I’ve talked a lot about what I call the “established narratives” that surround Motor Neurone Disease. These are the storylines that dominate the MND world.

But why are narratives so important? And what difference do they make in the context of a life-changing diagnosis?

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Last week, I had a meeting with a peer support and engagement lead from mnd Scotland. Before I tell you about that, let me give a quick recap of what lead up to it.

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Today, I discuss an idea that’s been around for more than a century. Something that feels relevant to my own journey with MND - It’s the old saying: - the terrain is everything.

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Whether it’s the systems we look to for help, or just how we approach our own health - this is a constructive encouragement that we can do better.

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“One of my favourite movies is Back to the Future, and, as a huge Star Trek fan, I know a thing or two about time travel. In fact, in my life I’ve spent quite a bit of time visiting both the past and the future. Let me explain…”

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Sign the Petition to allocate annual funding to accelerate breakthroughs in MND research - ⁠⁠⁠https://petition.parliament.uk/petitions/715520?fbclid=IwY2xjawKgNs9leHRuA2FlbQIxMAABHoXTpD-IYO44Qrl3lxeAw7AIUiBIUOie-dpvgvFKN7YdPjW65hvIg5hApgPA_aem_XviAeyq2BTUMqgIiSZ6g_Q⁠⁠⁠

“In simple terms, increasing the amount of omega-3 through diet and supplements could help my body push back against the disease. This was a no-brainer, an easy add, a small step that might make a big impact. And one of the first glimmers of hope on this crazy journey.”

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Sign the Petition to allocate annual funding to accelerate breakthroughs in MND research - ⁠⁠⁠https://petition.parliament.uk/petitions/715520?fbclid=IwY2xjawKgNs9leHRuA2FlbQIxMAABHoXTpD-IYO44Qrl3lxeAw7AIUiBIUOie-dpvgvFKN7YdPjW65hvIg5hApgPA_aem_XviAeyq2BTUMqgIiSZ6g_Q⁠⁠⁠

“Over time, this practice has become a non-negotiable in my day, and has helped strengthen my emotional and mental stability. In the midst of uncertainty, it has become a daily moment of pause where I can forget everything, and simply rest.”

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Sign the Petition to allocate annual funding to accelerate breakthroughs in MND research - ⁠⁠⁠https://petition.parliament.uk/petitions/715520?fbclid=IwY2xjawKgNs9leHRuA2FlbQIxMAABHoXTpD-IYO44Qrl3lxeAw7AIUiBIUOie-dpvgvFKN7YdPjW65hvIg5hApgPA_aem_XviAeyq2BTUMqgIiSZ6g_Q⁠⁠⁠

“Contrary to our established belief, the wild isn’t lawless - it just follows rules that our individualistic culture no longer understands.”

“Rewilding is the process of restoring these natural rhythms on land, under the sea, and maybe even within ourselves.”

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Sign the Petition to allocate annual funding to accelerate breakthroughs in MND research - ⁠⁠⁠https://petition.parliament.uk/petitions/715520?fbclid=IwY2xjawKgNs9leHRuA2FlbQIxMAABHoXTpD-IYO44Qrl3lxeAw7AIUiBIUOie-dpvgvFKN7YdPjW65hvIg5hApgPA_aem_XviAeyq2BTUMqgIiSZ6g_Q⁠⁠⁠

“But for someone like me, and a lot of other newly diagnosed people – who are in their prime years. with a spouse and young kids in school - we can’t just go along with that. We can’t simply do nothing. We can’t give up hope.”

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Sign the Petition to allocate annual funding to accelerate breakthroughs in MND research - ⁠⁠⁠https://petition.parliament.uk/petitions/715520?fbclid=IwY2xjawKgNs9leHRuA2FlbQIxMAABHoXTpD-IYO44Qrl3lxeAw7AIUiBIUOie-dpvgvFKN7YdPjW65hvIg5hApgPA_aem_XviAeyq2BTUMqgIiSZ6g_Q⁠⁠⁠

In the midst of uncertainty, could we retrain ourselves to find moments of safety and unlock new pathways to healing?

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Sign the Petition to allocate annual funding to accelerate breakthroughs in MND research - ⁠⁠⁠https://petition.parliament.uk/petitions/715520?fbclid=IwY2xjawKgNs9leHRuA2FlbQIxMAABHoXTpD-IYO44Qrl3lxeAw7AIUiBIUOie-dpvgvFKN7YdPjW65hvIg5hApgPA_aem_XviAeyq2BTUMqgIiSZ6g_Q⁠⁠⁠