AWOL Zebra : Fascia and living with hEDS

Everyone has Fascia. It’s how you handle it that makes the difference. Don’t give up the fight.

I fell. But I got up. Have you worked on your fascia today?

I did my little workout and I’m heading home via the 7-Eleven to get my extra large big gulp and to finish my walk home. Join me! Every little activity can turn into repatterning your Fascia.

Being an empty nester and having a husband out working. I am left with a lot of time on my hands, which can be a good and a bad thing. Join me???

There is no handbook for this illness. But I am determined to share as much and give you as best of a guideline as possible to make the most of what you’ve been given.

Took my one and only to college and now trying to see the direction my life is going.

Just because it feels like it’s over doesn’t mean it is. Every movement can be therapy.

The Sound Of A Bucket List. Meet Ella Coonen. The subject of a documentary directed by David Kaye. I was honored to get the opportunity to meet this incredible young woman. See how she is managing her life after receiving one of several diagnoses last year. EDS being one of them. A rare genetic variation that will cause her to lose her hearing entirely.

Every minute I have to work on my body. If I had to do my hair like I did in the 80s today, I would never be out in public.

This is not what I expected to be doing at the age of 56. I’m not breaking records or anything, but I’m making it and managing.