Mike Carr highlights new CDC data showing autism rates rising from 1 in 36 eight-year-olds in 2020 to 1 in 31 by 2022. Reflecting on raising his profoundly autistic son diagnosed in 1990—when rates were about 1 in 10,000—Carr argues the increase isn't just better diagnosis but a real, troubling trend. He suggests RFK Jr.'s claim that autism is a more urgent crisis than COVID deserves attention, given the heavy financial and caregiving burdens. Carr stresses the need for clearer communication about autism’s complexity and describes how his initiatives, Autism Labs and J13, aim to use technology and expertise to deliver better, more affordable care.

Mike Carr, a father of a 35-year-old son with severe autism, shares his personal experience managing Pica behavior—when individuals eat non-food items. His son has ingested everything from rocks and leaves to toothpaste and deodorant, once even biting into a chlorine tablet from a pool skimmer, which led to a serious health scare. Mike offers practical solutions they've discovered over the years, such as using polyester or knit shirts and cloth napkins to deter chewing, locking up tempting non-edibles like deodorant and toothpaste, and ignoring attention-seeking behaviors when safe. He also mentions possible nutritional causes like iron or zinc deficiencies and recommends a helpful resource, “Pica: A Guide for Professionals,” for additional support.

Creating a safe, structured home for a profoundly autistic child means thinking ahead to prevent risks. When my son Michael ingested a chlorine tablet due to pica, it reinforced the need for smart locks, alarms, and cabinet locks to secure hazards and prevent wandering. Managing water intake is also crucial, so we use thumb valves and toilet restrictions. Simple, cost-effective solutions—like a binder clip on a shower door—help balance safety with practicality. Organization fosters independence, with labeled cabinets making daily routines easier. Ultimately, it’s about creating a space that’s both safe and empowering for our child to thrive.

In this episode, parent Mike Carr highlights the power of empathy, creativity, and community in raising a profoundly autistic child. By meeting their adult son Michael’s needs with compassion, fostering teamwork with humor and purpose, and collaborating with schools and insurers, challenges become opportunities. With positivity and collaboration, both the child and caregivers can thrive together. 

When Mike and Kay Carr’s son Michael, who has severe autism, aged out of school services, they faced limited options and heartbreaking rejections from programs unable to handle his needs. Frustrated but determined, they partnered with Dr. Nina Zuna at UT to create a unique program involving multiple departments. Students earned credit while providing therapy and support for Michael, fostering his growth and gaining invaluable experience. Though funding challenges forced them to scale back, the Carrs continue to collaborate with students, improving Michael’s care and sharing their journey to inspire and help other families facing similar struggles.

Mike Carr, a parent of a severely autistic adult, envisions AI "Doers" as transformative personal assistants. These advanced tools would seamlessly handle daily tasks, monitor health through wearables, and, for autistic individuals, analyze data to identify stressors, track positive experiences, and offer tailored insights. This innovation holds the potential to improve caregiving, enhance quality of life, and provide invaluable support to families like his.

This is the heartfelt story of a father navigating the challenges of raising a severely autistic son. One particularly overwhelming day—filled with work stress, a difficult morning, and no time for himself—he went for a run to clear his head and was struck by a car. Thankfully, he survived with minor injuries, but the experience left him reflecting on his life.
He shared how raising his son brings constant challenges: financial strain, sleepless nights, and missed plans. Yet, it’s the little moments—his son’s spontaneous hugs and pure affection—that make every sacrifice worthwhile. He encourages other parents to focus on these unique joys, as they can bring light even on the hardest days.

As a parent navigating the challenges of supporting an adult with severe autism, I took a closer look at AI tools—ChatGPT, Claude, Perplexity Pro, and Gemini Deep Research—to see how they could help parents like us. ChatGPT and Claude gave general advice, but Claude caught my attention by sharing relatable fictional case studies. Perplexity Pro provided references, but it felt like you had to dig for the gold. Then there’s Gemini—it delivered tons of info, including research plans and real-world examples, though not always specific to severe autism. While none fully captured the unique challenges we face, Gemini stood out for its sheer amount of helpful content, making it my top pick for research, even with its quirks.

Behind every extraordinary journey is a true MVP. For families navigating profound autism, that MVP often wears many hats. Mike Carr’s wife, Kay, embodies this role with tireless dedication—coordinating care, managing therapy, and even creating custom solutions like an iPad cover for their son. Mike’s heartfelt reflection reminds us all to honor the unwavering strength, love, and creativity that mothers bring to the table. Because behind every family’s strength is someone quietly, yet heroically, holding it all together.

In this moving episode, Mike Carr shares the deeply personal challenges of safeguarding children with profound autism, offering a window into the constant vigilance required to protect those we love most. He recounts a heart-stopping moment when a miscommunication at school led to a child running dangerously close to a busy street—proving that even the most trusted spaces can pose unexpected risks.
At home, Mike has turned his love into action, creating five layers of security to shield his son, from smart locks to cameras, crafting a haven in an often unpredictable world. But he also opens up about how even well-meaning institutions can fall short, recalling a fire drill when school doors were mistakenly left unlocked, exposing vulnerabilities in the system.
Mike’s heartfelt message resonates deeply: safety isn’t just about precautions; it’s about constant vigilance, clear communication, and proactive preparation. "You can never be too safe," he reminds us—a simple but powerful truth for families navigating these challenges. This episode is a comforting, hope-filled reminder that every effort to ensure safety matters—and that love is the driving force behind it all.