Childhood Cancer Talk Radio Podcasts

Peter Brown and Victoria Sardi-Brown describe how their experience with their son Mattie, who was diagnosed with osteosarcoma and died at the age of 7, inspired the current work of Mattie Miracle Cancer Foundation to establish and implement psyco-social standards of care for pediatric cancer patients and their families.

CCTR interviews Tracy Ryan, CEO of CannaKids, an organization dedicated to providing the highest quality guidance, care, and cannabis medicine for seriously ill patients, particularly pediatric cancer patients. CannaKids was inspired by Tracy's daughter Sophie, who was diagnosed with brain cancer at 8 1/2 months old, and is a living testament to the curative powers of cannabis when conventional treatment fell short.

Lisa Spedale reveals the heartwrenching motive for her involvement in one of the most genius advancements in neurotechnology in the history of the science. Leo Somerville of technology company Renishaw was changed forever by the heart of one little girl, Kira.

Emma Wren of Alford UK, explains the realities of a DIPG diagnosis for her daughter Keira, and the experimental program with which Keira is involved to combat the deadly disease. Sharon Kane of "Funding Neuro", joins us to discuss the technical details of the procedure and the origins of this research, and Funding Neuro. The fate of Keira's future peers with brain cancer rests upon her pioneering journey. Download podcast: bit.ly/CCTR2-11

CCTR interviews Jonathan Agin, Development Liaison and General Counsel for the Children’s Cancer Therapy Development Institute, or CC-TDI, a non-profit biotech company dedicated to eradicating childhood cancer in all forms. Co-Founder and Scientific Director Charles Keller MD also joins us to describe the very innovative and proactive design of this company, addressing the “pre-clinical gap” in our medical research system that has resulted in the neglect of the deadliest childhood cancers, many of which have been awaiting effective therapy development for decades.

Lisa Solis DeLong, author, nurse, bereavement facilitator, patient advocate, and last but not least--mom!--joins us for a candid discussion of her experience raising two sons with cancer, loss and faith, and how she found new joy in life after losing her son Justin.

10 year old Gabriella Miller was herself a strong advocate for children with cancer, and the inspiration for Smashing Walnuts Foundation; sadly, she passed away from DIPG in October of 2013. The following April, 2014, President Obama signed into law the Gabriella Miller Kids First Act which allocates funding for important pediatric disease research through the National Institutes of Health, to the tune of $12M in the next 10 years. Her legacy is strong through the continuing advocacy work of her mother, Ellyn Miller, who tirelessly lobbies members of Congress and the NIH to achieve a system that prioritizes cancer research for children.

Jaime King describes the difficult experience of the terminal diagnosis for daughter Katie with DIPG, the most aggressive pedatric brain tumor. The experimental drug PANABINOSTAT has shown great promise in battling the disease but Katie's time is running out for access to the expensive treatment.