Working With Grief By Staying Connected:

Letters From The Ungrateful Dead

Lori La Bey talks with Deborah Shouse, a writer, editor, laughter yoga facilitator, and dementia advocate. She is the author of a new non-fiction book, Letters from the Ungrateful Dead: A Grieving Mom’s Surprising Correspondence with her Deceased Adult Daughter. Please help me welcome our friend Deborah Shouse back with us!

Also joining us is Deborah’s partner Ron Zoglin who is a writer, speaker, dementia advocate, and professional storyteller and Jacque Amweg, a licensed social worker, who works at the Solace House Counseling Program as a Team Lead.

Blog Post

Watch the Video Interview Below

https://youtu.be/irMjZ96u1iA

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/alzheimers-speaks/id986940432

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/show/255okRnEgfCUqXq1NWcrT3

Other Podcasts

https://pod.link/986940432

Dementia Map

Contact Deborah Shouse

Website  https://www.deborahshousewrites.com/

Facebook  https://www.facebook.com/deborah.shouse.7

Instagram   https://www.instagram.com/deborahshouse

LinkedIn   https://www.linkedin.com/in/deborah-shouse-00728112/

Amazon   https://www.amazon.com/dp/1953583938

Book Shop   bookshop.org

Contact Jacque Amweg

Website    https://kchospice.org/

Email   [email protected]

Phone    816-276-2717  or  913-341-0318

Address    8012 State Line Road, Suite 202, Prairie Village, KS  66208

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Today on Alzheimer's Speaks Open Mic, Lori La Bey talks with Dr. Nancy Berley who works for Tembo Health. She is an experienced General Practitioner who specializes in dementia and works with our families in the GUIDE program, a new CMS program that just rolled out in July 2024, to support families caring for a loved one diagnosed with dementia.

Learn what the GUIDE program has to offer and if you will qualify for their support.

CONTACT INFORMATION FOR TEMBO HEALTH 

Website:

https://www.Tembo.Health

Email:

[email protected]

Phone:

929-998-3626

Youtube Video

https://youtu.be/AAXzlC2YK0o

Alzheimer's Speaks Blog Post 

https://alzheimersspeaks.com/the-guide-program-for-dementia-on-alzheimers-speaks/

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast 

https://podcasts.apple.com/us/podcast/the-guide-program-for-dementia-on-alzheimers-speaks/id986940432?i=1000680745364

Listen and Subscribe to Alzheimer’s Speaks on Spotify 

https://open.spotify.com/episode/14kkXKDLazhKVfULLoKEFk

Other Podcasts 

https://pod.link/986940432

Dementia Map 

https://dementiamap.com/events/#!event/2024/12/17/share-your-story-service-product-or-tool-on-alzheimer-8217-s-speaks-open-mic

CONTACT INFORMATION FOR ALZHEIMER'S SPEAKS & DEMENTIA MAP

Website:

https://alzheimersspeaks.com

Contact Alzheimer's Speaks:

https://alzheimersspeaks.com/Contact

Website:

https://dementiamap.com

Contact Dementia Map:

https://dementiamap.com/contact

Future OPEN MIC shows are: 

Jan. 21st, 2025

Feb.18th, 2025

Mar. 18th, 2025

April 15th, 2025

May 20th, 2025 

June 17th, 2025

July 15th, 2025

Aug. 19th, 2025

Sept. 16th, 2025

Oct. 21st, 2025 

Nov. 18th, 2025

Dec. 16th, 2025

Contact us to be on the show:

https://alzheimersspeaks.com/Contact

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Hope Beyond Dementia - Empowering Families Through Storytelling

Lori La Bey talks with Author Jennifer Randazzo. After witnessing her father’s battle with Lewy Body Dementia, Jennifer created a beautiful book called, “Grandpa & Lewy,” which is a heartwarming resource to empower children while fostering empathy and awareness about the disease. She is an award-winning author and her books inspire young readers to embrace diversity and show compassion towards others. The other two books are The Empathetic Elephant and FROG - Fully Rely On God.

Learn:

1.   The fear and joy attached to dementia

2.   Ways to educate children about dementia

3.   Seeing, Recognizing, Accepting, and sharing blessings

4.   How Facebook chats & support groups can help

5.   Why having a purpose makes a difference in the quality of life

6.   Self-love

7.   Moments of respite.

Watch the Video Interview Below

https://youtu.be/wlK-GOV1_S4?si=9M8lGN0ZEaz-wXcb

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/hope-beyond-dementia-empowering-families-through-storytelling/id986940432?i=1000678955724

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/5eMY04RbsDwTPuScPBM1Kt

Other Podcasts

https://pod.link/986940432

Dementia Map

https://www.dementiamap.com/events/#!event/2024/12/3/hope-beyond-dementia-empowering-families-through-storytelling

Contact Jennifer Randazzo

Website  jenrandazzo.com

Email  [email protected]

Instagram  www.instagram.com/jenrandazzo

Faceboook  www.facebook.com/jenrandazzo

Amazon

https://www.amazon.com/s?k=Jennifer+Randazzo&i=stripbooks&crid=37II3GTD1H6AT&sprefix=jennifer+randazzo%2Cstripbooks%2C138&ref=nb_sb_noss_1

Alzheimer's Speaks Blog

https://alzheimersspeaks.com/hope-beyond-dementia-empowering-families-through-storytelling/ 

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Lori La Bey talks with Kristyn Rupp is the Music for Life Manager at MacPhail Center for Music.  Connecting Voices is a choir designed for those living with dementia and their care partners. This choir is part of the MacPhail Music for Life program specifically designed for adults 55+. 

Learn:

1.   What MacPhail Center for Music offers

2.   About Macphail’s dementia chorus

3.   How community partners are making a difference

4.   Who can participate in the chorus

5.   Find out how to get financial assistance for Connecting Voices

6.   Opportunities to volunteer

7.   To explore a new way to find purpose, passion, and engagement

Watch the Video Interview Below

https://youtu.be/DloN-YdrmBQ

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/connecting-voice-connecting-people-through-music/id986940432?i=1000677846577

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/0MoYGxB3Fl6gUeoUjf8cmi

Other Podcasts

https://pod.link/986940432

Blog Post

https://alzheimersspeaks.com/connecting-voice-connecting-people-through-music/

Dementia Map

https://www.dementiamap.com/events/#!event/2024/11/21/connecting-voice-connecting-people-through-music

Contact Information For Kristyn Rupp &  The MacPhail Center for Music

Email 

Website – www.macphail.org

Phone 612-321-0100

Facebook - https://www.facebook.com/macphailmusic

Instagram – @macphailmusic  

Twitter – macphailmusic

LinkedIn - https://www.linkedin.com/company/macphail-center-for-music

YouTube: https://www.youtube.com/user/MacPhailMusic

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Lori La Bey talks with the Executive Director of Maude’s Awards and a couple of the 2024 Maude’s Awards winners!  Joining me is

Marilyn Raichle is the Executive Director of Maude’s Awards, which was created to reward innovations that enrich the quality of life for persons living with Alzheimer’s disease and related dementias as well as their care partners. The 2024 Annual Award recipients have just been announced.

Arlieta Hall was a caregiver for her father who lived with Alzheimer’s disease. She used improv and stand-up comedy to communicate with him and took videos of their everyday life which ultimately led to the creation of a documentary: “Finding Your Laughter.”

Roxana Delgado is a Professor and Director of the Caring for the Caregiver program of the School of Nursing at the University of Texas Health Science Center at San Antonio

Learn: 

1. About Maude's Awards - Who can apply, what they might win, and how and when you can apply!

2. Find out about Arlieta Hall, the use of humor with dementia, and how it's changing lives

3. About the work Roxana Delgado, PhD is doing at the University of Texas Health Science Center of San Antonio - Caring for the Caregiver Program (C4CP) came to be and how caregivers benefit from this.

Watch the Video Interview Below

https://youtu.be/BMg2PWeebXk

Other Podcasts

https://pod.link/986940432

Contact Information

Maudes Awards

www.maudesawards.org

Arlieta Hall

Website  www.findingyourlaughter.com

Website  https://arlietahall.com

Roxana Delgado, PhD - University of Texas Health Science Center of San Antonio

Website  https://utcaregivers.org

Website   www.uthscsa.edu

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

A Roadmap for An Uncertain Journey Lori La Bey talks with Guy Slowik, a retired Orthopedic Surgeon who for decades, has been interested in patient education.

Guy developed one of the first encyclopedic-type health resources when the internet was founded which served as the foundation for Yahoo Health – the largest health information site online for some 12 years.

Also joining us is Renee Despres, PhD, MPH, a freelance journalist, English literature scholar, and health systems consultant. Guy and Renee co-authored along with Candace Greenwood and Bernard Isaacs the new book Alzheimer’s The Uncertain Journey – Navigating The Challenges – The Indispensable GUIDE for Caregivers and Families.

Their book is a bible-like resource that takes a realistic approach to care well giving hope, strategies, and resources to live well.

Learn:

1. Why the book Alzheimer’s The Uncertain Journey – Navigating The Challenges, is the indispensable guide for caregivers and families.

2. How is this book different from other books on the market?

3. Who is the perfect audience for this book?

4. What is the single most important thing the Authors want you to walk away with?

Video Interview

https://youtu.be/yoLrSv8Fr_s

Apple Podcast

https://podcasts.apple.com/us/podcast/a-roadmap-for-an-uncertain-journey-on-alzheimers-speaks/id986940432?i=1000674937014

Spotify Podcast

https://open.spotify.com/episode/4PS86IhGkDZs9LydaFvZaT

Other Podcasts

https://pod.link/986940432

Alzheimer’s Speaks Blog Post

https://alzheimersspeaks.com/a-roadmap-for-an-uncertain-journey-on-alzheimers-speaks/

Dementia Map

https://www.dementiamap.com/events/#!event/2024/10/29/a-roadmap-for-an-uncertain-journey-on-alzheimer-apos-s-speaks

Contact Information

Website www.YourMedicalSource.com/Alzheimers

X - Twitter @BeatAlzheimers https://x.com/BeatAlzheimers

Facebook @YourMedicalSource https://www.facebook.com/YourMedicalSource

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Today on Alzheimer’s Speaks we talked to representatives of the MacPhail Music Center with Connecting Voices Chorus, Artifcts, Meaningful Memory Makers, and Rakhma Homes. 

MacPhail Music Center

https://www.Macphail.org

https://www.Macphail.org/Connecting-Voices-Chorus

Artifcts 

https://Artifcts.com

[email protected]

Meaningful Memory Makers

https://www.MeaningfulMemoryMaker.com

Rakhma Homes

https://www.Rakhma.org

These conversations are always interesting.

Here are future recording dates if you would like to join us.

Nov. 19th

Dec. 17th

Contact Us To Be On The Next Open Mic

https://alzheimersspeaks.com/be-a-guest/

Website

https://alzheimersspeaks.com/alzheimers-speaks-radio/

YouTube

https://youtu.be/Dda6Z8yzKmw

Apple Podcast

https://podcasts.apple.com/us/podcast/open-mic-on-alzheimers-speaks/id986940432?i=1000673717634

Spotify

https://open.spotify.com/show/255okRnEgfCUqXq1NWcrT3

Pod Links

https://pod.link/986940432

Dementia Map

https://www.dementiamap.com/events/#!event/2024/10/20/open-mic-on-alzheimer-apos-s-speaks

Blog Post

https://alzheimersspeaks.com/open-mic-on-alzheimers-speaks-oct-19th-2024/

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Navigating Dementia with Storytelling and Community Support

Lori La Bey talks with Karen Murdock a Founding Partner of Treasured Photo Collections and Creator of Voiced Memories. She is a professional photo manager with extensive experience helping families preserve their most cherished memories, and a dedicated caregiver to a loved one with Lewy body dementia. Today, she joins us to discuss the intersection of brain health, community, and the power of memories in enhancing the quality of life for those affected by dementia.

Learn:

1. The importance of photo organization
2. How photos can be leveraged to engage
3. What is Voiced Memories
4. Multi-Sensory Engagement
5. Holistic Care
6. Life Reviews
7. Reminiscing

Watch the Video Interview Below

https://youtu.be/T0NPPjqbtkk

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://open.spotify.com/episode/6HQHYjMeeeCeXw8vPtGFQn

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/show/255okRnEgfCUqXq1NWcrT3

Other Podcasts

https://pod.link/986940432

Dementia Map

https://www.dementiamap.com/events/#!event/2024/9/26/navigating-dementia-with-storytelling-and-community-support

Alzheimer's Speaks Blog

https://alzheimersspeaks.com/navigating-dementia-with-storytelling-and-community-support/

Contact Karen Murdock

Reminiscence Review Newsletter and Information on managing printed photo collections 

www.photocollections.ca

Direct Link

www.voicedmemories.ca

Facebook Users

https://www.facebook.com/VoicedMemories

Voiced Memories Community Circle:  

https://meetings.voicedmemories.ca 

Twiddle

https://4twiddles.com

Seni

https://seni-usa.com/en_US

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Lori La Bey talks with Marty Agather the Vice President of Sales & Marketing for Embrace Prevention Care. In this role, he is responsible for leading the efforts of the company to connect with older adult patients, their caregivers, physicians, and other healthcare providers and payors. 

Embrace Prevention Care is a healthcare company that helps complex older adult patients take action to reduce their risk of hospitalizations. This keeps them independent and allows them to continue to do what matters most to them.

Learn:

1. What is the GUIDE program for dementia?
2. What is the current environment for dementia care?
3. What are the goals of the program and who will it serve?
4. Will all providers offer the GUIDE program for dementia?
5. How does Guide work?
6. Who is eligible for the program?
7. Are care partners served through the GUIDE program too?
8. How do you sign up for Guide?

Contact Embrace Prevention Care On The Guide Dementia Care

Website    

https://embracepreventioncare.com/dementia-care/

Email     

Phone 302-329-8452 

Guide Dementia Program Information

https://www.cms.gov/search/cms?keys=guide

Frequently Asked Questions About Guide

https://www.cms.gov/priorities/innovation/guide/faqs

List of Guide Providers

https://www.cms.gov/blog/guiding-improved-dementia-experience-clearing-path-comprehensive-high-quality-dementia-care  

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Old Mother Blackbird takes flight for celebrated singer-songwriter Sophie Bancroft  

Lori La Bey talks with UK-based singer-songwriter Sophie Bancroft, whose award-winning short film - Old Mother Blackbird was recently included in a dementia-responsive program of short films, curated for long-haul flights as part of their inflight entertainment package. 

Learn:

1. What is the film Old Lady Blackbird about?
2. How did COVID-19 prompt this creation?
3. How does Old Lady Blackbird compare to caring for others?
4. To create art in other forms.
5. About Sophie's book and greeting cards for Old Lady Blackbird.
6. What does Deepness Dementia Media do?
7. What is Dementia the Musical about and when will it air?
8. How is Virgin Atlantic supporting your work?

Watch the Video Interview Below

https://youtu.be/IuG8tko44lg

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/old-mother-blackbird-takes-flight-for-celebrated-singer/id986940432?i=1000668936847

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/0fPZU57rz6Onsy9Hny1denhttps://open.spotify.com/episode/0fPZU57rz6Onsy9Hny1den

Other Podcasts

https://pod.link/986940432

Alzheimer's Speaks Blog Post

https://alzheimersspeaks.com/blog/

Dementia Map

https://www.dementiamap.com/events/#!event/2024/9/10/old-mother-blackbird-takes-flight-for-celebrated-singer-songwriter-sophie-bancroft

Contact Sophie Bancroft

Website  www.sophiebancroft.co.uk, 

Instagram  Instagram https://www.instagram.com/sophiebancroftmusic/

X - Twitter  https://x.com/sjbancroft

Facebook https://www.facebook.com/sophie.bancroft.7

YouTube  https://www.youtube.com/@Sophiejanebancroft

Watch Old Mother Blackbird on YouTube (5m 39sec) 

https://www.youtube.com/watch?v=XlVs2GjPs5M

Deepness Dementia Media

https://www.deepnessdementiamedia.com

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.