Caregivers - The Bloodline with Blood Cancer United Podcast

Join us as we speak to Tim Cooper, a multiple myeloma patient and caregiver. In this episode, Tim discusses how he was diagnosed with myeloma after sustaining a neck fracture. Unlike many patients, he was familiar with myeloma, as his mother had been diagnosed with myeloma years prior.  

After multiple treatments, including chemotherapy and stem cell transplantation, Tim is doing well and enjoying life. He finds that sharing his story is therapeutic and encourages other patients to keep pushing forward and find hope after a blood cancer diagnosis.  

Mentioned on this episode: 

• Multiple Myeloma
• LLS Financial Assistance Program
• Autologous Stem Cell Transplantation
• Beating Incurable podcast episodes
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Community 
• Online chats 
• Support groups 
• Caregiver Workbook
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Support for this episode provided by: Bristol Myers Squibb; GSK plc.

The post Making The Decision To Live: A Myeloma Story first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to lymphoma patient, Leona, her husband and caregiver, Howell, and Tia Newcomer, the CEO of CaringBridge®. In this episode, Leona and Howell discuss the benefits of utilizing patient and caregiver support resources like the online journaling site, CaringBridge, to communicate with loved ones after Leona’s diagnosis. They were comforted that the site also afforded the opportunity for family members and friends to engage and give them support.

Tia then shares the mission of CaringBridge and how it has evolved into a community of over one million pages where patients and caregivers communicate their updates and needs with family members from diagnosis through survivorship.

Mentioned on this episode: 

• CaringBridge®
• Diffuse Large B Lymphoma
• MealTrain
• Write for Life: Persisting in Online Health Communities through Expressive Writing and Social Support
• Caregiver support 
• Caregiver Workbook

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• LLS Public Policy & Advocacy
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Community 
• Online chats 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

The post Engaging with Loved Ones: A CaringBridge Story first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the fourth episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the survivorship stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the third episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the role reversal stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Role Reversal first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the second episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the treatment stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer. In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship.

In the first episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the diagnosis stage of multiple myeloma.

Register at the link below.

Mentioned on this episode: 

• Myeloma
• Stem Cell Transplant
• Immunotherapy
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Parent’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the fourth episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the post-treatment stage of acute myeloid leukemia (AML).

Mentioned on this episode: 

• Acute Myeloid Leukemia
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the third episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the schooling stage of acute lymphoblastic leukemia (ALL).

Mentioned on this episode: 

• Acute Lymphoblastic Leukemia (ALL)
• Caregiver support 
• Hopecam

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Schooling first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the second episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the treatment stage of acute lymphoblastic leukemia (ALL).

Mentioned on this episode: 

• Acute Lymphoblastic Leukemia (ALL)
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the first episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the diagnosis stage of acute myeloid leukemia (AML).

Mentioned on this episode: 

• Acute Myeloid Leukemia
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.