AS Info Share

A Nobel Prize-winning discovery could change the landscape of Axial Spondyloarthritis / Ankylosing Spondylitis forever.

In this episode of AS Info Share, we break down the 2025 Nobel Prize in Medicine and what it means for our community. We’re moving past just "blocking" inflammation and moving toward Treg Therapies—a revolutionary approach that uses the body’s own Foxp3 gene to restore balance and stop the attack on the spine.

We discuss:

• The Foxp3 Blueprint: Why this "Master Controller" is the key to shutting down the AS fire.
• Tregs vs. HLA-B27: How this new science can override our genetic glitches.
• The Future of Treatment: From Low-dose IL-2 to "Precision Tregs" currently in clinical trials.
• Functional Cures: What it means to "re-educate" your immune system for long-term remission.

This discovery may provide the most realistic path to a future without daily pain. Join us as we explore the new blueprint for AS.

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Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.

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How do you manage the daily realities of life with Ankylosing Spondylitis and Axial Spondyloarthritis?

In Part 2 of our series with Sean Ewert from the Spondylitis Association of America (SAA), we look at the support systems available to you. Sean shares his unique perspective on how the SAA is bridging the gap between patients and rheumatologists and offers vital advice for those struggling with the mental health challenges of chronic illness.

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Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.

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The SAA Website:spondylitis.org

Official WYASO Event Page: spondylitis.org/walk-your-as-off/

Link to join on Zoom for Walk Your AS Off Day May 3rd: https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration

Create an account to log steps and join a team: https://spondylitis.org/my-account/?spondylitis-steps=1

Donation: https://spondylitis.org/get-involved/donate-to-walk-your-as-off/

Fundraise: https://spondylitis.raiselysite.com/

Contact Sean for questions: [email protected]

This is a celebration! Whether you’re walking, stretching, or finding your own unique way to move, we want to see it. Post your photos and videos using:

#WalkYourASOff | #WYASO

Link to step converter:

• World AS Day: Remember, World AS Day falls the day before the walk. Wear your orange, share your story, and help make our community visible!
• Step Converters: Not walking? No problem. You can use a step converter (search Google for "Activity to Step Converter") to turn yoga, swimming, or even household chores into mileage for your team!

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📲 Follow & Support AS Info Share

Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:

☕ Support Our Work

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🌐 Website

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📘 Facebook

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#AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #SpondylitisAssociationOfAmerica #ASInfoShare

#WalkYourASOff | #WYASO

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Movement is medicine. For those living with Ankylosing Spondylitis (AS) and Axial Spondyloarthritis (AxSpA), staying active isn't just a goal—it’s a vital part of managing the condition.

In part one of this special two-part series on AS Info Share, we sit down with Sean Ewert, the Director of Member Engagement for the Spondylitis Association of America (SAA). We dive deep into the origin of the "Walk Your AS Off" (WYASO) event and discuss why this movement is more than just a walk—it’s a celebration of resilience.

In this episode, Sean explains how the event can help you stay active throughout the year, how you can be part of the celebration, and the many ways you can support the movement.

LET’S DO THIS!

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Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.

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The SAA Website:spondylitis.org

Official WYASO Event Page:spondylitis.org/walk-your-as-off/

Link to join on Zoom for Walk Your AS Off Day May 3rd: https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration

Create an account to log steps and join a team: https://spondylitis.org/my-account/?spondylitis-steps=1

Donation: https://spondylitis.org/get-involved/donate-to-walk-your-as-off/

Fundraise: https://spondylitis.raiselysite.com/

Contact Sean for questions: [email protected]

This is a celebration! Whether you’re walking, stretching, or finding your own unique way to move, we want to see it. Post your photos and videos using:

#WalkYourASOff | #WYASO

Link to step converter:

• World AS Day: Remember, World AS Day falls the day before the walk. Wear your orange, share your story, and help make our community visible!
• Step Converters: Not walking? No problem. You can use a step converter (search Google for "Activity to Step Converter") to turn yoga, swimming, or even household chores into mileage for your team!

----------------------------------------------------------------------------

📲 Follow & Support AS Info Share

Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:

☕ Support Our Work

https://buymeacoffee.com/asinfoshare

🌐 Website

https://asinfoshare.com

📘 Facebook

https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr

📷 Instagram

https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr

🐦 X (formerly Twitter)

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#AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #SpondylitisAssociationOfAmerica #ASInfoShare

#WalkYourASOff | #WYASO

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In our final episode with patient advocate Michael Mallinson, we peel back the layers of the "invisible" side of Axial Spondyloarthritis. Living with a chronic condition isn't just a physical battle; it’s a mental one, too. We discuss the critical role of mental health support and why it should be a standard part of every treatment plan.

We also dive deep into a major gap in the healthcare system: the diagnostic challenges women face. From being dismissed by doctors to waiting years longer than men for an accurate diagnosis, we explore why the female experience with AxSpA is often misunderstood and what needs to change.

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Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.

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ASIF - Axial Spondyloarthritis International Federation

Canadian Spondyloarthritis Association http://www.sparthritis.ca

NASS - National Axial Spondyloarthritis Society

http://www.actonaxialspa.com

Spondylitis Association of America

http://www.spondylitis.com

ASAS - Assessment of Spondyloarthritis International Federation

http://www.asas-group.org

EULAR - European Alliance of Associations for Rheumatology

http://www.eular.org

ACR - American College of Rheumatology

http://www.rheumatology.org

SPARTAN - Spondylarthritis Treatment and Training Network

https://spartangroup.org/

Axial Spondyloarthritis Resources

https://www.facebook.com/profile.php?id=100089425921229

PubMed

https://pubmed.ncbi.nlm.nih.gov/

Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023

https://amzn.to/3NnXbKW

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📲 Follow & Support AS Info Share

Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:

☕ Support Our Work

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🌐 Website

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📘 Facebook

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📷 Instagram

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#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #ASDiets #ASInfoShare

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Biologics: life-changing medicine or something to fear?

And can a specific diet really 'cure' an autoimmune condition?

On this episode, we’re cutting through the noise.

AxSpA patient advocate Michael Mallinson is back with us to tackle the anxiety surrounding medication and the dietary myths that flood our social feeds.

You don’t want to miss this.

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Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.

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ASIF - Axial Spondyloarthritis International Federation

http://www.asif.info

Canadian Spondyloarthritis Association http://www.sparthritis.ca

NASS - National Axial Spondyloarthritis Society

http://www.actonaxialspa.com

Spondylitis Association of America

http://www.spondylitis.com

ASAS - Assessment of Spondyloarthritis International Federation

http://www.asas-group.org

EULAR - European Alliance of Associations for Rheumatology

http://www.eular.org

ACR - American College of Rheumatology

http://www.rheumatology.org

SPARTAN - Spondylarthritis Treatment and Training Network

https://spartangroup.org/

Axial Spondyloarthritis Resources

https://www.facebook.com/profile.php?id=100089425921229

PubMed

https://pubmed.ncbi.nlm.nih.gov/

Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023

https://amzn.to/3NnXbKW

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📲 Follow & Support AS Info Share

Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:

☕ Support Our Work

https://buymeacoffee.com/asinfoshare

🌐 Website

https://asinfoshare.com

📘 Facebook

https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr

📷 Instagram

https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr

🐦 X (formerly Twitter)

https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw

▶️ YouTube

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#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #ASDiets #ASInfoShare

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Hosted on Acast. See acast.com/privacy for more information.

Stop Feeling Dismissed: How to Advocate for Your AxSpA Care

Have you ever walked out of a doctor’s office feeling unheard? In this episode of AS Info Share, we continue our deep-dive interview with patient advocate Michael Mallinson. We’re tackling the "doctor-patient" dynamic head-on, discussing how to handle clinical dismissal and providing you with the tools to become a more educated, confident advocate for your own health.

In this episode, you’ll learn:

What to do when a medical professional minimizes your symptoms.

How to bridge the communication gap with your healthcare team.

Practical steps to transition from "patient" to "empowered advocate."

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Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.

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WORLD AS DAY

https://asif.info/worldasday/

WALK YOU AS OFF

https://spondylitis.raiselysite.com/

ASIF - Axial Spondyloarthritis International Federation

http://www.asif.info

Canadian Spondyloarthritis Association http://www.sparthritis.ca

NASS - National Axial Spondyloarthritis Society

http://www.actonaxialspa.com

Spondylitis Association of America

http://www.spondylitis.com

ASAS - Assessment of Spondyloarthritis International Federation

http://www.asas-group.org

EULAR - European Alliance of Associations for Rheumatology

http://www.eular.org

ACR - American College of Rheumatology

http://www.rheumatology.org

SPARTAN - Spondylarthritis Treatment and Training Network

https://spartangroup.org/

Axial Spondyloarthritis Resources

https://www.facebook.com/profile.php?id=100089425921229

PubMed

https://pubmed.ncbi.nlm.nih.gov/

Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023

https://amzn.to/3NnXbKW

----------------------------------------------------------------------------

📲 Follow & Support AS Info Share

Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:

☕ Support Our Work

https://buymeacoffee.com/asinfoshare

🌐 Website

https://asinfoshare.com

📘 Facebook

https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr

📷 Instagram

https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr

🐦 X (formerly Twitter)

https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw

▶️ YouTube

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#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #WorldASDay2026 #ASInfoShare

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In this episode of AS Info Share, we sit down with patient advocate Michael Mallinson to discuss an important event for the Axial Spondyloarthritis (AxSpA) community—World AS Day. Observed each year on the first Saturday in May, this global awareness day brings together patients, advocates, and organizations to raise awareness, promote education, and support those living with Axial Spondyloarthritis, formerly known as Ankylosing Spondylitis. Michael shares insights about the significance of the day, why the name of the condition has evolved, and how events like Walk Your A.S. Off Day help build community and encourage advocacy.

Because Michael shared so much valuable information, we’ve decided to split our conversation into multiple episodes, each focusing on different aspects of living with and advocating for those with Axial Spondyloarthritis. In this installment, we focus on awareness and the importance of the global AS community coming together. Be sure to tune in to upcoming episodes as we continue the discussion, covering topics such as patient education, advocating for yourself when dealing with dismissive healthcare providers, mental health support, and the unique challenges women face in getting diagnosed and treated.

Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.

https://asif.info/worldasday/

https://asif.info/

https://spondylitis.raiselysite.com/

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📲 Follow & Support AS Info Share

Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:

☕ Support Our Work

https://buymeacoffee.com/asinfoshare

🌐 Website

https://asinfoshare.com

📘 Facebook

https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr

📷 Instagram

https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr

🐦 X (formerly Twitter)

https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw

▶️ YouTube

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#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #WorldASDay2026 #ASInfoShare

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Curious about cannabis for Axial Spondyloarthritis / Ankylosing Spondylitis? In this episode, we break down what THC and CBD can and can’t do for pain, inflammation, and sleep. We compare them to standard AS treatments and explore the latest research.

Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.

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📲 Follow & Support AS Info Share

Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:

☕ Support Our Work

https://buymeacoffee.com/asinfoshare

🌐 Website

https://asinfoshare.com

📘 Facebook

https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr

📷 Instagram

https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr

🐦 X (formerly Twitter)

https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw

▶️ YouTube

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#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #fatigue #chronicfatigue #tired #sleep #sleepaid #rheumatology #inflammatorydisease #autoimmunedisease #ASInfoShare

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Living with Axial Spondyloarthritis / Ankylosing Spondylitis (AS) often means living with relentless fatigue. In this episode of AS Info Share, we dive into what causes that deep exhaustion from chronic inflammation and pain, to poor sleep and mental health struggles. You'll learn possible strategies to reduce fatigue, improve sleep, and boost your energy. We also explore helpful tools and sleep aids that can make a real difference. Whether you’re newly diagnosed or managing AS for years, this episode offers practical insights and support you can use today.

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📲 Follow & Support AS Info Share

Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:

🌐 Website

https://asinfoshare.com

📘 Facebook

https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr

📷 Instagram

https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr

🐦 X (formerly Twitter)

https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw

▶️ YouTube

https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV

☕ Support Our Work

https://buymeacoffee.com/asinfoshare

💬 Leave a comment

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#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #fatigue #chronicfatigue #tired #sleep #sleepaid #rheumatology #inflammatorydisease #autoimmunedisease #ASInfoShare

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If a treatment didn’t work, you didn’t fail.

In this episode of AS Info Share, we explore why it’s common for people with Axial Spondyloarthritis (AxSpA) / Ankylosing Spondylitis (AS) to feel like they’ve “failed” a medication, and why that mindset needs to change.

Whether you’re on your first medication or your fifth, this episode is a reminder that you’re not alone.

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📲 Follow & Support AS Info Share

Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:

🌐 Website

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📘 Facebook

https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr

📷 Instagram

https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr

🐦 X (formerly Twitter)

https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw

▶️ YouTube

https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV

☕ Support Our Work

https://buymeacoffee.com/asinfoshare

💬 Leave a comment

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#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #biologics #Inflammation #ArthritisRelief #backpain #rheumatology #inflammatorydisease #autoimmunedisease #ASInfoShare

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