This is such an important topic! Everyone suffers when the caregiver gets burnout. They are NOT weak for getting to that point. Honor them by keeping them in your mind and making sure they are cared for. If YOU are the caregiver you NEED to communicate your needs to others.

Sarah experiences trichotilmania. It’s gotten better, however, she still pulls out her eyelashes and eyebrows. I don’t know if this podcast will be helpful to anyone, but here’s some information and experience that we went through.

It's a big decision. Both have advantages and disadvantages.

Stuck in an age, stuck in a pattern, stuck in emotions. None of it is uncommon, and honestly, sometimes it's really hard.

This one is a little longer because PUBERTY feels like an ETERNITY!

After going to a geneticist I learned that that are "flags" that indicate chromosome deletions. It's so interesting! It's worth it to take notice of these things if you have concerns.

Mom Tip- Find a really good ENT specialist because you're probably going to need one.

Figuring out an education plan can be difficult. Make sure you have a good team of professionals, and be so grateful when you do!

Having 5 children helped me realize that something was different about Sarah. I embraced the diagnosis because more information always leads to greater inspiration, and I needed all the information and inspiration I could get.

I've never done a podcast before so please be patient with the learning curve. I'm hoping that my experiences with 22q11.2 will be helpful to someone else dealing with this syndrome, or even another parents special needs journey.