Diagnosis of sight loss can be devastating, even more so if it's your children being diagnosed.

 

Emma Oates is a mum to Tom and Katie, both of whom have been diagnosed with Bardet-Biedl Syndrome, a rare genetic condition with highly variable symptoms including sight loss, reduced kidney function, and extra digits of the hands or feet.

 

Speaking with us about the challenges of parenting, Emma explains why it’s so important to let your kids become independent even if you don’t feel ready. 

 

Emma spoke with RNIB Connect Radio’s Simon Pauley.

 

For more information about Bardet-Biedl Syndrome visit: https://www.lmbbs.org.uk/index.php 

 For previous part of the series: https://audioboom.com/posts/7299328-coping-with-your-child-s-sight-loss-pt-4

 

 (Photo: A close up image of a child's blue eye)