Diagnosis of sight loss can be devastating, even more so if it's your child being diagnosed. 20 years ago Tracy Stoneman was told her son Callum had Norrie Disease, a rare genetic condition that affects vision from birth and can also lead to loss of hearing. Speaking with us Tracy explains how her family learned to live with the diagnosis and how much has changed since that initial shock many years ago.  Tracy spoke with RNIB Connect Radio’s Simon Pauley. To get in touch with Tracy and Callum, email Simon at: [email protected] or visit the Norrie Disease Foundation website: https://norriedisease.org.uk/

(Photo: A close up image of a child's blue eye)