Kelly Ephgrave is a young mum of three boys who lives with a rare form of macular degeneration called Best Disease.

 

Over the years, the condition slowly robbed her of her sight and now Kelly faces the reality of two of her sons inheriting the disease.

 

Kelly spoke with RNIB Connect Radio’s Simon Pauley about the live-changing condition and why it needs to be researched more.

(Photo shows Kelly sitting down and looking directly at the camera with a sombre expression. She has blond shoulder-length hair and is wearing a jean jacket over a black top /Photo credit: Macular Society)

For more information about macular disease visit: https://www.macularsociety.org/