CancerSurvivorMD®

A 21-year-old pianist gets brain cancer, refuses chemo to save his music, survives 30 years, founds Stupid Cancer, and now wants to organize 20 million cancer patients into a political force. Josie and Brad sit down with Matthew Zachary to talk history, late effects, parents, creativity, survivor guilt, and his next act: We The Patients. https://wethepatients.org

Relevant links pertinent to this episode:

• https://stupidcancer.org/
• https://www.wethepatients.org/
• https://www.matthewzachary.com/
• https://www.cancer.org/cancer/managing-cancer/side-effects/hair-skin-nails/hair-loss/cold-caps.html

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/

Brad Buchanan, Colleen Dwyer, and I will discuss an essential aspect of cancer survivorship care. In this episode, we’ll focus on the importance of screening for secondary cancers among cancer survivors.

Relevant links pertinent to this episode:

• https://www.cancer.org/cancer/screening/american-cancer-society-guidelines-for-the-early-detection-of-cancer.html
• https://www.cdc.gov/cancer/prevention/screening.html
• https://www.cancer.gov/about-cancer/screening

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/

Joelle Kaufman — cancer survivor, BRCA1 carrier, and author of “Crushing the Cancer Curve Ball: A Playbook for the Newly Diagnosed (and Their Family and Friends)” — joins Josie and co-host Brad Buchanan to talk about building a practical, compassionate “approach at the plate” for life with cancer. Joelle shares how writing helped her process, why her book is deliberately modular for foggy days, the origins of her free financial-toxicity calculator, and her idea of “happiness tripwires”. The conversation lands on a memorable refrain: we don’t choose the pitch; we choose the swing.

Relevant links for this episode:

• Joelle Kaufman:
  • Joelle Kaufman: https://joellekaufman.com
  • Kicking Cancer's Ass Podcast: https://www.kcapodcast.com
  • Joelle Kaufman Revenue Catalyst Coaching: http://www.gtmflow.com
• Breast Cancer in Men: https://www.mskcc.org/cancer-care/types/breast-male 
• Cold Caps: https://www.cancer.org/cancer/managing-cancer/side-effects/hair-skin-nails/hair-loss/cold-caps.html 
• Cancer Gene Mutation Facts: https://www.cancer.gov/about-cancer/causes-prevention/genetics/brca-fact-sheet

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/

In this episode, we sit down with social worker Colleen Dwyer from Cancer Bridges to talk about one of the five key parts of survivorship care: keeping an eye out for cancer coming back, also called cancer surveillance.

We’ll share what surveillance really means, how it changes over time, and the emotions that can come with it. You’ll also hear tips for working with your health care team as your check-ups and tests gradually become less frequent—so you can feel more confident moving forward.

Relevant links for this episode: 

• Man Up to Cancer: https://manuptocancer.org/
• CancerBridges: https://cancerbridges.org/

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/

In this powerful conversation, G [Josie] Van Londen, MD, shares her journey with primary mitochondrial disease and the life-changing impact of the investigational drug elamipretide. She describes the invisible toll of her condition, the relief of a long-awaited diagnosis, and the real-world improvements she’s experienced on treatment. As she urges the FDA to reconsider its recent denial, Josie highlights what’s at stake—not just for herself, but for the entire rare disease community.

This link contains more resources (podcasts and news articles) as well as action items (to contact legislators and FDA). 

And here is a link to the podcast transcript with links to explain the terminology/definitions. 

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/

In this episode, Dr. Josie welcomes Colleen Dwyer Diehl, LCSW, a clinical social worker at Cancer Bridges, to introduce an exciting new mini-series on cancer survivorship. 

Colleen shares her journey, the mission of Cancer Bridges, and the impactful programs they offer to support cancer patients and survivors. Together, they explore the Living Life Post-Cancer Treatment program, a structured initiative designed to help individuals navigate life after active treatment. 

They also introduce the five essential elements of survivorship care, which will be explored in depth in upcoming episodes. Whether you’re a survivor, caregiver, or healthcare professional, this episode offers valuable insights and resources for thriving beyond cancer.

Relevant links for this episode:

• Cancer Bridges at https://cancerbridges.org/
• Cancer Bridges Membership Forms at https://cancerbridges.org/become-a-member/
• Living Life Post Cancer Treatment at https://cancerbridges.org/specialized-programs/
• Once you become a free member and gain access to the calendar, you can view and register for the monthly Monday evening Post-Treatment group. 

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/

In this episode, we sit down with Patrick Bringley, MA, author of All the Beauty in the World, to explore his profound journey from working at The New Yorker to spending a decade as a museum guard at The Metropolitan Museum of Art. 

Patrick shares how the loss of his brother to cancer led him to seek solace in art, offering him space for reflection, healing, and a deeper appreciation of life’s beauty and struggles. 

We discuss the power of art in processing grief, the intersection of the mundane and the sublime, and how his time at the Met transformed his perspective. Join us for a heartfelt conversation about loss, love, and the unexpected paths that lead us toward meaning.

Relevant links for this episode: 

• https://www.patrickbringley.com/
• https://www.metmuseum.org/
• https://www.nytimes.com/2024/11/04/arts/design/patrick-bringley-met-guard-memoir-play-charleston.html

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/

Caregiving is a journey that touches many of our lives in profound and often unexpected ways. It is a role that demands resilience, compassion, and adaptability. 

In this episode, I have the pleasure of speaking with Gary Marzolf, whose lifelong experience with caregiving began at a very young age and has evolved through decades of personal challenges and triumphs. Gary’s story offers wisdom, inspiration, and insight into navigating the delicate balance between caring for others and taking care of oneself.

Links relevant to this episode: 

• Reiki: Hands That Heal by Joyce Morris
• Reiki for Emotional Healing by Tanmaya Honervogt
• Affirmations for Living Beyond Cancer by Bernie Siegel

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/

“A Life Beyond Reason: Chris Gabbard on Loss, Caregiving, and Spiritual Growth”

In this deeply moving episode, Chris Gabbard, PhD, MA, professor and author of A Life Beyond Reason, shares his profound journey as a caregiver to his son August, who was born with severe disabilities due to a mismanaged birth. Chris reflects on the emotional and philosophical challenges he faced during and after August’s life, discussing the profound spiritual and personal growth that caregiving brought into his life. Alongside co-hosts Brad Buchanan and Dr. G van Londen, Chris explores themes of trust in the healthcare system, the therapeutic power of writing, and the ethics of caregiving. This conversation will resonate with anyone navigating grief, caregiving, or searching for meaning in life’s most challenging moments.

Relevant links for this episode: 

• Chris Gabbard's website and link to his book "A Life Beyond Reason".
• "Unspeakable Conversations" article in the New York Times.
• Peter Singer's website. 
• Eva Feder Kittay's website. 
• Atul Gawande's book "Being Mortal".

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/

Discover the essential tools and wisdom to empower yourself or a loved one through a cancer journey in our latest episode. Featuring author Jill Squire, BSN, RN, OCN,  and her groundbreaking book "Cancer Journey Guide and Journals: Empowerment in Diagnosis and Treatment and Beyond," we explore practical strategies to support cancer patients from diagnosis through long-term survivorship. 

This conversation promises invaluable insights into self-advocacy, effective communication, and the significance of tracking symptoms and treatments in a user-friendly format.

Engage in a heartening discussion on the power of self-care activities like birding and mindfulness, which are essential tools for managing symptoms and maintaining mental wellness. Learn how to build a robust cancer care team, navigate tough conversations with loved ones, and utilize guided journals to keep track of your journey. By sharing personal stories, practical advice, and compassionate guidance, our panel aims to empower you with the knowledge and confidence to take charge of your healthcare experience.

We also delve into the critical aspect of building trust with healthcare providers and the role of daily symptom tracking in shared decision-making. Jill Squire provides expert tips on creating useful diaries to document experiences, which can significantly enhance communication with healthcare professionals. Concluding on a light-hearted note with a pun to bring some humor, we express gratitude to Jill and reflect on the book's unique value for anyone facing a challenging diagnosis. Join us for this heartfelt and informative episode designed to uplift and empower.

Relevant links for Jill Squire: 

• Jill's first book. 
• Jill's LinkedIn profile. 
• Jill's podcast.
• Jill's facebook profile.
• Jill's Patreon profile. 
• Jill's YouTube profile. 

General Links:

• Disclaimers: https://cancersurvivormd.org/disclaimers/
• Brad Buchanan: https://linktr.ee/bradthechimera
• G [Josie] van Londen: https://linktr.ee/cancersurvivormd
• CancerBridges: https://cancerbridges.org/