In today's episode it's a pleasure to speak with Aleina who was diagnosed with psoriatic arthritis during the start of the pandemic, her Dad has Crohn's disease. Aleina talks openly about Chronic Illness and admits she has lost friendships due to having arthritis which is not acceptable. We both agree and say we should be putting ourselves and our health first beyond anything else. We talk the high's and lows. A great conversation and a meaningful one! a great support system is important too!

From Aleina and me...

You are unique in the universe!

Thank you again Aleina!

Today i am joined with Beth, 37 years old and has been living with Crohn's disease and ulcerative colitis (IBD) for the past 11 years whilst owning a beauty salon. Then over the past 2 years I have had 4 major surgeries and am now living with a stoma, but her dream is to share her story, experiences and advice to help others going through the same journey.

In 2018 Beth closed down my salon, reduced my number of waxing clients and then launched her own organic vegan skincare brand!

After living with IBD symptoms my whole life in 2009 she was extremely ill and finally got diagnosed. Despite being on daily medications and high strength steroids, Beth continued to suffer for 10 years until finally in 2019 I had a surgery which got her large bowel removed and she was fitted with a stoma. Three surgeries later Beth is thriving with a permanent stoma and her life has been transformed!

Beth reached out and said...

"I would absolutely love the opportunity to speak on your podcast to share my story and inspire others too."

Thank you Beth for a wondering conversation. 

Today I am joined with Ethan who is known to most of the internet as Pooks, he makes lots of good content on his channels while using his VR. Ethan was diagnosed with Crohn's disease in 2013, while he was 13 years and he talks about the process of a diagnosis. When talk about how Crohn's makes us feel, medication too where Ethan is at higher risk at breaking his bones more easier because he was on steroids for 1 year and half, which as most Crohn's and IBD patients will know you are advised to only be on them for a few months. Ethan was on steroids because of his abdominal pain, he hopes not be on steroids ever again, at this point he couldn't be put on any more biologics because he had been them all. 3 years after his diagnosis he had a stoma after tying every biologic medication available, as well as having a stoma Ethan has weekly Humira injections, we both relate to that as we both take humira. He talks about his stoma in more detail in the episode. 

Some great advise given by Ethan too!

Things to take from this episode are everyone with Crohn's Disease is different. And we hope everything will work out okay!

Thank you again Ethan, Pooks for a awesome conversation!

Today, we head to Canada to speak with Makayla I have to admit this is one of the longest conversations yet and you will not be disappointed. I have point a list of the topics down below. 

Crohn's Disease 

Autism 

Being Sensory 

Pandemic 

Mental Health 

What's going on in the world at the moment. 

As you can see We both have Crohn's disease and autism, Makayla was diagnosed with Autism she was 13 and diagnosed with Crohn's disease during this current ongoing pandemic which was hard for her. I haven't met many people who have both Crohn's disease and Autism. Lot great topics here. 

Great advise from Makayla down below... 

"Don't wait for your pain to stop tell someone and get seen to resist it's flux!"

That's the concept of Makayla's advise!

Thank you again Makayla for an awesome conversation, a pleasure. 

In today's episode I am joined with Holly, Who was diagnosed with Ulcerative Colitis when she was 26 in 2020, her brother was diagnosed with Crohn's disease 10 years ago at the age of 17 years old. Holly takes us on a journey about her story with IBD and Ulcerative Colitis. She talks about her job, dream jobs and her stoma bag. We talk about how our lives have changed since diagnosis. Holly talks about surgery, inspirational people like Amy Dowden, how difficult it can be with a chronic illness. We discuss our opinions on the latest announcements, and Holly offers some great advise. 

Thank you again Holly! 

In this second Part of episode 79 of season 5 I am joined with Christelle. She is apart of the Let's Talk Autism podcast! 

We have a great discussion best friendships, Autism school life and how people shouldn't assume people are autistic or have AHDHD. 

It's a great episode we will be seeing Meesh and Christelle back on the podcast which is going to be awesome!

Great advise from Christelle "Just do it!" 

Thank you again Christelle  

In today's episode I am joined with Brandon who is based in the America, he is part of the Chronic power Podcast. When i was on the Podcast Brandon wasn't there and now you will here the last member of the Chronic Power podcast Brandon. We talk about Chronic Illness Brandon discusses his chronic illnesses and we relate to each other. Brandon's mum has Crohn's so that was interesting to hear about, Brandon experienced long Covid from that he developed another chronic illness. We have a awesome conversation. 

Brandon's advise be yourself!

Thank you again Brandon!

In today's episode I am joined with Author and Science Teacher Jack. We talk about our journey's with Ibd. Jack was diagnosed with Ulcerative Colitis in 2018. Jack talks about surgery's he has had and talks about his Stoma bag. The School he works at are understanding of his Ulcerative Colitis, he has done assemblies explaining IBD too. His book is called S**t Happens it was released last September and has sold a couple 100 copies, you can listen to it audio too. The book is split into chapters. A great episode not to be missed. 

The website if you want to listen to the book Audio is below. 

https://jeturleywriting.co.uk/sht-happens/sht-happens-welcome/

Thank you again Jack.