Sign up to save your podcastsEmail addressPasswordRegisterOrContinue with GoogleAlready have an account? Log in here.
I have a 26 year old daughter with 22q.11. I've learned a lot on this journey. Some things might be helpful to some of you, but due to the nature of 22q.11, and how the syndrome manifests differently ... more
FAQs about A mom's journey with 22q11.2:How many episodes does A mom's journey with 22q11.2 have?The podcast currently has 30 episodes available.
February 21, 2020Can a person with 22q11.2 live independently?I get asked this question a lot. The short answer, I believe, is ‘yes’ but I haven’t figured it out yet, and this podcast episode explains why....more13minPlay
February 16, 2020Interview with Hannah, Sarah’s youngest sibling.This is a very unplanned, raw interview. We hope this gives your some insights into a sibling’s perspective....more29minPlay
February 15, 2020Got interrupted on the last episode ☺️Final thoughts about taking care of the caregiver....more4minPlay
February 15, 2020Take care of the caregiver part 2This episode got cut off because my husband called. But it's am important episode. ☺️...more14minPlay
February 14, 2020How having a child with special needs has affected our marriage.Happy Valentines Day! Statistics have shown that having a special needs child increases the stress on a marriage. It's important to me to take regular inventory on where our marriage is at, and what we need to do to keep it strong....more29minPlay
February 14, 2020How having a child with special needs has affected our family.It took a long time for me to see the effects that having a disabled child had on our family. Each individual was affected, and coped with the family dynamic differently. Looking back I wish I'd seen each person's difficulties more clearly, however, even those difficulties brought about beautiful characteristics in each member....more21minPlay
February 08, 2020Humanitarian Work!A desire to live life isn't any different for an individual with special needs. I'm so glad that we've been able to find ways to make that happen for our daughter....more12minPlay
February 06, 2020Work and accommodations part 2This subject is hard. Trying to explain to someone why it's hard is...hard!! Don't let people who don't understand your situation make you feel inadequate. This is tricky business. If your state has good accommodations for helping your child get a job, and keep a job, then get them involved....more44minPlay
February 05, 2020Work and accommodations part 1Jobs are tricky. When looking for employment be certain to communicate limitations and the need for potential accommodations....more17minPlay
February 02, 2020The first rule in any emergency: REMAIN CALM!!This episode is about dating and your special needs child. Things may happen that make you feel uncomfortable, however, overreaction never helps anything or anyone. Remain calm....more23minPlay
FAQs about A mom's journey with 22q11.2:How many episodes does A mom's journey with 22q11.2 have?The podcast currently has 30 episodes available.