About IBD

Are you unique? Do you represent most patients with IBD? Christy Stone of Crohnie Bologna tells the story of her disease journey, how she feels that she's not unique as an inflammatory bowel disease patient, why she chooses kindness, and why these things make her a better advocate.

Find Christy Stone, Crohnie Bologna, at:

Blog: http://www.crohniebolognaibd.com/ Facebook: https://www.facebook.com/CrohnieBolognaIbd/ Twitter: https://twitter.com/CrohnieBologna Instagram: https://www.instagram.com/crohnie_bologna_ibd/

Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/

Find Mac Cooney at: Cooney Studio: http://cooneystudio.com/ Facebook: https://www.facebook.com/michaelandrewcooney/ Twitter: https://twitter.com/maccooney Bandcamp: https://michaelandrewcooney.bandcamp.com/ Soundcloud: https://soundcloud.com/maccooney

"About IBD with Amber Tresca" © Cooney Studio Additional audio engineering courtesy Mac Cooney

Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels.

Do you have an IBD Elevator Speech? I got you, here's where you can learn to create yours after you listen to Brooke Abbott give hers: https://www.verywell.com/how-to-create-your-ibd-elevator-speech-1942452

Find Christy Stone, Crohnie Bologna, at:

• Blog: http://www.crohniebolognaibd.com/
• Facebook: https://www.facebook.com/CrohnieBolognaIbd/
• Twitter: https://twitter.com/CrohnieBologna
• Instagram: https://www.instagram.com/crohnie_bologna_ibd/

Find Ryan Stevens, IBD Swimming & Me, at:

• Blog: http://www.crohnsguy.com/
• Facebook: https://www.facebook.com/IBDSwimmer/
• Instagram: https://www.instagram.com/rp_stevens/

Find Jaime Weinstein at:

• Blog: http://prettyrottenguts.tumblr.com/
• Twitter: https://twitter.com/JaimeEditor
• Instagram: https://www.instagram.com/slightlyjaided/

Find Brooke Abbott, The Crazy Creole Mommy Chronicles at:

• Blog: https://crazycreolemommy.com/
• Facebook: https://www.facebook.com/CrazyCreoleMama
• Twitter: https://twitter.com/CrzyCreoleMommy/
• Instagram: https://www.instagram.com/crazycreolemama/

Find Michael Tresca at:

• Twitter: https://twitter.com/worldofwelstar
• Facebook: https://www.facebook.com/worldofwelstar/
• Patreon: https://www.patreon.com/talien

Find Dr Tiffany Taft, PsyD, licensed clinical psychologist, Oak Park Behavioral Medicine at:

• Blog: http://opbmed.blogspot.com/2017/08/breaking-100-chance-were-all-going-to.html
• Facebook: https://www.facebook.com/opbmed/
• Twitter: https://twitter.com/OPBMed Oak Park Behavioral Medicine: http://www.opbmed.com/
• Dr Taft's Research: https://www.ncbi.nlm.nih.gov/pubmed/?term=taft+th

Find Brian Greenberg at:

• Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU
• Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/
• Facebook: https://www.facebook.com/ChronicallyBetterYou/

Find Amber J Tresca at:

• Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
• Blog: http://aboutibd.com/
• Facebook: https://www.facebook.com/aboutibd
• Twitter: https://twitter.com/aboutIBD
• Pinterest: https://www.pinterest.com/aboutibd/
• Instagram: https://www.instagram.com/about_IBD/

Intro Music: Rumble - Bensound.com - www.bensound.com/royalty-free-music

Interludes: Love - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: Summer - Bensound.com - www.bensound.com/royalty-free-music

Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels.

Do you have an IBD Elevator Speech? I got you, here's where you can learn to create yours after you listen to Brooke Abbott give hers: https://www.verywell.com/how-to-create-your-ibd-elevator-speech-1942452

Find Christy Stone, Crohnie Bologna, at:

• Blog: http://www.crohniebolognaibd.com/
• Facebook: https://www.facebook.com/CrohnieBolognaIbd/
• Twitter: https://twitter.com/CrohnieBologna
• Instagram: https://www.instagram.com/crohnie_bologna_ibd/

Find Ryan Stevens, IBD Swimming & Me, at:

• Blog: http://www.crohnsguy.com/
• Facebook: https://www.facebook.com/IBDSwimmer/
• Instagram: https://www.instagram.com/rp_stevens/

Find Jaime Weinstein at:

• Blog: http://prettyrottenguts.tumblr.com/
• Twitter: https://twitter.com/JaimeEditor
• Instagram: https://www.instagram.com/slightlyjaided/

Find Brooke Abbott, The Crazy Creole Mommy Chronicles at:

• Blog: https://crazycreolemommy.com/
• Facebook: https://www.facebook.com/CrazyCreoleMama
• Twitter: https://twitter.com/CrzyCreoleMommy/
• Instagram: https://www.instagram.com/crazycreolemama/

Find Michael Tresca at:

• Twitter: https://twitter.com/worldofwelstar
• Facebook: https://www.facebook.com/worldofwelstar/
• Patreon: https://www.patreon.com/talien

Find Dr Tiffany Taft, PsyD, licensed clinical psychologist, Oak Park Behavioral Medicine at:

• Blog: http://opbmed.blogspot.com/2017/08/breaking-100-chance-were-all-going-to.html
• Facebook: https://www.facebook.com/opbmed/
• Twitter: https://twitter.com/OPBMed Oak Park Behavioral Medicine: http://www.opbmed.com/
• Dr Taft's Research: https://www.ncbi.nlm.nih.gov/pubmed/?term=taft+th

Find Brian Greenberg at:

• Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU
• Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/
• Facebook: https://www.facebook.com/ChronicallyBetterYou/

Find Amber J Tresca at:

• Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
• Blog: http://aboutibd.com/
• Facebook: https://www.facebook.com/aboutibd
• Twitter: https://twitter.com/aboutIBD
• Pinterest: https://www.pinterest.com/aboutibd/
• Instagram: https://www.instagram.com/about_IBD/

Intro Music: Rumble - Bensound.com - www.bensound.com/royalty-free-music

Interludes: Love - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: Summer - Bensound.com - www.bensound.com/royalty-free-music

What are your goals? Are you taking steps each day to move towards those goals? Brian Greenberg, endurance athlete and president of Chronically Better You tells us how he moved from goals after surgery—getting out of bed and making his own lunch—to training for an Ironman in 2018. People with IBD know the value of structure and Brian explains how he has learned to manage his life with Crohn's disease and an ostomy through careful planning and setting goals. 2:35: Why sitting still actually makes Brian feel worse. 3:18: Why a routine is important 4:33: What's a Half Ironman? 6:41: How to set goals, no matter if they're big or small 10:20: Why a schedule is important 13:05: On being a model patient 13:57: What happens when you miss a training day? 18:30: What Brian thinks when he looks at his training schedule or during a race 20:02: A nightly routine that helps reduce stress 24:19: The biggest motivating factor in Brian's life 27:19: Shout out to our partners for the help 29:49: Why it's best to do you and to not compare to others Find Brian Greenberg at:

• Twitter: https://twitter.com/BrianG_CBY
• https://twitter.com/ChronicBetterU
• Instagram: https://www.instagram.com/BrianG_CBY/
• https://www.instagram.com/ChronicallyBetterYou/
• Facebook: https://www.facebook.com/ChronicallyBetterYou/

Find Intense Intestines Foundation at:

• We Will Beat IBD Podcast: https://itunes.apple.com/us/podcast/we-will-beat-ibd-podcast/id1065350104?mt=2
• Web: http://www.intenseintestines.org/
• Facebook: https://www.facebook.com/IntenseIntestines/
• Twitter: https://twitter.com/NtenseNtestines
• Instagram: https://www.instagram.com/intense_intestines/

Find Amber J Tresca at:

• Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
• Blog: http://aboutibd.com/
• Facebook: https://www.facebook.com/ibdcrohns/
• Twitter: https://twitter.com/aboutIBD
• Pinterest: https://www.pinterest.com/aboutibd/
• Instagram: https://www.instagram.com/about_IBD/

Intro Music: The Jazz Piano - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: Soul Food - Purple Planet Music - http://www.purple-planet.com

What are your goals? Are you taking steps each day to move towards those goals? Brian Greenberg, endurance athlete and president of Chronically Better You tells us how he moved from goals after surgery—getting out of bed and making his own lunch—to training for an Ironman in 2018. People with IBD know the value of structure and Brian explains how he has learned to manage his life with Crohn's disease and an ostomy through careful planning and setting goals. 2:35: Why sitting still actually makes Brian feel worse. 3:18: Why a routine is important 4:33: What's a Half Ironman? 6:41: How to set goals, no matter if they're big or small 10:20: Why a schedule is important 13:05: On being a model patient 13:57: What happens when you miss a training day? 18:30: What Brian thinks when he looks at his training schedule or during a race 20:02: A nightly routine that helps reduce stress 24:19: The biggest motivating factor in Brian's life 27:19: Shout out to our partners for the help 29:49: Why it's best to do you and to not compare to others Find Brian Greenberg at:

• Twitter: https://twitter.com/BrianG_CBY
• https://twitter.com/ChronicBetterU
• Instagram: https://www.instagram.com/BrianG_CBY/
• https://www.instagram.com/ChronicallyBetterYou/
• Facebook: https://www.facebook.com/ChronicallyBetterYou/

Find Intense Intestines Foundation at:

• We Will Beat IBD Podcast: https://itunes.apple.com/us/podcast/we-will-beat-ibd-podcast/id1065350104?mt=2
• Web: http://www.intenseintestines.org/
• Facebook: https://www.facebook.com/IntenseIntestines/
• Twitter: https://twitter.com/NtenseNtestines
• Instagram: https://www.instagram.com/intense_intestines/

Find Amber J Tresca at:

• Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
• Blog: http://aboutibd.com/
• Facebook: https://www.facebook.com/ibdcrohns/
• Twitter: https://twitter.com/aboutIBD
• Pinterest: https://www.pinterest.com/aboutibd/
• Instagram: https://www.instagram.com/about_IBD/

Intro Music: The Jazz Piano - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: Soul Food - Purple Planet Music - http://www.purple-planet.com

Being diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn's disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself.

2:15: Brian spent a lot of time in detention as a kid!

3:15: The hardest part of going to school with IBD.

5:00: Brian's first resection: at 21.

7:00: Deciding to get an ostomy and what that meant for the future.

9:00: How an ostomy and a Ken butt made life better.

11:00: The misunderstandings that can happen when your peers don't understand about IBD.

14:00: Why do people not just ask about why a person may appear sick?

16:00: How Brian manages to stay active with Crohn's disease.

16:30: How being active can help with the mental aspects of coping with IBD.

17:34: Why distractions can actually be beneficial at times.

19:00: One of the things Brian has done that maybe is a little risky. But super fun.

19:40: How Brian managed an aggressive medication schedule in the 90s.

20:20: Brian's experience in transitioning from parents managing everything IBD to him managing it himself.

Find Brian Greenberg at:

• Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU
• Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/
• Facebook: https://www.facebook.com/ChronicallyBetterYou/

Find Intense Intestines Foundation at:

• We Will Beat IBD Podcast: https://itunes.apple.com/us/podcast/we-will-beat-ibd-podcast/id1065350104?mt=2
• Web: http://www.intenseintestines.org/
• Facebook: https://www.facebook.com/IntenseIntestines/
• Twitter: https://twitter.com/NtenseNtestines
• Instagram: https://www.instagram.com/intense_intestines/

Find Amber J Tresca at:

• Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
• Blog: http://aboutibd.com/
• Facebook: https://www.facebook.com/aboutibd
• Twitter: https://twitter.com/aboutIBD
• Pinterest: https://www.pinterest.com/aboutibd/
• Instagram: https://www.instagram.com/about_IBD/

Intro Music: Badass - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: The Lounge - Bensound.com - www.bensound.com/royalty-free-music

Being diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn's disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself.

2:15: Brian spent a lot of time in detention as a kid!

3:15: The hardest part of going to school with IBD.

5:00: Brian's first resection: at 21.

7:00: Deciding to get an ostomy and what that meant for the future.

9:00: How an ostomy and a Ken butt made life better.

11:00: The misunderstandings that can happen when your peers don't understand about IBD.

14:00: Why do people not just ask about why a person may appear sick?

16:00: How Brian manages to stay active with Crohn's disease.

16:30: How being active can help with the mental aspects of coping with IBD.

17:34: Why distractions can actually be beneficial at times.

19:00: One of the things Brian has done that maybe is a little risky. But super fun.

19:40: How Brian managed an aggressive medication schedule in the 90s.

20:20: Brian's experience in transitioning from parents managing everything IBD to him managing it himself.

Find Brian Greenberg at:

• Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU
• Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/
• Facebook: https://www.facebook.com/ChronicallyBetterYou/

Find Intense Intestines Foundation at:

• We Will Beat IBD Podcast: https://itunes.apple.com/us/podcast/we-will-beat-ibd-podcast/id1065350104?mt=2
• Web: http://www.intenseintestines.org/
• Facebook: https://www.facebook.com/IntenseIntestines/
• Twitter: https://twitter.com/NtenseNtestines
• Instagram: https://www.instagram.com/intense_intestines/

Find Amber J Tresca at:

• Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
• Blog: http://aboutibd.com/
• Facebook: https://www.facebook.com/aboutibd
• Twitter: https://twitter.com/aboutIBD
• Pinterest: https://www.pinterest.com/aboutibd/
• Instagram: https://www.instagram.com/about_IBD/

Intro Music: Badass - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: The Lounge - Bensound.com - www.bensound.com/royalty-free-music

Did you know that more than 70% of people with IBD have reported bathroom accidents (fecal incontinence)? Did you also know that only around 20% ask for help from their physicians? It's a sensitive topic, to be sure, which is why I offer advice on how to cope with this problem and how to avoid it in the first place. If you're struggling with this issue I have tips that you can use today but the best advice is to talk to your doctor about it (and I discuss that also!).

2:53: IBD is not a pooping disease!

3:34: 8AM classes — everyone else hates them 'cause they're hung over. You hate them because IBD.

4:28: Contact the student services office at your university about getting accommodations.

5:19: IBD is covered under the Americans With Disabilities Act, which means that you can ask for reasonable accommodations.

6:23: Yeah, I'm gonna come down on coffee and how it affects your digestive tract.

8:18: Not eating/drinking in the morning: how that can be good or bad depending on circumstances.

10:13: Why a lack of appetite can work against you during an IBD flare-up.

12:00: What should come with you when you leave the house?

16:32: Making your IBD emergency kit.

22:40: Vegan Ostomy coping with a leaking appliance in his car at Canada's Wonderland (I thought he did a full change but actually he was able to change the bag) https://www.youtube.com/watch?v=55jpoNZCryw

23:19: The mental aspect of dealing with bathroom accidents is probably the most difficult one to overcome.

Resources:

• #AboutIBDPodcast on stress relief with Dr Tiffany Taft: https://soundcloud.com/amber-j-tresca/episode-11-final-mixed
• What To Do In Case Of Bathroom Accidents: https://www.verywell.com/what-to-do-in-case-of-bathroom-accidents-1942902
• Fecal Incontinence And IBD: https://www.verywell.com/fecal-incontinence-and-ibd-1943008
• The Restroom Access Act: https://www.verywell.com/the-restroom-access-act-1942432
• IBD Worst-Case Scenario Handbook: https://www.verywell.com/ibd-worst-case-scenario-handbook-1942892
• Is Caffeine Bad For Your IBD? https://www.verywell.com/is-caffeine-bad-for-your-ibd-1942678

Find Amber J Tresca at:

• Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
• Blog: http://aboutibd.com/
• Facebook: https://www.facebook.com/aboutibd/
• Twitter: https://twitter.com/aboutIBD
• Pinterest: https://www.pinterest.com/aboutibd/
• Instagram: https://www.instagram.com/about_IBD/

Intro Music: Acoustic Breeze - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: Sweet - Bensound.com - www.bensound.com/royalty-free-music

Did you know that more than 70% of people with IBD have reported bathroom accidents (fecal incontinence)? Did you also know that only around 20% ask for help from their physicians? It's a sensitive topic, to be sure, which is why I offer advice on how to cope with this problem and how to avoid it in the first place. If you're struggling with this issue I have tips that you can use today but the best advice is to talk to your doctor about it (and I discuss that also!).

2:53: IBD is not a pooping disease!

3:34: 8AM classes — everyone else hates them 'cause they're hung over. You hate them because IBD.

4:28: Contact the student services office at your university about getting accommodations.

5:19: IBD is covered under the Americans With Disabilities Act, which means that you can ask for reasonable accommodations.

6:23: Yeah, I'm gonna come down on coffee and how it affects your digestive tract.

8:18: Not eating/drinking in the morning: how that can be good or bad depending on circumstances.

10:13: Why a lack of appetite can work against you during an IBD flare-up.

12:00: What should come with you when you leave the house?

16:32: Making your IBD emergency kit.

22:40: Vegan Ostomy coping with a leaking appliance in his car at Canada's Wonderland (I thought he did a full change but actually he was able to change the bag) https://www.youtube.com/watch?v=55jpoNZCryw

23:19: The mental aspect of dealing with bathroom accidents is probably the most difficult one to overcome.

Resources:

• #AboutIBDPodcast on stress relief with Dr Tiffany Taft: https://soundcloud.com/amber-j-tresca/episode-11-final-mixed
• What To Do In Case Of Bathroom Accidents: https://www.verywell.com/what-to-do-in-case-of-bathroom-accidents-1942902
• Fecal Incontinence And IBD: https://www.verywell.com/fecal-incontinence-and-ibd-1943008
• The Restroom Access Act: https://www.verywell.com/the-restroom-access-act-1942432
• IBD Worst-Case Scenario Handbook: https://www.verywell.com/ibd-worst-case-scenario-handbook-1942892
• Is Caffeine Bad For Your IBD? https://www.verywell.com/is-caffeine-bad-for-your-ibd-1942678

Find Amber J Tresca at:

• Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
• Blog: http://aboutibd.com/
• Facebook: https://www.facebook.com/aboutibd/
• Twitter: https://twitter.com/aboutIBD
• Pinterest: https://www.pinterest.com/aboutibd/
• Instagram: https://www.instagram.com/about_IBD/

Intro Music: Acoustic Breeze - Bensound.com - www.bensound.com/royalty-free-music

Outro Music: Sweet - Bensound.com - www.bensound.com/royalty-free-music

How does stress affect IBD? We know that stress does not cause IBD, but it does affect the disease. How does IBD actually cause stress, and what can we do to balance our lives in such a way that it does not affect us in a negative way? I talk with my guest, Dr Taft, about how she advises patients with chronic diseases on relieving stress and the tips and tools that have worked for her and her patients in integrating a comprehensive stress relief program into daily life.

:28 The role of stress as it applies to IBD. (No, it's not "all in your head!")

1:40: Easy ways to get started on stress relief, even for people who aren't interested in it, and a reality check on how effective it is.

4:15: Some of the free apps that Dr Taft recommends for mindfulness and insomnia.

5:30: What is mindfulness?

7:45: How do I make mindfulness a habit?

11:22: But what does the research show about what stress relief techniques actually work for IBD?

13:52: Are there risks involved with trying stress relief techniques?

16:23: Stress doesn't cause IBD so why should stress relief factor into my treatment plan?

21:53: When do you need to look for more help when it comes to stress relief for IBD?

25:06: How treatment doesn't have to be long-term to be effective but could be more focused and short-term.

31:03: How do you find a therapist? How do you "try one out" to see if you are a fit? What should you look for in a therapist?

34:00: How do you know if you've found "Dr Right" or "Dr Wrong"?

Resources:

Does Stress Cause Inflammatory Bowel Disease?

https://www.verywell.com/does-stress-cause-inflammatory-bowel-disease-1942856

Do Most People With IBD Have A Mental Disorder?

https://www.verywell.com/do-people-with-ibd-have-mental-disorders-1943050

Is IBD Associated With Depression?

https://www.verywell.com/is-ibd-associated-with-depression-1942855

Featured Guest:

Dr Tiffany Taft, PsyD, licensed clinical psychologist, Oak Park Behavioral Medicine

• Blog: http://opbmed.blogspot.com/2017/08/breaking-100-chance-were-all-going-to.html
• Facebook: https://www.facebook.com/opbmed/
• Twitter: https://twitter.com/OPBMed
• Oak Park Behavioral Medicine: http://www.opbmed.com/
• Dr Taft's Research: https://www.ncbi.nlm.nih.gov/pubmed/?term=taft+th

Find Amber J Tresca at:

• Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
• Blog: http://aboutibd.com/
• Facebook: https://www.facebook.com/aboutibd/
• Twitter: https://twitter.com/aboutIBD
• Pinterest: https://www.pinterest.com/aboutibd/
• Instagram: https://www.instagram.com/about_IBD/

Credits: "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/