Boston Children’s Answers: Raising Celiac podcast

04.18.2024

Best Practices in Biopsies for Celiac Disease

This episode of the Raising Celiac Podcast looks at best practices in biopsies for celiac disease. Historically, confirmatory biopsies were obtained from the distal duodenum only, rather than the duodenal bulb. However, researchers have observed that some patients with celiac...

02.15.2024

Advocacy in Celiac Disease

Advocacy efforts can lead to the development of legislation and regulations that protect the rights and well-being of people with celiac disease. This includes advocating for accommodations in schools, workplaces, and public spaces to ensure a safe and inclusive environment...

11.16.2023

If You Can’t Afford Gluten-Free Food, You Can’t Treat Celiac Disease

Food insecurity is a massive problem in the celiac disease community. Currently there is no treatment for celiac disease except for the gluten-free diet. Without access to gluten-free food, there is no treating this autoimmune disease. A recent study from...

10.19.2023

Could a Drug Cure Celiac Disease?

There are a number of drugs in clinical trials for celiac disease. Some of them are designed to help patients with ongoing symptoms of celiac disease. Others will protect against small amounts of gluten cross contact. And, one could allow...

09.21.2023

The Burden of Living with Crohn’s and Celiac Disease

Studies have largely debated the extent of the connection between Crohn’s disease and celiac disease, but all conclude that Crohn’s is more common in those with celiac than in the general population. Overlapping symptoms include abdominal pain, diarrhea, iron deficiency...

08.17.2023

Laws and Regulations that Govern Celiac Disease

There are approximately 74 million school-age children in the United States alone, thus an estimated 740,000 school children who require a gluten-free diet for celiac disease. Celiac can cause significant effects on children and their families, as well as on...

07.20.2023

Well Treated Celiac, But Still Got Thyroid Disease?

Hashimoto disease is an autoimmune disorder that can cause hypothyroidism, or underactive thyroid. It’s closely linked to celiac disease. With Hashimoto, the immune system attacks the thyroid gland, with a large number of white blood cells building up and causing...

06.15.2023

Impact of Chronic Disease on Quality of Life

Living with a chronic disease is extremely challenging, especially when every single bite of food every single day of your life requires thought and care. Hypervigilance in relation to celiac disease is when someone is severely afraid of gluten exposure...

05.18.2023

Crossroads of Dermatitis Herpetiformis and Celiac Disease

Dermatitis herpetiformis in an intensely itchy skin condition caused by a reaction to gluten ingestion. Most patients with dermatitis herpetiformis (DH) also have celiac disease. Though, oddly enough, DH patients sometimes have a normal intestinal biopsy and normal celiac blood...

04.20.2023

Did Gluten Cause My Headache?

There is a well documented increased risk of experiencing headaches with celiac disease. One study found the prevalence of headaches in adults with celiac disease was 26 percent and in children with celiac 18 percent. The good news is...

03.16.2023

Eosinophilic Esophagitis and Celiac Disease. What Can I Eat?

The association between eosinophilic esophagitis (EOE) and celiac disease is still controversial and its prevalence is highly variable. Like celiac disease, one of the treatments for EOE is the elimination of specific food groups from the diet. But unlike celiac...

02.16.2023

What Came First, Celiac or Type 1 Diabetes?

There is a well-established link between type 1 diabetes and celiac disease that was first discovered over 60 years ago. The estimated prevalence of celiac disease in patients with type 1 diabetes is approximately 8%, compared to about 1% in...

01.19.2023

The Intersection of Celiac Disease and Inflammatory Bowel Disease

Like celiac disease, ulcerative colitis is a chronic autoimmune disease where the body mistakenly attacks itself. Similarly to celiac, it may be triggered by a combination of genetic and environmental factors. Recent research links celiac and inflammatory bowel diseases like...

12.15.2022

The History of Celiac Disease

Celiac disease is a genetically-mediated autoimmune disease that can affect any system of the body. The only treatment is a lifelong gluten-free diet. In people with celiac disease, gluten damages the lining of the intestines. This can prevent them from...

12.05.2022

Season 1 Audio Trailer Episode

Raising Celiac is a podcast from the Celiac Disease Program at Boston Children’s Hospital dedicated to raising the standard of education, awareness, and research on celiac disease and related autoimmune conditions. Hosted by Education Director Vanessa Weisbrod, each month the...