Because We Are Strong

Welcome back to another episode of Because We Are strong. This week we are sitting down with Manisha, the Patient Doc and author of Butterflies, Boards and Blessings: A Doctor’s Journey to Thriving with Lupus. 

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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Hey Peeps! Welcome back to another episode of the Because We Are Strong podcast ! Where every week we sit down with chronic illness warriors across the globe in the hopes that sharing their stories will help bridge the gap between rare diseases and the rest of the world. This week we are chatting with Felicia, a Mother, Wife, Book Nerd, Podcaster, Vasculitis Warrior and Chronic Illness Advocate. Through her struggles with her health, she has learned how important it is to keep going, to advocate for yourself. 

Meet Felicia:
I'm a Mom, Wife, Book Nerd, Podcaster, Vasculitis Warrior and Chronic Illness Advocate. Through my struggles with my health ive learned how important it is to keep going, to advocate for yourself. and to find support in other rare disease warriors.

Connect With Felicia:
Fight Like a Mama Podcast:
iTunes:https://podcasts.apple.com/us/podcast/fight-like-a-mama-podcast/id1530311551
Spotify: https://open.spotify.com/show/7kM7BD5AFBdfV8vbB6hmZV?si=VAafJPG7TViqtaXR9wQOFQ&utm_source=copy-link
Instagram: instagram.com/fightlikeamama

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show

Welcome back for another episode of Because We are Strong. Today we are sitting down with Chardell, a registered dietician and mother of 3. One of Chardell’s children has Phelan-McDermid Syndrome (22q13 deletion). Currently, she is helping special needs parents take better care of their families with healthy eating.

Meet Chardell:

Chardell Buchanan is a Registered Dietitian and mom to three children, one of whom has Phelan-McDermid Syndrome or 22q13 Deletion. Currently, she is helping special needs parents take better care of their families with healthy eating.

 www.chardellbuchanan.com
Instagram @stronger_for_ben
Facebook @ChardellBuchananNutrition
https://m.youtube.com/watch?v=95EOIpJNUTM
www.pmsf.org

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show

This week we are sitting down with Patti, a writer, book coach, rare disease advocate, and author of loving large, a mother's rare disease memoir.

Meet Patti:

I'm an author, writing coach, and publishing project manager, and a proud #memoiraholic. I adore non-fiction and especially the memoir and personal narrative genre.

I'm an architect of story. I help people design and build books. I love the way that books are constructed — their infrastructure begins from the scaffolding of an outline, chapter, scenes, backstory, and reflection. The thematic structure is revealed like specks of color; breadcrumbs for the reader to find their way to your conclusion.

I'm a magnet for the story. I was built for listening, cultivating memories, and tugging at tales. I'm that person you meet at a dinner party, between the shelves at the library or in the coffee shop line that you find yourself telling your history to.

I happen to have a Bachelor's and a Master's degree, and no they aren't in English lit creative writing. My education explains my appreciation for formal writing, and my many years of coaching aspiring university essay writers.

https://pattimhall.com/loving-large-book/

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show

Hey Peeps! Welcome back for another episode of Because we are strong! Today we are sitting down with Autumn, who has a rare medical condition called UCD also known as  UCD. Autumn is 28 years old and was diagnosed with UCD when she was a young infant. 

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show

This week on the BECAUSE WE ARE STRONG PODCAST we featured Gerry a mom and PHN warrior; meet Gerry

In 2018, I was diagnosed with Idiopathic Pulmonary Arterial Hypertension. 

​Since diagnosis, I have felt the draw to share my story so that you can find hope and inspiration from it. PH patients and chronic illness patients alike fight battles every day, some in complete silence. I am here to tell you that your story is a great story of battle and I hope I can encourage you every step of the way. Be it an ear to listen, a shoulder to cry or a fan, I'm here for you!

 Being a pulmonary hypertension patient advocate has been a privilege and I look forward to hearing all your stories of war. Let's connect!

https://www.instagram.com/_gllangan/
https://www.gerrylangan.com/

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show

 Hi! My name is Melody Olander and I’m the founder of the community and non-profit “But You Don’t Look Sick.” This community started by sharing my own story living with CIDP, POTS and EDS. I hope by sharing my story it helps someone feel less alone.
 

Connect with Melody: 

Website: www.butudontlooksick.com
Insta: @butyoudontlooksickofficial

Podcast: Real Talk With Melody

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show