AS Info Share

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Confused by all the different names for Ankylosing Spondylitis? You’re not alone.

In this episode, we break down the history and terminology behind Axial Spondyloarthritis (axSpA) — and explain the difference between Ankylosing Spondylitis (AS), Radiographic axSpA (r-axSpA), and Non-radiographic axSpA (nr-axSpA).

We’ll explain:

• Why AS used to be the only name used
• How MRI changed the game in early diagnosis
• What axSpA really means — and why it’s the new umbrella term
• The difference between r-axSpA and nr-axSpA
• Why the terms are still often used interchangeably
• How to recognize the signs early and get diagnosed

Whether you’re newly diagnosed or just trying to understand all the names and acronyms, this episode will help you make sense of it all.

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Ankylosing Spondylitis Info Share Podcast - An Interview with NASS Board Trustee Gillian Eames

In this episode of AS Info Share, we’re joined by Gillian Eames, a long-time advocate and trailblazer in the Ankylosing Spondylitis community.

Gillian has lived with AS for over 40 years and now serves as a Trustee for the National Axial Spondyloarthritis Society (NASS).

She shares her powerful story of being part of one of the early biologic drug trials, the impact it had on her health, and how it led her to advocate for broader access to these life-changing treatments. We also discuss her ongoing work in helping others with AS access the support they need, as well as her involvement in awareness efforts such as the “Walk Your AS Off” campaign.

This is an honest and insightful conversation with someone who has been on the front lines of change, both personally and publicly.

Learn more about NASS at nass.co.uk

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In this episode, we discuss two powerful treatment options for Ankylosing Spondylitis, biologics and JAK inhibitors. Learn the differences between the treatment options and how they work to help manage Ankylosing Spondylitis.

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In this episode, we explore the truth behind the HLA-B27 gene and its connection to ankylosing spondylitis (AS). We break down common misconceptions, especially those circulating on social media, and explain why a positive or negative test result isn't enough for a diagnosis. You'll learn how misinterpretation of this gene — by both patients and doctors — can lead to misdiagnosis, and why a full clinical picture is essential for understanding AS.

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In this segment, I share my approach to managing Ankylosing Spondylitis (AS) through a "Seven Pillars" framework.

I share insights into each pillar that I used on my journey toward improved well-being with AS. 

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A quick update from my vacation in Rome, Italy, with a lot of walking and stair climbing.

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Join us as we chat with Kamal Joshi, creator of Ankylosing Spondylitis: Beyond the Pain! Kamal is dedicated to raising awareness and helping others with AS live healthier, symptom-free lives. He shares his personal journey, practical strategies for pain relief, and wellness tips that can make a real difference.

💡 Whether you're newly diagnosed or have been battling AS for years, this episode is packed with valuable insights you won’t want to miss!

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We interview AS Warrior, Ivy Asmus, host of the blog Uniquely Me & Loving It: My Journey with Ankylosing Spondylitis.

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Our first episode will briefly introduce what the show is about and what we hope to achieve. Enjoy, and please stay tuned.

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