Because We Are Strong

Jenifer Tharani, MS RD (Registered Dietitian)

Jenifer Tharani has completed master’s in human nutrition from Texas State University,
San Marcos TX and training in dietetics from Emory University Hospital, Atlanta, GA. She is
a member of College of Dietitians of Ontario and registered with the Commission of Dietetic
Registration.

She is multilingual and fluently speaks second languages like Hindi and has worked in
different settings which has given her experience treating people of all ages with different
conditions. Jenifer believes that eating healthy does not have to be boring, time consuming
or expensive. She is extremely passionate about helping you adopt an anti-inflammatory
eating pattern without restrictions. She doesn’t believe in diets, instead in making small
sustainable lifestyle changes to help you find a balance in your everyday life, including
trying to keep your favorite foods in the mix! Jenifer’s mantra is “Give a Man a Fish, and You
Feed Him for a Day. Teach a Man to Fish, and You Feed Him for a Lifetime” and so she gives
you a nutrition toolbox to help manage your health condition or live a healthy and good
quality life, whatever your goal may be.
About Jenifer's Virtual Nutrition Coaching Services 
In today's technologically driven world, Jenifer provides virtual nutrition coaching to help

you take charge of your health from the comfort of your home. In her virtual nutrition
practice, she focuses on helping clients adopt a non-restrictive, gut healing anti-
inflammatory eating pattern to help with weight loss, prevent and manage chronic illness
like diabetes and autoimmune conditions like rheumatoid and osteoarthritis, fibromyalgia,
lupus, psoriatic arthritis, and IBD.

Social Media
Instagram: @chronicpain.nutritionist
Clubhouse: @autoimmune.rd
Free Facebook Community: Nourish to Flourish Anti-inflammatory Nutrition & Lifestyle
Community - https://www.facebook.com/groups/nourishtoflourishkandj

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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This episode is in loving honor to Aidan John LeVine 2016-2020

Hey Peeps! Welcome back for another episode of Because We are Strong. This week we are sitting down with Brenna. Brenna is the mother of two boys, 1 in heaven and one still here on earth. Brenna's son Aiden had nonverbal autism & dyspraxia who passed away from a rare internal hernia that doesn’t have a name. She is using her voice and platforms to raise awareness for grieving mothers so that no other parent has to go through what she did.

Meet Brenna:
I am a grieving mom 2 boys, 1 in heaven 1 on earth. I'm just trying to navigate through life after losing the love of mine. since this rare internal hernia took my son so unexpectedly I would like to just share his story, bc no parent/child deserves this

in memory of Aidan John LeVine 2016-2020

Aidan had nonverbal autism & dyspraxia. He passed away from a rare internal hernia that doesn't have a name. & Im just trying to figure out what happened to my baby & how to catch it, so no parent has to feel this pain that my husband and I feel all. the. time.

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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 I am a 20 year old with a rare neuromuscular diesease called Friedreich's Ataxia. I have a tough life being wheelchair bound and lining with this disability, but I am still just a typical young adult who loves makeup and fashion!

Please provide any links or notes you would like listed in the show notes of your episode.:
TikTok- sydnidupre
Instagram- sydnindupre
Youtube- Sydni Dupre

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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Hey Peeps ! We're back again for another real and raw episode of Because We are strong. This week we are sitting down with Terri, a mother of two. Her children Claire and Josef both have CLN2 Batten Disease. CLN2 is an inherited disease that is passed down through families that primarily affects the nervous system. Children with CLN2 are born with this condition, however, signs and symptoms typically begin between ages 2 and 4.

Connect with Terri @cureforclaire

Cureforclaire.com

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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We are back for another Because We are Strong episode this week.  We are chatting with Morgan, the mother of a rare disease fighter and a mom on a mission to raise awareness about her daughter's condition. Morgans daughter Addison has Lamellar Ichthyosis, a rare genetic skin disorder that is present at birth and occurs in about 1 in 200,000 people. 


Support Addison & FIRST with these limited edition tees ➡️https://findyourrare.com/collections/rare-aware-apparel/products/we-dont-sweat-it-short-sleeve-unisex-t-shirt

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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#KC4K Advisory Board

We are committed to being kid driven & lead; while adult monitored & guided. Our youth advisory board is dedicated to creating self-awareness of an individual’s own abilities and power to be able to make a positive impact on the world through the pillars of Leadership, Compassion, Commitment, and Contribution (LCCC). Our program is designed to help our youth develop lifelong leadership skills, cultivate compassion and commitment, teach them to personally contribute to the betterment of society. By instilling these skills and values in our youth at a young age, we are creating a lifelong imprint that positively impacts the world.  

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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This week on Because We Are Strong we are sitting down with Avalon & Deb the mother-daughter duo who started the Avalon Foundation.

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Living with a rare disease has shaped who I am and what I am passionate

about. It has given me the opportunity to build my own resilience and

strength of character while discovering my passion for philanthropy and

advocacy. I am inspired by the ability to affect another person’s life in a

deeply meaningful way. I am equally inspired by the chance to fight for

equity and opportunity when I see injustice in the world. I feel honored to

have had so much support in creating and growing an organization that

gives so many young people the ability to serve others through leadership.

The “leaders of tomorrow” are making a difference TODAY!

I look forward to pursuing a law degree and continuing my journey of

advocating for others as a life path.

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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This week on because we are strong we sat down with Jake Mayer a lyme warrior who took his journey and created change for himself and his community.

I’ve endured over 13 years of Chronic Illness while living a fulfilled life. Not only have I shown people it’s possible to live life in the face of Lyme Disease, but I’ve dedicated myself to helping them do the same. That’s why I started a coaching business to help people regain control of their life and wellness.

People with Chronic Lyme Disease feel they’re living, but not alive. They’re confronted with immense challenges including (but not limited to):

• Symptom management
• Practitioners and protocol selection
• Insufficient support and understanding
• A concern they’ll never get well

Because of these challenges, people battling the disease experience physical and mental pain and can barely get out of bed or do simple tasks. These people are terrified they’re missing out on life… but I will not let this happen.

Jake Mayers Coaching (JMC) launched to transform people. I coach people to use this struggle to their advantage, create happiness, and secure the support they deserve. This benefits every aspect of their life including symptom management, their relationships, and their goals, because they wake up feeling INVIGORATED, SUPPORTED, and CERTAIN they’re moving in the right direction.

I’ve always had a deep drive to help others. But this journey instilled an obligation to do more than help, but to transform people’s lives. That’s what JMC is here to do. I couldn’t be more thrilled to share it with y’all!

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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Meet Sarah and the Krieger Family:

On February 9, 2017, our life was turned upside down when our youngest son Fritz, was diagnosed with Duchenne Muscular Dystrophy.  As we digested such devastating news, we found ourselves feeling weak and helpless. It was in those dark days of diagnosis, our community came alongside us and gave us strength. We experienced strength like no other, and it involved things like hugs, tears, prayers, hot meals, kind words, special notes; never physical muscle. In those extremely raw days of diagnosis, we realized that the word strength needed redefined. Inspired and uplifted, our family birthed and clung to the phrase, ‘Strength Is More Than Muscle™.’ A diagnosis of Duchenne does mean Fritz’s muscles will not work like they should, but we want him, and the world to know, that he can be strong, we can be strong, people can be strong because….

Connect with Sarah & Fritz & Friends

http://fritzandfriendsdmd.org

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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Ella Balasa is a patient advocate and a person living with cystic fibrosis. Diagnosed at 18 months old, cystic fibrosis (or “CF”) is a life-limiting, invisible, chronic, and rare lung disease. Since early childhood, Ella has had countless hospitalizations to receive intravenous antibiotics to treat the lung infections that are the hallmark of the disease. 

These infections deteriorate the lung tissue over time, reducing function, and ultimately leading to failure requiring a double lung transplant to prolong life. Her disease is becoming visible as she requires using supplemental oxygen with physical activity. But despite having 28% lung function, she’s never let it be her excuse.

With an academic background in biology, Ella is an advocate for the development of novel therapies for the treatment of antibiotic-resistant infections. She has spoken publicly about the value of patient voice in research as well as her experience with phage therapy as a previous speaker at the FDA, the Milken Institute's Future of Health Summit, and other conferences.  

She is deeply involved in the CF community through being a director of the US Adult CF Association, serving as a member of research committees for the CF Foundation, and through her passion for writing. 

Ella writes about her research experiences and introspectively about the hardships, yet triumph that comes with living with a chronic illness. Through these opportunities, she provides a scientific voice and hopes to encourage empowerment in patient communities. 

In her free time, Ella enjoys cooking, drawing, spending time with friends, and traveling when she can. 

To learn more about her work and experiences visit, www.ellabalasa.com.

Below are links you can include:

Website: www.ellabalasa.com
Instagram Handle:  @thisgirlella
Twitter: @ellabalasa1

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show