Conversations About Advance Care Planning

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Aye season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resource.

In episode two we talk about Palliative Care, what it is, societal and professional taboos and the positive impact of early access to palliative care. Listen in and share the conversations.

Resource mentioned in this episode

• Access the Clair Fisher legacy work hosted on Speak For Me

• Listen to the first podcast featuring Clair Fisher in which Clair explains the benefits of early intervention palliative care and Advance Care Planning: How to ensure your plans are heard with Clair Fisher

• Read Hope For The Best Plan For the Rest

• Listen to the Waiting Room Revolution podcast

• Podcast: Terminology and language around discontinuing dialysis with Dr Barny Hole & Dr Emma Murphy. Listen and see show notes and resource.

• Podcast: Living and Dying with Kidney Disease with Dr Barny Hole & Dr Emma Murphy.Listen and see show notes and resource.

For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website.

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Welcome to a new season of podcasts. I am delighted to welcome back Dani Ayre, explore words and bust myths associated with palliative and end of life care. Over the course of this season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words.

In episode one we talk about End-of-Life Care, what it is, societal and professional taboos and offer useful tools for identification. Listen in and share the conversations.

Resource mentioned in this episode

• NICE Guidance: End of life care for adults QS13
• NHS resource: End of life care at home
• NHS information: What to expect from end-of-life-care
• The General Medical Council: Treatment and care towards the end of life: good practice in decision making
• Dr Jared Rubenstein video: Palliative Care PSA - We're the fire department, not the fire.

Identification Tools

• Proactive Identification Guidance (PIG)​
• The Supportive and Palliative Care Indicators Tool
• Comparing the ECOG Performance Status and the Karnofsky Performance Status Scales

For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website.

Find out more about how I can work with youIf you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Hi, Clare here on the other side of the mic for once! I was honoured recently to be asked to talk with Ruth Germain for her brilliant podcast - so who cares anyway. Listen in to hear our discussion….

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode, released during National Grief Awareness Week, I catch up with James Norris about Communication Technology & Bereavement. Listen in to learn about valuable new resource and the different ways this can support people who are bereaved.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Have you ever wondered about the complexity of Advance Care Planning in a critical situation? This episode expands the theme of "decision to treat at home", with paramedic Tom Pullen. It's a case study in which Tom shares the nuance of decision making.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

"Decision to treat at home", five small words but a huge impact. Listen in to hear how a shift in language can shape person centred care with paramedic Tom Pullen.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Dr Mary Miller, consultant in palliative medicine and Clinical Lead for the National Audit of Care at the End of Life. It's a super discussion and we hone in on key findings and recommendations. Listen to hear what we must do better.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode, it is my pleasure to talk with Dr Suzy Lishman, a consultant histopathologist and medical examiner. Listen in to hear about the new medical examiner role, why it was introduced and how it is improving care.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Professor Katherine Sleeman about the new Impact Centre for Palliative and End of Life Care. Listen in to learn about the centre's aims and hear how you can be involved.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my real pleasure talking to my ex colleague and very dear friend Nicky Bonthron.

Our careers have crossed paths over the years and we have worked together in different palliative care teams in hospices and acute hospitals.

Nicky generously shares her experiences of caring for four people at the end of life and there are so many powerful messages in the stories.

Nicky talks about the importance of planning, the difference that the ReSPECT process made and why we need to talk more about Ordinary Dying.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY