A mom's journey with 22q11.2

I get asked this question a lot. The short answer, I believe, is ‘yes’ but I haven’t figured it out yet, and this podcast episode explains why.

This is a very unplanned, raw interview. We hope this gives your some insights into a sibling’s perspective.

Final thoughts about taking care of the caregiver.

This episode got cut off because my husband called. But it's am important episode. ☺️

Happy Valentines Day! Statistics have shown that having a special needs child increases the stress on a marriage. It's important to me to take regular inventory on where our marriage is at, and what we need to do to keep it strong.

It took a long time for me to see the effects that having a disabled child had on our family. Each individual was affected, and coped with the family dynamic differently. Looking back I wish I'd seen each person's difficulties more clearly, however, even those difficulties brought about beautiful characteristics in each member.

A desire to live life isn't any different for an individual with special needs. I'm so glad that we've been able to find ways to make that happen for our daughter.

This subject is hard. Trying to explain to someone why it's hard is...hard!! Don't let people who don't understand your situation make you feel inadequate. This is tricky business. If your state has good accommodations for helping your child get a job, and keep a job, then get them involved.

Jobs are tricky. When looking for employment be certain to communicate limitations and the need for potential accommodations.

This episode is about dating and your special needs child. Things may happen that make you feel uncomfortable, however, overreaction never helps anything or anyone. Remain calm.