Care OutLoud

By Mary Coughlin

Caring OUTLOUD isn't about the volume of your voice but the magnitude of your heart expressed by the frequency of your soul. The Care OutLoud Podcast connects with people from all walks of life around... more

· Education

Download on the App Store

Download on the App Store

Get it on Google Play

FAQs about Care OutLoud:

How many episodes does Care OutLoud have?

The podcast currently has 81 episodes available.

Care OutLoud episodes:

October 20, 2024Compassionate Care in Pediatric Nursing: Navigating Grief with Jodi Mullen and Missy Reynolds
In this episode of the Care Out Loud podcast, seasoned
nurses Jodi Mullen and Missy Reynolds share their profound experiences and insights from
working in pediatric and newborn intensive care units. The conversation covers
the implementation of a bereavement support program for families coping with
the loss of a child, striking a balance between empathy and professionalism,
and the long-term impact of compassionate care. Key topics include the
emotional challenges faced by nurses, the significance of holistic and trauma-informed
care, and the importance of continuous training, self-care, and team support.
The episode underscores the privilege and growth that come from providing
end-of-life care, as well as the enduring legacy and ripple effects of role
modeling within the nursing community.

00:00 Welcome and Introduction
00:50 Jodi's Journey in Pediatric ICU
02:00 Missy's Path and Pediatric Bereavement
04:28 Establishing the Bereavement Program
09:05 Challenges in Pediatric Nursing
11:24 The Art and Skill of Compassionate Care
20:37 The Lifelong Impact of Grief
24:51 Navigating Trauma and Preserving Dignity
25:55 The Power of Presence in Care
26:15 Practical Strategies for Providers
27:27 The Importance of Compassionate Silence
28:49 Supporting Families Through Hope and Acceptance
30:09 Debriefing and Team Support
33:59 Training and Education for End-of-Life Care
36:56 Wish-Worry Statements: Balancing Hope and Honesty
38:46 The Role of Authentic Relationships
42:16 Caring for Each Other in Healthcare
43:34 Final Thoughts and Wisdom
Life Journey Bereavement Program
https://news-notes.ufhealth.org/tag/life-journey-bereavement-program/

https://ufhealth.org/specialties/hospice-and-palliative-medicine/bereavement#pediatric-bereavement-services
Caring for Pediatric Patients' Families at the Child's End of Life
Mullen, J.E., Reynolds, M.R., & Larson, J.S. (2015). Caring for Pediatric Patients' Families at the Child's End of Life, Critical Care Nursing, 35(6), 46-55.

Brené Brown on Empathy: https://www.youtube.com/watch?v=1Evwgu369Jw
...more
51min
September 22, 2024 Strength in Love: Andrea Hickson's Story of NICU Alumni
In this podcast episode, Mary interviews Andrea Hickson,
founder of NICU Alumni. Andrea shares her deeply personal story of giving birth to her two daughters, both of whom required NICU stays due to extreme prematurity. Her experiences and the challenges she faced during and after
their NICU stays inspired her to create NICU Alumni, an organization designed to support families navigating the post-NICU journey. Andrea discusses the importance of hands-on involvement for parents in the NICU, the practical and strategic resources NICU Alumni offers, and the necessity of addressing trauma and mental health in post-NICU care. She also reflects on the overwhelming
challenges and emotional struggles faced by NICU parents and offers insights into providing support and empowerment to these families.
00:00 Introduction to Today's Guest: Andrea Hickson
00:38 Andrea's Journey to Founding NICU Alumni
01:35 Navigating Early Intervention and Support
03:05 The Birth of Andrea's Second Daughter
03:46 Relocating During the Pandemic
05:38 Launching NICU Alumni
06:45 The Importance of Post-NICU Support
15:01 Practical Tools for NICU Families
18:09 Advice for NICU Clinicians
20:32 Empowering Parents in the NICU
27:34 Caring Out Loud: Andrea's Perspective
29:12 Final Thoughts and Wisdom
Here are some links as well:
https://www.nicualumni.org/
https://www.nicualumni.org/podcast
IG: https://www.instagram.com/nicu_alumni/
...more
36min
September 16, 2024The Birth of Small Beginnings: Sharon Rogone's Journey from RN to Entrepreneur
In this episode, we dive into the inspirational journey of
Sharon Ragone, founder of the Small Beginnings company. Sharon recounts her
unexpected path to entrepreneurship, starting from her early ambitions to
become an RN, to her accidental love for NICU care, and eventually inventing
essential products for neonatal care. She shares her struggles and triumphs in
developing innovative solutions that transformed neonatal care, such as the Bili
Bonnet and other supports for fragile infants. Sharon's story is a testament to
her dedication to bettering conditions for babies, nurses, and hospitals, and
underscores the importance of compassion, empathy, and innovation in nursing.

00:00 Introduction to Today's Guest: Sharon Ragone
00:28 Sharon's Journey to Becoming an RN
00:53 The Early Days in the NICU
01:46 Innovations and First Big Idea
03:23 Building the Business from Scratch
04:53 Challenges and Growth
09:02 Recognition and Achievements
12:43 Nurse Entrepreneurship and Innovation
18:22 Caring Out Loud: The Legacy
22:52 Final Thoughts and Wisdom

Additional Resources:
https://www.small-beginnings.com/

https://www.youtube.com/channel/UCf6fA_lrevAXAjzdVpplcIw

Calming Cuddler

The Nest Set

The Wing Sling

The Pacee Pacifier

The Cuddle Buns

The Bebeonkers

The Bebe Chix
...more
30min
September 08, 2024The Power of Words: How What We Say Shapes the World - with Mary Coughlin
In this episode of the Care Out Loud podcast, host Mary Coughlin explores the profound impact of words on our lives and relationships. She discusses how the words we choose, whether spoken out loud or within our inner dialogue, carry significant weight. Words can inspire, comfort, and build bridges, but they can also wound and divide. Mary emphasizes the biological effects of positive and negative
words and shares insights into the importance of practicing intentional and compassionate communication. Through personal anecdotes and reflective questions, she encourages listeners to be mindful of their language to foster healing and connection.

00:00
Introduction to the Power of Words
01:53 The
Impact of Words on Our Emotions and Brain
02:53
Nonverbal Communication and Intentionality
03:57
Personal Story: The Power of Presence
05:54
Balancing Words and Silence in Sensitive Situations
07:40
Practicing Compassionate Communication
09:21 The
Role of Inner Dialogue
11:46
Cultural Sensitivity and Language
13:05 The
Healing Power of Words
16:11
Reflective Questions and Conclusion
A few links:
Why Our Words Matter—And Five Approaches to Intentionally Employing Inclusive, Respectful Language

People Matter, Words Matter
...more
18min
September 01, 2024Bringing Joy and Movement to Children: An Interview with Jenna Lammers
In this inspiring podcast episode, we dive deep with Jenna
Lammers, a pioneering research clinician with 24 years of experience in pediatric physical therapy. Jenna shares her incredible journey of developing the GiggleFit Therapeutic Play Gym, an innovative solution aimed at improving
mobility and bringing joy to children with severe mobility impairments.
From her early days in NICU, PICU, and other clinical settings, to founding Boost Therapeutic Innovations, Jenna discusses how she turned feedback from families
during the pandemic into a groundbreaking product. Highlights include her success in the 2024 APTA Academy of Leadership and Innovation Shark Tank and a
touching story of how the GiggleFit Play Gym is transforming the lives of children and their caregivers. Jenna's narrative is not just about a product
but a passionate mission to ensure mobility is a right for all children.

00:00 Introduction to Jenna Lammers: A Game Changer in
Pediatric Physical Therapy
01:38 Jenna's Journey: From Clinician to Innovator
02:31 The Birth of GiggleFit Therapeutic Play Gym
02:47 Challenges Faced by Families During the Pandemic
03:41 Creating the Prototype: From Idea to Reality
06:47 Testing the Prototype: Real-World Applications
09:56 Collaborations and Research Studies
12:46 Impact and Future of Therapeutic Play Gym
21:48 Understanding Musculoskeletal Development
23:19 Introduction to TPG and Self-Soothing
24:14 Caregiver Engagement and Hospital Experience
26:56 Hospital to Home Concept
27:48 Winning the PT Shark Tank
28:11 Product Kits and Safety Testing
29:39 Research and Outcome Measures
32:36 Global Statistics and Funding Challenges
38:02 Mobility as a Human Right
41:38 Advice for Innovators and Entrepreneurs
45:26 Final Thoughts and Gratitude
LINKS TO LEARN MORE:
Jenna's website: www.boosttherapeutic.com
Recent talk by Jenna: https://clinical-excellence.heysummit.com/speakers/jenna-lammers

SUGGESTED READS:
Sabet et al. (2022). ON Time Mobility: Advocating for Mobility Equity. Pediatric Physical Therapy, 34(4), 546-550. doi: 10.1097/PEP.0000000000000939.

2022 Tipping Points Survey

2023 Tipping Points Survey

Lammers & Smith (2024). Therapeutic Play Gym: Feasibility of a Caregiver-Mediated Exercise System for NICU Graduates with Neuromuscular Weakness-A Case Series. Pediatric Physical Therapy, 36(1), 105-112. doi: 10.1097/PEP.0000000000001071.

Schiff et al. (2022). Financing Care for CYSHCN in the Next Decade: Reducing Burden, Advancing Equity, and Transforming Systems. Pediatrics, 149(Suppl 7):e2021056150I. doi: 10.1542/peds.2021-056150I.

Global Research on Developmental Disabilities Collaborators (2022). Accelerating progress on early childhood development for children under 5 years with disabilities by 2030. The Lncet. Global Health, 10(3), e438-e444. doi: 10.1016/S2214-109X(21)00488-5. Epub 2022 Jan 14.
...more
48min
August 26, 2024 From Personal Pain to Global Change: Dr. Yamile Jackson's Story
In this episode of Care OUTLOUD, our host welcomes Dr. Yamile Jackson, a pioneer in trauma-informed care and family-integrated practices. Dr. Jackson shares her journey from Colombia, where kangaroo care originated, to becoming an indomitable advocate for infant neuroprotective care through her work with ergonomics and safety engineering. Highlighting her lived experience as a NICU parent, Dr. Jackson discusses the development of the Zaky, an innovative tool designed to simulate human touch and enhance infant care. She underscores the importance of kangaroo care and trauma-informed practices in neonatal intensive care units, advocating for parent-infant bonding and compassionate care. The conversation also touches on her recognition by Oprah Winfrey and involvement with the Gates Foundation, reflecting the widespread impact of her work.
00:00 Introduction to Dr. Yamile Jackson
01:46 Dr. Jackson's Early Life and Education
02:25 The Birth of Zachary and NICU Challenges
06:07 Innovations in Infant Care
09:50 Recognition and Media Attention
12:40 Meeting Oprah and Media Verification
17:32 Advocacy for Kangaroo Care
25:59 Parental Fears and Kangaroo Care
26:59 Understanding and Addressing Parental Concerns
27:51 The Importance of Kangaroo Care
29:39 Challenges in Implementing Kangaroo Care
32:57 Innovations and Solutions for Kangaroo Care
39:51 Empirical Evidence and Personal Experiences
45:13 Advocacy and Personal Commitment
48:34 Final Thoughts and Appreciation
Links:
The Zaky website: www.thezaky.com
Our story, Oprah’s video, and movie inspired on Zach: https://thezaky.com/pages/our_promise
Kangaroo Care Day (May 15) website: www.kangaroo.care
Info for clinicians: https://thezaky.com/pages/thezakylinks
Linkedin: https://www.linkedin.com/in/yamilejackson/ Follow us! IG, Facebook, Pinterest: @TheZaky @kangaroocareday
...more
53min
August 18, 2024 From Ballet to Bedside: Embracing Trauma-Informed Care in Neonatology with Staci Olister
In this episode, Mary welcomes Dr. Staci Olister, a seasoned neonatologist from New Orleans, Louisiana, as she shares her extraordinary journey from a brief ballet career to a long-standing medical practice. Dr. Olister discusses her extensive training, her passion for neurodevelopmental and trauma-informed care, and the pivotal moments and mentors that shaped her path. The conversation delves into the importance of integrating compassionate, evidence-based practices in the NICU, the challenges of changing medical culture, and the profound impact of holistic, trauma-informed approaches on both patient and provider experiences. Together, Mary and Staci explore the deep connections between professional practice and personal growth, offering valuable insights for medical practitioners and caregivers alike.
00:00 Introduction and Guest Introduction
00:38 Dr. Staci Olister's Journey to Neonatology
01:33 Professional Growth and Team Dynamics
03:34 Developmental Care in the NICU
05:45 Implementing Neurodevelopmental and Trauma-Informed Care
10:23 Challenges and Strategies for Change
17:09 The Importance of Positive Childhood Experiences
21:11 Holistic Approach in Medical Education
22:16 Changes in Medical School Curriculum
22:41 Implementing Trauma-Informed Care
24:05 The Importance of Compassion in Healthcare
28:48 Engaging with Parents Holistically
31:58 Navigating the Gray Areas of Medicine
34:16 Caring Out Loud: Professional and Personal Insights
38:56 Wisdom and Nuggets for Future Leaders
...more
45min
August 13, 2024Unveiling the Science of Sleep in Neonatal Care with Eline de Groot and Christy Gliniak
In this episode, host Mary welcomes Eline de Groot, a passionate sleep researcher from the Netherlands, and Christy Gliniak, a key figure at the National Association of Neonatal Therapists. The guests discuss their journeys, trauma-informed care, and their latest focus on sleep in neonatal intensive care units (NICUs). Eline shares her groundbreaking research on sleep patterns in preterm infants and its impact on brain development, while Christy underscores the importance of integrating this research into clinical practice to improve patient outcomes. The conversation highlights the critical role of sleep as 'free medicine' and the importance of co-regulation and attunement in neonatal care.

00:00 Welcome and Guest Introductions
00:45 Journey to Trauma-Informed Care
02:00 Challenges and Growth in Neonatal Therapy
03:49 Leadership and Education in Healthcare
05:59 The Importance of Sleep in Neonatal Care
12:05 Elena's Research Journey
28:18 Developing the BeSSPI Tool
34:07 Global Impact and Future Directions
42:03 Final Thoughts and Reflections

Cool Links to check out:
Sleep Discovery Lab of UMC Utrecht: https://www.umcutrecht.nl/nl/sleep-discovery-lab?lang=en
Eline's profile page of Utrecht University: https://www.uu.nl/staff/ERdeGroot
Christy's LinkedIn page: https://www.linkedin.com/in/christy-gliniak-9a679699/
de Groot et al. (2022). Creating an optimal observational sleep stage classification system for very and extremely preterm infants
Wang, de Groot, Tataranno et al. (2024): Machine Learning-Derived Active Sleep as an Early Predictor of White Matter Development in Preterm Infants
...more
50min
August 06, 2024 Achieving Health Equity in Neonatology: A Conversation with Dr. Diana Montoya Williams
In this episode, our host welcomes Dr. Diana Montoya Williams, a neonatologist at the Children's Hospital of Philadelphia and a passionate advocate for equity and diversity. Dr. Williams shares her journey to becoming a neonatologist and her dedication to addressing racial and ethnic disparities in neonatal care. The conversation delves into her research on persistent disparities in infant health outcomes and the importance of cultural humility, community cooperation, and intentional care. Dr. Williams also discusses the significance of disaggregating data to understand local disparities and implement targeted interventions. Emphasizing the importance of collective effort, she advises on the need for safe communities and shared learning in the pursuit of equitable healthcare.
00:00 Introduction to Today's Guest: Dr. Diana Montoya Williams
00:30 Dr. Diana's Journey to Neonatology
02:39 Discovering a Passion for Research and Advocacy
04:42 Mission-Driven Work in Neonatology
06:11 Challenges and Realities of Trauma-Informed Care
07:57 Understanding and Addressing Implicit Biases
11:16 The Importance of Cultural Humility in Healthcare
22:55 Equity-Focused Quality Improvement
27:23 Practical Strategies for Reducing Disparities
32:46 The Role of Community and Continuous Learning
46:26 Conclusion and Final Thoughts

Here are some links from Diana that you absolutely MUST check out:
https://sites.google.com/view/neojusticecollab/home
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8809476/pdf/nihms-1670685.pdf
https://www.onceuponapreemie.org/
https://www.youtube.com/watch?v=LoBuglh1PYg
https://podcasts.apple.com/dk/podcast/018-dr-diana-montoya-williams-health-equity-research/id1566031191?i=1000533435309&l=da
https://www.onceuponapreemie.org/

To experience more of Diana who will be co-presenting with another CARE OUTLOUD guest, Kimberly Novod, Founder of Saul's Light, join us in Boston October 13-15, 2024 for Science & Soul 20204 - the 4th Annual Conference on Trauma-Informed Developmental Care.

LEARN MORE HERE
...more
54min
July 29, 2024 Championing Hope: The Inspiring Journey of Advocate Abby
In this emotional and inspiring podcast episode, the host welcomes Advocate Abby, a devoted parent and fierce advocate for families facing the financial and emotional burdens of medical complexities. Abby shares her personal journey, beginning with a life-changing traumatic event in 2014 when her son, Wyatt, suffered a near-drowning and how that experience led her to become a beacon of hope for others. She details her path from personal hardship to creating 'Connect,' a comprehensive platform that links families to essential resources and grants for medical needs. Abby's unwavering dedication and advocacy work aim to transform how care and support are accessed, especially for those in the throes of trauma, emphasizing hope and resilience. This episode dives deep into trauma-informed care, the importance of community support, and the power of not letting tragedy define you, but rather shape your mission to help others.
00:00 Introduction to Advocate Abby
00:40 Abby's Personal Story: A Life-Changing Event
01:35 The Journey of Advocacy and Recovery
03:07 Discovering and Utilizing Grants
04:43 Launching Connect: A Platform for Families
07:16 The Vision and Mission of Connect
11:36 Trauma-Informed Care and Its Importance
19:24 Personal Reflections on Trauma and Healing
24:21 The Power of Hope and Community Support
32:28 Final Thoughts and Words of Wisdom
Hi there! I'm Advocacy Abby, and I understand the challenges families with children who have disabilities and complex medical needs face. For years, I've witnessed the overwhelm, frustration, and wasted time spent searching for the right funding.
That's why I created Advocacy Abby. My passion is helping you navigate the maze of grants and foundations to secure the financial support your child deserves. Stop feeling lost and free up your time to focus on what matters most – your precious child.
I’ve created the CONNECT platform that helps streamline grants, foundations, and resources for families of children with disabilities, medically complex, and diagnosis.
https://grants.supportnow.org/ (connect) tips and suggestions on my Instagram Www.instagram.com/advocacy.abby Connect with me on my website https://www.advocacyabby.com
Additional Resource: https://www.emdr.com/what-is-emdr/
...more
39min

FAQs about Care OutLoud:

How many episodes does Care OutLoud have?

The podcast currently has 81 episodes available.