Today's episode is about choosing to make myself the priority! Enjoy 60 seconds of Being Rare!

We kicked off Season 3 of the Being Rare Podcast back in May... Here's our first official episode and why it took us so long to upload it! Follow along for more!

#BeingRare #Podcast #podcaster

Today's One Minute Monday is about isolation. A rare mom shared that she attended an in person event for families with her child's diagnosis hoping to connect with other families. Mom said no one approached her and she left feeling more isolated than she did when she arrived. Listen to 60 seconds of Being Rare to hear more!

March is Trisomy Awareness Month! March 18 is World Trisomy 18 Day! In this episode Sarita sits down with two E.WE Foundation partners to discuss the resources and support they provide to Trisomy families. Hear from Sonny Mullen, Help Hope Live and Dr. Deborah Bruns, TRIS Project.

Learn more at:

Help Hope Live - helphopelive.org

TRIS Project - tris.siu.edu

E.WE Foundation - theewefoundation.org

Being Rare Podcast - theewefoundation.org/podcast

In today's One Minute Monday Sarita is airing a public service announcement that bullying, in any form, is not okay! Listen as she shares 60 seconds of Being Rare!

Today's One Minute Monday is about words. On two different occasions, someone dear to me said the word "retarded". They themselves didn't use the word, they shared how someone had used the word in their presence. Hear more in today's One Minute Monday episode!

Today's One Minute Monday is about community. Sarita spent the past several days in Washington, DC with other rare advocates. She talks about the isolation that comes with receiving a rare diagnosis and how community became family. Listen to 60 seconds of Being Rare!

A raw conversation about race, health, and stigma!  

Being Rare Podcast host Sarita Edwards sits down with Stacey Brown, Georgene' Glass, and Dionne Stalling to discuss navigating life with rare disease and as rare disease caregivers, while black. No topic is off limits!  

Social media: Stacey Brown: Wombless and Worthy https://www.instagram.com/womblessandworthy/ 

Georgene' Glass: DreamSickle Kids Foundation  https://dreamsicklekids.org/ https://www.facebook.com/dreamsicklekids/ https://www.instagram.com/dreamsicklekids/[email protected]  

Dionne Stalling: Rare & Black https://www.facebook.com/rareandblack/ https://www.instagram.com/rareandblack/[email protected]  

Connect with Sarita  @theewefoundation  https://www.facebook.com/beingrarepodcast https://www.instagram.com/beingrarepodcast https://linktr.ee/[email protected]

Today's One Minute Monday is about friendship. I saw a post on social media where a mom was looking to hire someone to be her child's friend. Mom thought a friendship job is the only way to get someone to show up when they say they will. Listen to 60 seconds of Being Rare!

Our daughter shared briefly with adults that she felt "left out" after learning of Elijah's diagnosis from relatives. The adults immediately [seemingly] began to judge how we chose to tell our children. Listen as Sarita shares 60 seconds of Being Rare!