to talk about blood.

Fear not, squeamish folks: this won’t get too graphic. As you may know if you’ve heard our tagline, we have the same rare disease, Hermansky-Pudlak Syndrome! We’ve talked about HPS in may forms: conferences in 2021, 2023, and 2024, chronic illness, and many other episodes on our vision. Unbelievably, we’ve never talked about our bleeding disorder before, so today is that day!

We won’t get too deep and gory, but we will talk about how our bleeding disorder affects our lives and strategies to address different kinds of injuries. We also share funny and not-too-gross injury stories!