Conversations About Advance Care Planning

In this episode it is my pleasure to talk with Lizzi Collinge. We talk about what happened following her Grandma's stroke focusing on missed opportunities to talk about Ordinary Dying and the difference this would have made. We discuss the emotive subject of Clinically Assisted Hydration and Lizzi explains what she has learned about her Grandma's death and how different conversations at the time could have helped.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In the previous episode I spoke with Dr Barny Hole and Dr Emma Murphy about the trajectory of kidney disease, conversations around stopping dialysis and what Advance Care Planning with kidney disease looks like.

We realised there was so much more we had to talk about and met again to explore the complexity of language associated with Palliative and End of Life Care, focusing particularly on language around discontinuing dialysis.

You can hear our discussion in this episode; it was so interesting to explore the variance in our thoughts and highlight the importance of effective communication.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Dr Barny Hole and Dr Emma Murphy. Barny is a kidney doctor currently studying for a PhD. Barny's research looks at how older people with kidney failure decide between dialysis and comprehensive conservative care.

Emma is an Associate Clinical Professor in Nephrology Nursing with a combined clinical and academic role. Emma is currently leading the QUALYCARE Kidney study which aims to understand the variations in the quality of end-of-life care for patients with kidney disease on dialysis.

We explore the trajectory of kidney disease, conversations around stopping dialysis and what Advance Care Planning with kidney disease looks like.

The episode is one of two that we recorded. We touch on language and terminology in this episode and agree to talk again, focusing on the complexity of language associated with Palliative and End of Life Care and discontinuing treatment. You can hear that discussion in the next episode.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

In this episode it is my pleasure to talk with Dr Maggie Keeble, a retired GP with a special interest in End of Life Care. Maggie spent the later part of her career working in care homes and during that time became involved in many Lasting Power of Attorney discussions. We have a great conversation and Maggie really breaks down the Mental Capacity Act in relation to making a Lasting Power of Attorney and explains how we assess capacity to make the different types of Lasting Power of Attorney.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

In this episode it is my pleasure to talk with Dr Liz O'Riordan. We talk about Advance Care Planning through three very different lenses, from Liz's experience as a surgeon, a daughter and as a patient. Liz shares what she has learned through these experiences and why we should all have the conversation and start planning early.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

In this episode it is my pleasure to talk with Professor Mark Taubert, palliative care consultant, founder of Talk TalkCPR.com and chair of a national strategy group for Advance and Future Care Planning. We cover the famous Thank you to David Bowie Letter, Advance Care Planning in Wales and acknowledge both the complexity and simplicity of Advance Care Planning.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

In this episode it is my pleasure to talk with Wendy Mitchell, author of the best-selling books Somebody I Used to Know, What I wish people knew about dementia and the recently published One Last Thing; How to live with the end in mind.

We connected back in 2022 to explore Wendy's Advance Care Planning and spoke about the work we did together in an earlier podcast. Wendy writes about her Advance Care Planning journey in her recent book and in discussion today we reflect on missed opportunities to plan ahead, the importance of language and of normalising these important conversations. We also talk about Assisted Dying and what Wendy learned through writing her book.

Wendy is a true inspiration, teaching us all how to live with the end in mind.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

In this episode it is my absolute pleasure to talk with Dr Julian Abel who became a consultant in palliative care 2001, working initially at a district general hospital and a hospice. For more than a decade he has become increasingly involved in finding ways of building compassionate communities around people at end of life. He has run projects at local, regional and national levels. He was Vice President of Public Health Palliative Care International. He is an international keynote speaker and has published regularly on models of public health palliative care. He is the editor, along with Professor Allan Kellehear, of the Oxford Textbook of Public Health Palliative Care.

We explore Advance Care Planning from a relational context, I learn the origins of the What Matters Most work and have an opportunity to share how much this has influenced my practice.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

Stephanie Craig is a Registered Nurse and a PhD Student at Queen's University Belfast. Since qualifying Steph has worked on a number of projects including the implementation of an Advance Care Planning educational tool for undergraduate nursing students.

I connected with Steph on Twitter and was keen to learn what was covered in Steph's education about Advance Care Planning as a student nurse and how this translated into practice.

We talk about the fabulous project work that Steph has been involved with since qualifying and the difference this is making for nurses of tomorrow – building their confidence to learn, do and share Advance Care Planning skills.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

In this episode it is my pleasure and honour to talk with Dr. Naheed Dosani. Naheed is a palliative care physician and health justice activist dedicated to advancing equitable access to healthcare for people experiencing structural vulnerabilities like poverty and homelessness. Naheed's achievements include founding the Palliative Education and Care for the Homeless (PEACH) Program at the Inner City Health Associates, serving as the Medical Director of Kensington Hospice in downtown Toronto, a Health Equity Expert Advisor at the Canadian Partnership Against Cancer and as a palliative care physician at St. Michael's Hospital at Unity Health Toronto.

We talk about early influences in Naheed's life and career, the impact of structural vulnerability, and I learn how the PEACH programme is supporting Advance Care Planning for people experiencing homelessness.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.