Being Rare Podcast

By Sarita Edwards

Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding con... more

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FAQs about Being Rare Podcast:

How many episodes does Being Rare Podcast have?

The podcast currently has 124 episodes available.

Being Rare Podcast episodes:

September 11, 2023 Ep 89. 9/11 #podcast #911 #beingrare
Today's One Minute Monday is about 9/11. As we celebrate my husband's birthday, we recognize how difficult today is for so many others! We're thinking of you!
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1min
September 07, 2023 Ep 88. A Poor Newborn Screening Experience
This Being Rare Podcast episode is continuing the conversation about newborn screening and how The Edwards did not receive the screening test for their son, Elijah.
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26min
September 01, 2023 Ep 87. Our Newborn Was Refused Newborn Screening
September is Newborn Screening Awareness Month! In this Being Rare Podcast episode, Sarita talks about the healthcare system refusing them newborn screening for their newborn.
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11min
August 28, 2023 Ep 86. One Minute Monday - Peer Support #podcast #oneminute #peersupport #supportgroup
This One Minute Monday is about peer support. We hosted our first virtual peer support group a few days ago. Listen to 60 seconds of Being Rare to hear how it went.
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2min
August 24, 2023 Ep 85. A Church Experience
In this Being Rare Podcast episode Sarita talks about an experience they had at a local church's kid zone. Tune in to hear what happened!
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16min
August 21, 2023 Ep 84. The Small Group - #Inclusion #podcast #raredisease #church #smallgroup
Today's One Minute Monday is about inclusion. Elijah participated in his first small group at church.
Listen to 60 seconds of Being Rare to hear about the experience!
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1min
August 16, 2023 Ep 83. Summer Road Trip
In today's Being Rare Podcast episode, Kareem and Sarita share details about navigating a summer road trip with their medically complex child. Listen as they share the trickiness to coordinating rest breaks and nutritional needs, all while having fun!
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21min
August 14, 2023 Ep 82. One Minute Monday - Preparation #podcast #selfcare #mentalhealth #beingrare
Today's One Minute Monday is about prepping for my first colonoscopy! Listen to 60 seconds of Being Rare!
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2min
August 09, 2023 Ep 81. Ten Minutes of Sarita - Full episode
Sarita, girl, where you been? This episode gives insight into the recent Being Rare Podcast hiatus, new format for the show, and peek into Sarita's self care regime.
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10min
August 08, 2023 Ep 81 #sizzle - Prioritizing Self Care #podcast #beingrare #selfcare #mentalhealth
Making yourself a priority is important to maintaining self care and mental health. Enjoy this sizzle. Catch the full episode on Wednesday, Aug 9.

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2min

FAQs about Being Rare Podcast:

How many episodes does Being Rare Podcast have?

The podcast currently has 124 episodes available.

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