Caregivers - The Bloodline with Blood Cancer United Podcast

Join us as we speak to Erin Galyean, a pharmaceutical sales trainer, professional speaker, and published author.  In this episode, Erin tells us how, after losing her father to non-Hodgkin lymphoma and then helping care for her sister, who was diagnosed with the same disease 20 years later, she learned that family and friends who are not the primary caregiver can still become great patient advocates. Erin shares strategies on how to effectively advocate for a patient, the different roles that friends and family can play on the support team and how, even if you live far away from a loved one facing a cancer diagnosis, you can still make a difference.

Mentioned on the episode:

• Non-Hodgkin Lymphoma
• Badass Advocate: Becoming the Champion Your Seriously Ill Loved One Deserves
• Meal Train
• Five stages of grief and how to get through them: CNN Health

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

The post How to Become a Great Patient Advocate first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this fourth episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the survivorship stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• CAR T-cell Therapy
• Young Adult Resources
• Caregiver support 

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this third episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the moving home stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 
• COVID resources

Additional LLS Support Resources:

• Caregiver Workbook
• Young Adults
• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Moving Home first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this second episode of the series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the treatment stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 
• Medical Power of Attorney
• Ulman Foundation

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In the first episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the diagnosis stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Alex Okafor, a defensive end with the Kansas City Chiefs. Alex lost his mother to acute myeloid leukemia (AML) in 2020. In this episode, Alex talks about his mother’s short battle with AML and the difficulties his family faced receiving this diagnosis during a global pandemic. Following his mother’s death, Alex found a new determination to make his mother proud and continue her legacy in fighting against racial injustice and creating a better society for the black community.

*Since the taping of this podcast, Alex has launched the Alex Okafor Family Foundation, which is raising funds for the LLS Scholarship for Blood Cancer Survivors Program. In addition, in honor of Mother’s Day, Alex wrote a touching letter to his mother, titled A Letter to My Mother for The Players Tribune website.

Mentioned on this episode:

• Acute Myeloid Leukemia
• Kansas City Star Article
• Kingdom United Reading Program
• Alex Okafor Family Foundation and Scholarship
• A Letter to My Mother

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode provided by Genentech, Inc. and Jazz Pharmaceuticals.

The post Tragedy to Legacy: NFL Player Continues The Fight first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Meredith Hemphill Ruden, who had an informative session at CancerCon on Parenting with Cancer. Meredith is a licensed clinical social worker, 13-year Melanoma cancer survivor and Executive Director of the Feather Foundation. In this episode, Meredith dives into the challenging topic of being a parent while dealing with a cancer diagnosis and treatment. After becoming a social worker following treatment, she started to notice that there weren’t as many resources to help parents who had cancer. To combat this shortfall, she started The Feather Foundation, a nonprofit organization dedicated to supporting parents throughout their cancer journey. This episode highlights the importance of making self-care a priority and how to find hope as a family while dealing with cancer.

Mentioned on this episode:

• The Feather Foundation
• Caregiver Support
• Support Groups
• Managing Your Cancer

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• LLS Community
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

The post Strap on your Oxygen Mask First: Being a Parent with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Kristin Furhrmann-Simmons, a caregiver and an LLS volunteer. Kristin talks to us about caring for her father who is a CLL survivor, and how she decided to join LLS’s advocacy efforts through our Office of Public Policy.  For Kristin, it was a great way to connect with people in her community and share her family’s story.  And she knew that for her dad, being as sick as he was, it was helpful to have her as his voice to bring forward some of the issues that her family was facing as a result of his treatment.  This episode highlights how advocates carry the ability to uphold a voice that may have been silenced by a diagnosis.

Mentioned on this Episode:

• Advocacy
• Caregiver
• Team in Training
• Medicare Part D
• Mobile Action Network

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations
• Oral Parity
• Prescription Out-of-Pocket Costs
• Share your Story
• Sign up to be an Advocate at LLS

The post I’m a Caregiver & Advocate: Kristin’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Alicia speaks with Jason Khalipa. Jason is a devoted father, world champion, and global businessman.  Jason is a force of nature in the fitness world whose life was turned upside down when his daughter, Ava, was diagnosed with leukemia in 2016 at the age of 4.  Jason and his wife, Ashley, dedicated themselves to the fight armed with a positive mindset and an emphasis on physical and mental strength. Join Jason and Alicia as he shares more about how Ava was diagnosed, what their cancer journey taught him not only as a person, but as a father, and how his passion for fitness helped him remain strong and disciplined throughout this new journey. 

Mentioned on this episode:

• Acute Lymphoblastic Leukemia
• Leukemia
• The Emperor of All Maladies
• LLS Community
• Ava’s Kitchen
• JasonKhalipa.com
• Jason Khalipa Instagram
• Patti Robinson Kaufmann First Connection Program

Additional LLS support resources:

• Information Specialists
• Free telephone/web patient programs
• LLS Community
• Free booklets
• Financial support
• Online chats
• Caregiver support
• Support groups

Support for this episode provided by Amgen and Takeda Oncology.

The post Training for the Unknown: Jason’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Mirinda

David

Alejandro

To kick off Caregiver Awareness Month, we invite you to join the conversation as we chat with three caregivers! Listen in as Alicia and Lizette speak with Mirinda, David and Alejandro about their varying caregiving roles. Mirinda, David and Alejandro will share how their loved ones’ acute myeloid leukemia (AML) diagnosis impacted their own lives. On this episode, they describe the changes they went through, where they found support, how they navigated insurance, what they learned about themselves and helpful advice for other caregivers.

We encourage you to share this episode and comment below to let us know how you liked this episode. Thanks for listening!

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The post A Conversation with Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.