Jaime King, mother of Katie(7), and Mark Landis, dad to Parker (5), describe the realities that parents of children diagnosed with DIPG, diffuse intrinsic pontine glioma, face today. HRes586, the importance of advocacy and the need for change are featured, due to the neglect of these terminally ill children for decades by our medical research system in the United States. DIPG is dubbed "cancer's death-row" for kids.