Clinical Trials - The Bloodline with Blood Cancer United Podcast

Clinical Trials - The Bloodline with Blood Cancer United Podcast

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Clinical Trials - The Bloodline with Blood Cancer United Podcast episodes

  • Myelodysplastic Syndromes (MDS): Progress, Possibility, and What’s Next
    Jay Yang, MD

    You cannot have progress without research.

    In our latest episode, Dr. Jay Yang of the Karmanos Cancer Institute in Detroit, MI, breaks down the essentials of MDS care, from risk-based treatment plans to managing fatigue and exploring promising new therapies. Tune in to find out why the future of MDS treatment is brighter than ever.

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    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Myelodysplastic syndromes (MDS)
    • MDS patient videos
    • Acute myeloid leukemia (AML)
    • Allogeneic stem cell transplant
    • Graft-vs-host disease
    • Clinical Trial Support Center
    • Additional Blood Cancer United Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Free telephone/web patient programs 
      • SHARE web series
      • Online videos
      • Free booklets 
      • Young Adult Resources
      • Young Adult Online Chat
      • Support groups 
      • Patient Community
      • Caregiver support
      • Caregiver Workbook
      • Medical Debt Case Management Program
      • Financial support
      • Survivorship Workbook
      • Advocacy and Public Policy
      • Mental Health Resources
      • Episode supported by Bristol Myers Squibb and Taiho Oncology, Inc.

        The post Myelodysplastic Syndromes (MDS): Progress, Possibility, and What’s Next first appeared on The Bloodline with Blood Cancer United Podcast.

        39 min
      • Making Your Voice Count: The Power of Patient Advocacy

        Behind every policy is a patient, caregiver, or family whose story helped make change possible.

        In this episode, we speak with Andrea Sanchez and Becki Chandler, volunteer advocates with Blood Cancer United, about the power of patient voices in shaping public policy. Drawing from their own family experiences with blood cancer, they discuss issues ranging from medical debt and insurance coverage to clinical trial access and research funding and explain how patients and caregivers can make their voices heard.

        Learn why sharing your story matters and how personal experiences help lawmakers see that patients are more than numbers on a page. Behind every statistic is a real person, a unique story, and a family impacted by blood cancer.

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        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Blood Cancer United Advocacy and Office of Public Policy – sign up for volunteer advocacy or sharing your voice here
        • Medical Debt Case Management Program
        • Financial support
        • Accelerating Kids Access to Care Act
        • Dare to Dream
        • Blood Cancer United Scholarship program
        • Blood Cancer Care Close to Home vlog episode
        • National Institutes of Health (NIH)
        • Advocating for Yourself: Insurance, Finances, and Your Rights podcast episode 
        • Additional Blood Cancer United Support Resources: 

          • Information Specialists 
          • Clinical Trial Support Center
          • Young Adult Resources
          • Young Adult Online Chat
          • Free Nutrition Consultations
          • Free telephone/web patient programs 
          • SHARE web series
          • Online videos
          • Free booklets 
          • Patient Community
          • Caregiver support
          • Caregiver Workbook
          • Support groups 
          • Survivorship Workbook
          • Mental Health Resources
          • The post Making Your Voice Count: The Power of Patient Advocacy first appeared on The Bloodline with Blood Cancer United Podcast.

            56 min
          • Diffuse Large B-Cell Lymphoma (DLBCL): Breaking Down an Aggressive Lymphoma
            Jonathon Cohen, MD, MS

            When you hear the word “aggressive,” it can feel overwhelming, but in diffuse large B-cell lymphoma (DLBCL), it can also point to something encouraging – a potential cure.

            In this episode, we speak with Dr. Jonathon Cohen, of Winship Cancer Institute in Atlanta, GA, about what a DLBCL diagnosis really means, from how this common type of non-Hodgkin lymphoma is identified to current treatment options and emerging therapies. We explain what patients and families need to know about side effects. We also look at new treatments, including CAR T-cell therapy and bispecific antibodies, and the importance of open communication with your care team.

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            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Diffuse large B-cell lymphoma
            • CAR T-cell therapy
            • Stem cell transplantation
            • Bispecific antibodies (immunotherapy fact sheet)
            • Clinical Trial Support Center
            • Additional Blood Cancer United Support Resources: 

              • Information Specialists 
              • Young Adult Resources
              • Young Adult Online Chat
              • Financial support
              • Free Nutrition Consultations
              • Free telephone/web patient programs 
              • SHARE web series
              • Online videos
              • Free booklets 
              • Patient Community
              • Support groups 
              • Caregiver support
              • Caregiver Workbook
              • Survivorship Workbook
              • Advocacy and Public Policy
              • Mental Health Resources
              • Episode supported by Genmab US, Inc.

                The post Diffuse Large B-Cell Lymphoma (DLBCL): Breaking Down an Aggressive Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

                39 min
              • Myelofibrosis (MF): More Options, More Hope
                Tania Jain, MBBS

                What does a myelofibrosis (MF) diagnosis really mean, and how does it fit within a group of conditions called myeloproliferative neoplasms, or MPNs? In this episode, we’re joined by Dr. Tania Jain of Johns Hopkins Sidney Kimmel Comprehensive Cancer Center in Baltimore, MD, who helps break it all down in a clear and approachable way.

                She discusses how myelofibrosis affects the bone marrow, common symptoms to watch for, and how treatment options are tailored to each person. From managing day-to-day challenges to understanding when more advanced treatments may be considered, this conversation focuses on what matters most to patients and families.

                As Dr. Jain shares, “every patient writes their own story,” noting that advancing research offers genuine hope.

                DOWNLOAD TRANSCRIPT
                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Myelofibrosis (MF)
                • DIPSS/DIPSS plus myelofibrosis scoring
                • Myelofibrosis: Charting the Course for Care
                • Allogeneic stem cell transplantation
                • Acute myeloid leukemia (AML)
                • Clinical Trial Support Center
                • Online Chat
                • Additional Blood Cancer United Support Resources: 

                  • Information Specialists 
                  • Financial support
                  • Free Nutrition Consultations
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Patient Community
                  • Support groups 
                  • Caregiver support
                  • Caregiver Workbook
                  • Young Adult Resources
                  • Survivorship Workbook
                  • Advocacy and Public Policy
                  • Mental Health Resources
                  • Episode supported by Takeda Oncology.

                    The post Myelofibrosis (MF): More Options, More Hope first appeared on The Bloodline with Blood Cancer United Podcast.

                    47 min
                  • Chronic Lymphocytic Leukemia (CLL): Managing Treatment and Finding Balance

                    Some people with chronic lymphocytic leukemia (CLL) may feel well day to day, but that doesn’t mean life stays the same. In this episode, we hear from Annette Holloway, a clinical psychologist living with CLL, as she shares how her diagnosis, treatment decisions, and side effects have shaped her daily life. Also joining us is Elise Curry, RN, OCN, a Clinical Trial Nurse Navigator at Blood Cancer United’s Clinical Trial Support Center, who helps break down treatment options, side effects, and the importance of communication with your care team.

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Chronic lymphocytic leukemia (CLL)
                    • Clinical Trial Support Center
                    • Minimal/measurable residual disease (MRD)
                    • Patti Robinson Kaufmann First Connection ® program
                    • Online Chat
                    • Patient Community
                    • Support groups 
                    • Caregiver support 
                    • Lessons in Blood Cancer Video: CLL
                    • Shared Decision Making in Chronic Leukemias interactive program
                    • CLL Society
                    • Patient Power
                    • Additional Blood Cancer United Support Resources: 

                      • Information Specialists 
                      • Financial support
                      • Free Nutrition Consultations
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Caregiver Workbook
                      • Young Adult Resources
                      • Survivorship Workbook
                      • Advocacy and Public Policy
                      • Mental Health Resources
                      • Episode supported by AbbVie Inc.; BeOne Medicines; and Genentech, A Member of the Roche Group.

                        The post Chronic Lymphocytic Leukemia (CLL): Managing Treatment and Finding Balance first appeared on The Bloodline with Blood Cancer United Podcast.

                        44 min
                      • Acute Myeloid Leukemia (AML): New Approaches For A Complex Diagnosis
                        Rebecca Olin, MD, MSCE

                        Acute myeloid leukemia (AML) is a complex diagnosis, and it can be difficult to know what to expect in those early conversations after diagnosis. In this episode, we speak with Dr. Rebecca Olin from the University of California, San Francisco (UCSF), who helps explain what AML is and how care is approached today.

                        Dr. Olin walks us through how doctors evaluate AML, what factors influence treatment decisions, and how therapies – including targeted treatments, stem cell transplant, and clinical trials – are helping improve outcomes and quality of life. We also discuss the importance of supportive care and ongoing research, offering listeners a clearer picture of how AML is treated now and where progress continues to be made.

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Acute myeloid leukemia  
                        • Allogeneic stem cell transplantation
                        • Clinical Trial Support Center
                        • Beat AML® Master Clinical Trial
                        • Beat AML® press release – January 2026
                        • Additional Blood Cancer United Support Resources: 

                          • Information Specialists 
                          • Financial support
                          • Online Chat
                          • Free Nutrition Consultations
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Support groups 
                          • Caregiver support 
                          • Caregiver Workbook
                          • Young Adult Resources
                          • Survivorship Workbook
                          • Advocacy and Public Policy
                          • Patient Community
                          • Mental Health Resources
                          • Episode supported by Astellas Pharma US Inc.; Daiichi Sankyo Inc.; Debiopharm; Genentech, A Member of the Roche Group; and Kura Oncology, Inc.

                            The post Acute Myeloid Leukemia (AML): New Approaches For A Complex Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

                            42 min
                          • Facing Multiple Myeloma: A Guide to Choices, Care, and Confidence
                            Andrew Yee, MD

                            Multiple myeloma can feel unfamiliar and overwhelming at first, but today’s advances tell a much brighter story.

                            In this episode, Dr. Andrew Yee of Massachusetts General Hospital explains what myeloma is, how it’s diagnosed, and why new treatment options, from four-drug regimens to CAR T-cell therapy and bispecific antibodies, are transforming patient outcomes. With enthusiasm and relatable analogies, he highlights how patients may progress from periods of significant challenges to reaching a level of stability and well‑being that allows them to live fully. This conversation offers clarity, confidence, and real optimism for anyone navigating myeloma.

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Multiple myeloma
                            • Amyloidosis
                            • Autologous stem cell transplantation
                            • CAR T-cell therapy
                            • Immunotherapy fact sheet
                            • Clinical Trial Support Center
                            • Additional Blood Cancer United Support Resources: 

                              • Information Specialists 
                              • Financial support
                              • Online Chat
                              • Free Nutrition Consultations
                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Young Adult Resources
                              • Support groups 
                              • Caregiver support 
                              • Caregiver Workbook
                              • Survivorship Workbook
                              • Advocacy and Public Policy
                              • Patient Community
                              • Mental Health Resources
                              • Episode supported by AbbVie Inc.; Bristol Myers Squibb; Genentech, A Member of the Roche Group; GSK plc.; Johnson & Johnson.

                                The post Facing Multiple Myeloma: A Guide to Choices, Care, and Confidence first appeared on The Bloodline with Blood Cancer United Podcast.

                                51 min
                              • Inside CAR T‑Cell Therapy: How Innovation Is Changing Lives

                                CAR T‑cell therapy is redefining what personalized cancer treatment can look like, offering real promise for patients and families.

                                In this episode, we speak with Dr. Richard Maziarz and CAR T Nurse Coordinator Bashi Ratterree of Oregon Health & Science University (OHSU). Together, they explain how CAR T‑cell therapy works, who may be eligible, what patients can expect during treatment and recovery, and the promising advancements shaping the future of this innovative therapy.

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • CAR T-cell therapy
                                • Clinical Trial Support Center
                                • CAR T-Cell Therapy: A Path of Hope and Healing Video Series
                                • Bloodline Breakthroughs: innovations and inspiration video podcast: CAR T-cell Therapy
                                • Hematology Horizons vlog:  CAR T-Cell Therapy and the Patient Experience
                                • CAR T-Cell Therapy: Side Effects video  
                                • Additional Blood Cancer United Support Resources: 

                                  • Information Specialists 
                                  • Financial support
                                  • Online Chat
                                  • Free Nutrition Consultations
                                  • Free telephone/web patient programs 
                                  • Free booklets 
                                  • Young Adult Resources
                                  • Support groups 
                                  • Caregiver support 
                                  • Caregiver Workbook
                                  • Survivorship Workbook
                                  • Advocacy and Public Policy
                                  • Patient Community
                                  • Mental Health Resources
                                  • Episode supported by Bristol Myers Squibb; Johnson & Johnson & Legend Biotech;  Kite, a Gilead Company; Novartis Pharmaceuticals Corporation.

                                    The post Inside CAR T‑Cell Therapy: How Innovation Is Changing Lives first appeared on The Bloodline with Blood Cancer United Podcast.

                                    50 min
                                  • Cutaneous T-Cell Lymphoma (CTCL): Illuminating a Brighter Path Forward
                                    Stefan Barta, MD, MS

                                    Cutaneous T‑cell lymphoma (CTCL) is a rare condition that often raises important questions for patients and families.

                                    In this episode, we sit down with Dr. Stefan Barta, of the University of Pennsylvania, to bring clarity to what CTCL is, how it’s diagnosed, and what patients can expect from staging and treatment. Dr. Barta breaks down the differences between CTCL subtypes, explains why diagnosing someone can take time, and shares the most up-to-date therapies, including skin directed treatments, immunotherapies, and emerging clinical trial options. Most importantly, he offers reassurance for those newly diagnosed: “The future is absolutely bright… there is a lot of hope for our patients with CTCL.”

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Cutaneous T-cell lymphoma
                                    • Cutaneous Lymphoma Foundation
                                    • Clinical Trial Support Center
                                    • Additional Blood Cancer United Support Resources: 

                                      • Free Nutrition Consultations
                                      • Information Specialists 
                                      • Financial support
                                      • Online Chat
                                      • Free telephone/web patient programs 
                                      • Free booklets 
                                      • Young Adult Resources
                                      • Support groups 
                                      • Caregiver support 
                                      • Caregiver Workbook
                                      • Survivorship Workbook
                                      • Advocacy and Public Policy
                                      • Patient Community
                                      • Mental Health Resources
                                      • Episode supported by Kyowa Kirin, Inc. and Cutaneous Lymphoma Foundation.

                                        The post Cutaneous T-Cell Lymphoma (CTCL): Illuminating a Brighter Path Forward first appeared on The Bloodline with Blood Cancer United Podcast.

                                        39 min
                                      • The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research
                                        Mikkael A. Sekeres, MD, MS

                                        Curious about what’s new in the world of myelodysplastic syndromes (MDS)? We’re bringing you the latest insights straight from one of the field’s leading experts.

                                        In this episode, we speak with Dr. Mikkael Sekeres, of the Sylvester Comprehensive Cancer Center at University of Miami Health. Recorded onsite at the 2025 ASH (American Society of Hematology) Annual Meeting and Exposition, this conversation explores what MDS is, how it’s treated today, and what researchers are learning about managing side effects.

                                        Dr. Sekeres also walks us through the most notable MDS updates presented at ASH, highlighting promising therapies and clinical trial data that may help shape future care. Whether you’re newly learning about MDS or following ongoing research, this episode offers an accessible look at where things stand and what’s on the horizon.

                                        *This is not an official program of the ASH annual meeting

                                        DOWNLOAD TRANSCRIPT
                                        CLICK HERE to participate in our episode survey.

                                        Mentioned on this episode: 

                                        • Myelodysplastic syndromes
                                        • International Prognostic Scoring System for MDS
                                        • American Society of Hematology
                                        • Highlights from ASH vlog
                                        • Blood cancer research 2026: Meeting patients where they want to be | blog post
                                        • Additional Blood Cancer United Support Resources: 

                                          • Free Nutrition Consultations
                                          • Information Specialists 
                                          • Financial support
                                          • Clinical Trial Support Center
                                          • Online Chat
                                          • Free telephone/web patient programs 
                                          • Free booklets 
                                          • Young Adult Resources
                                          • Support groups 
                                          • Caregiver support 
                                          • Caregiver Workbook
                                          • Survivorship Workbook
                                          • Advocacy and Public Policy
                                          • Patient Community
                                          • Mental Health Resources
                                          • Episode supported by Geron Corporation and Taiho Oncology, Inc.

                                            The post The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research first appeared on The Bloodline with Blood Cancer United Podcast.

                                            19 min

                                          About Clinical Trials - The Bloodline with Blood Cancer United Podcast

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                                          A podcast for patients and caregivers