Even with the introduction of prophylaxis, the goal of achieving perfect bone and joint health for patients with hemophilia through normalizing homeostasis remains elusive. In this episode, we cover the current monitoring and detection strategies and explore the investigational work that’s aimed at enhancing existing tools, validating suspected tools, and discovering entirely new ones.  

 

Episode Advisors:

Dr. Marilyn Manco-Johnson

Dr. Kathelijn Fischer

 

Contributors:

Dr. Annette Von Drygalski

Dr. Tyler W. Buckner

Dr. Amy Dunn

Dr. Suchitra S Acharya

Dr. Andrea Doria

Dr. Beth Warren

Tom Russomano

 

Senior Advisor:

Dr. Donna DiMichele

 

Links to learn more:

• Young adult outcomes of childhood prophylaxis for severe hemophilia A: results of the Joint Outcome Continuation Study
• Measurement of joint health in persons with haemophilia: A systematic review of the measurement properties of haemophilia-specific instruments
• Vascular remodeling underlies rebleeding in hemophilic arthropathy
• Quantitative measurements of haemophilic joint tissues by point‐of‐care musculoskeletal ultrasound: Associations with clinical and functional joint outcome parameters
• How Do PROMIS Scores Correspond to Common Physical Abilities?
• Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS

 

Show Notes:

Presenting Sponsor: Sanofi

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