Patrick spends time with advocacy leader and patient, Brian O’Mahony, about issues facing the community in Ireland and his updates on his experience as a person with hemophilia who’s been dosed with gene therapy. Amy speaks with Dr. Ben Samelson-Jones about the use of Twitter in hemophilia and we have a new segment! Listen in for the debut of a brand new monthly segment, The Well, featuring Jessica Lauren Richmond of BloodStream’s FLOW podcast.

Show Notes:

Article from Hemophilia News Today: Ankle Joint Damage in Hemophilia Common, But Not Linked to Pain

 

Digital haemophilia: Insights into the use of social media for haemophilia care, research and advocacy

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