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On Today's Episode: Kristin and Tiffany chat about "The Plan" as it relates to Transplant and/or MCS social work. This episode takes a broad look at the importance of transplant planning as it relates to your patient. We review the components of a transplant plan and why this is important. We will explore each element of this transplant plan more in depth during future episodes.
While researching and preparing for this episode, the main components of planning for transplant/LVAD remained consistent: An identified caregiver/support plan as outlined by the medical team; Financial planning; Relocation plan for pre and/or post; and having a plan for the emotional/mental impact of Transplant/LVAD.
CMS requires appropriate plan to be in place to address the psychosocial factors of transplant, though the details may vary by center based on your institutions policy
Cardiac Transplant Postoperative Management and Care : Critical Care Nursing Quarterly (lww.com)
“addressing psychosocial aspects of transplantation is vital in the patient's success post transplantation. Often patients have been dependent upon their families and health care teams for lengthy periods prior to transplantation. Some of the vital components to a patient's success are social support for both family and health care providers, faith, optimism and a sense of control. Patients who lack psychosocial support after transplant may develop an altered functional status, greater amounts of medication side effects, increased levels of physical symptomologies, and other comorbidities. Therefore, it is imperative that patients and their families are given tools to succeed.”
Transplant Living.org
- Select your primary support person. Choose someone you feel close to who has the time, health, and flexibility to be your caregiver. You need to know you are not a burden to this person
- Organize your personal affairs. Consider filling out an advanced directive, writing a will, and sharing access to bank accounts, e-mail, or blogs with a trusted loved one. You may also need to fill out Family Medical Leave Act, insurance, or loan deferment paperwork.
- Consider dependent care. Find someone you trust and set up a plan to take care of your children and/or pets.
- Arrange transportation. You will want to plan how to get to the transplant center quickly when you get the call that an organ is available. Be sure to make these arrangements well in advance.
State Family and Medical Leave Laws (ncsl.org) Paid Family Leave: 10 states—California, Colorado, Connecticut, Massachusetts, Maryland, New Jersey, New York, Oregon, Rhode Island, and Washington—and the District of Columbia currently offer paid family and medical leave. All state programs are funded through employee-paid payroll taxes, and some are also partially funded by employer-paid payroll taxes.
Thanks for listening!
Show Disclaimer: The information shared on this podcast is for informational and/or entertainment purposes only and is HIPPA compliant. The information shared on this podcast comes from two Certified Clinical Transplant and Mechanical Circulatory Support Social Workers, the views and opinions expressed are our own and not affiliated with any specific institution / organization but to the community of transplant and MCS Social Work at Large. The information shared here is for educational and entertainment purposes and is not meant as a substitute for medical advice, diagnosis, or treatment. Furthermore, it is not meant to override policies or guidelines for any institution or organization.
Beats by Transplant Social Work, Hosts Kristin &Tiffany, and affiliated guests and programs expressly disclaim responsibility, and shall have no liability, for any damages, loss, injury, or liability whatsoever suffered as a result of your reliance on the information contained in this podcast or in any Media; and none of the persons and entities noted above endorse specifically any test, treatment, or procedure mentioned on the show. Always consult your own health care provider before making any healthcare decisions or for guidance about a specific medical condition.
This podcast is intended for social workers that work in the field of transplant and/or LVAD. If you are a patient pursuing a transplant or LVAD or the caregiver of a patient, we welcome you here. Although we are transplant social workers we are not your transplant social workers. We hope topics discussed here may lead you to further discussions with your own transplant social worker. We want this to be a safe space to learn, be refueled, be heard, and feel understood. We want to challenge each other to be the best we can for ourselves and our patients. We are often told what to do, but there is not always time to explore “the why” you do it.